Why Everybody Must Take Family Caregiver Support More Seriously

 

How to support family caregivers

Video taken from the channel: Canadian Virtual Hospice


 

Diagnosis of Alzheimer’s and What You Need to Know as a Caregiver

Video taken from the channel: Pfizer


 

3 TYPES OF SUPPORT from the VA Caregiver Support Program

Video taken from the channel: Sofia Amirpoor


 

Easing the burden for families of long-term caregiving

Video taken from the channel: PBS NewsHour


 

VA Benefits for Spouses of Disabled Veterans

Video taken from the channel: Chisholm Chisholm & Kilpatrick LTD


 

Role of Family Caregiver Increases Without Proper Training

Video taken from the channel: HCPLive


 

Getting Paid to Take Care of Your Elderly Parent

Video taken from the channel: Taylor Willingham


Research shows that caregivers often experience depression and anxiety, along with increased incidents of weight gain, digestive problems and high blood pressure, among other physical ailments. The need for unpaid caregivers is not going to change any time soon. Why Everyone Needs to Take Family Caregiver Support More Seriously.

Unpaid care from a family caregiver is what makes home care work for most families but caregivers rarely get sufficient respect and support for their efforts. share. caregiving. Support for Family Caregivers A Caregiver’s Guide for Family and Loved Ones According to the CDC, informal caregivers, such as family members or friends of elderly or ailing people who need assistance, are “the backbone of long-term care.” Many families cannot afford professional care or would prefer to take care of their loved ones themselves. Caregivers are more likely to have a chronic illness than are non-caregivers, namely high cholesterol, high blood pressure, and a tendency to be overweight.

Studies show that an estimated 46 percent to 59 percent of caregivers are clinically depressed. Taking Responsibility for Your Own Care. In many families, the situation is familiar: As your loved ones grow older, they need help with daily and routine tasks.

Often, a family member steps in and takes care of the elder. Over time, the elder needs more help, so the family caregiver’s responsibilities grow. As the caregiver spends more time with the elder, even in harmonious families, other family members can become resentful.

Experts agree that your own health and well-being are essential to caring for your loved one. If you’re sick and exhausted, it can be tough on everyone, says Marion Somers, PhD, author of Elder. About 60% of caregivers show signs of clinical depression, and caregivers take more prescription medications, including those for anxiety and depression, than others in their age group. Reluctance in asking for and accepting help is a major barrier to getting necessary respite and support. One reason caregivers don’t get the help they need is that taking care of yourself feels like just “one more thing you have to do.” But we all need someone to talk to.

Special caregiver support groups in your community or online can help to reduce the feeling that you’re all alone and help you learn coping skills from others who are in similar situations. (See FCA Fact Sheet Taking Care of YOU: Self-Care for. Please visit our Caregiver Support Program website or call our Caregiver Support Line at 855-260-3274 to get more information about this expansion and to learn about the many support services you can access now. We’re here Monday through Friday, 8:00 a.m. to 8:00 p.m.

ET. Some caregivers find support groups helpful. They allow caregivers to share their experiences, exchange information, and point each other toward organizations that have been particularly helpful.

List of related literature:

In addition, there is sufficient anecdotal evidence to conclude that family caregivers, particularly as they age, ignore their own healthcare needs in order to try and address, financially and otherwise, the healthcare needs of their loved one with an IDD.

“Health Care for People with Intellectual and Developmental Disabilities across the Lifespan” by I. Leslie Rubin, Joav Merrick, Donald E. Greydanus, Dilip R. Patel
from Health Care for People with Intellectual and Developmental Disabilities across the Lifespan
by I. Leslie Rubin, Joav Merrick, et. al.
Springer International Publishing, 2016

Often when family members assume the role of caregiver, they lose support from significant others and are at risk for caregiver role strain (Laitinen, et al., 2011).

“Fundamentals of Nursing E-Book” by Patricia A. Potter, Anne Griffin Perry, Patricia Stockert, Amy Hall
from Fundamentals of Nursing E-Book
by Patricia A. Potter, Anne Griffin Perry, et. al.
Elsevier Health Sciences, 2016

Having family support is a factor in making care more connected.

“Connecting Care for Patients” by Barbara Katz
from Connecting Care for Patients
by Barbara Katz
Jones & Bartlett Learning, 2018

This is especially true when there is a single caregiver without a strong support system or if there are significant financial difficulties.

“Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease” by Claire J. Creutzfeldt, Benzi M. Kluger, Robert G. Holloway
from Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease
by Claire J. Creutzfeldt, Benzi M. Kluger, Robert G. Holloway
Springer International Publishing, 2018

• Because caregivers are a core part of health care and long-term care, it is important to recognize, respect, assess, and address their needs.

“Stroke Rehabilitation: A Function-Based Approach” by Glen Gillen, EdD, OTR, FAOTA
from Stroke Rehabilitation: A Function-Based Approach
by Glen Gillen, EdD, OTR, FAOTA
Elsevier Health Sciences, 2015

• Support for family caregiver is sometimes necessary before caregiver can learn how to support someone else.

“Clinical Nursing Skills and Techniques E-Book” by Anne Griffin Perry, Patricia Ann Potter, Wendy Ostendorf
from Clinical Nursing Skills and Techniques E-Book
by Anne Griffin Perry, Patricia Ann Potter, Wendy Ostendorf
Elsevier Health Sciences, 2017

It is important for the professional to recognize and support a patient’s strength and competence, regardless of his or her physical decline from illness and the consequent losses, and not encourage dependence because it makes the caregiver feel important.

“Handbook of Thanatology: The Essential Body of Knowledge for the Study of Death, Dying, and Bereavement” by David K. Meagher, David E. Balk
from Handbook of Thanatology: The Essential Body of Knowledge for the Study of Death, Dying, and Bereavement
by David K. Meagher, David E. Balk
Taylor & Francis, 2013

Additionally, family/caregiver support is also a priority.

“Oxford Textbook of Palliative Nursing” by Betty Rolling Ferrell, Judith A. Paice
from Oxford Textbook of Palliative Nursing
by Betty Rolling Ferrell, Judith A. Paice
Oxford University Press, 2019

It is just as important to be there for the caregiver when they reach the time when they can no longer cope with the enormity of the caregiver experience and admit the need for help and support.

“Palliative Care Nursing: Quality Care to the End of Life” by Marianne Matzo, PhD, APRN-CNP, FPCN, FAAN, Deborah Witt Sherman, PhD, APRN, ANP-BC, ACHPN, FAAN
from Palliative Care Nursing: Quality Care to the End of Life
by Marianne Matzo, PhD, APRN-CNP, FPCN, FAAN, Deborah Witt Sherman, PhD, APRN, ANP-BC, ACHPN, FAAN
Springer Publishing Company, 2018

Lack of such support is a key factor in the breakdown of home care.

“Palliative Medicine E-Book” by T. Declan Walsh, Augusto T. Caraceni, Robin Fainsinger, Kathleen M. Foley, Paul Glare, Cynthia Goh, Mari Lloyd-Williams, Juan Nunez Olarte, Lukas Radbruch
from Palliative Medicine E-Book
by T. Declan Walsh, Augusto T. Caraceni, et. al.
Elsevier Health Sciences, 2008

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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45 comments

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  • You kind sir have made my day. My father is legally blind and is slipping from alzheimers to dementia. I’m at my wits end and has slipped into depression.

  • My husband he just get his %100 disability Ve.and we were getting divorce sooner.we marriage over 10yrs do iam part of his benefits

  • Please fellow veterans, do not use this law firm to represent you
    for claims. Choose a more respectful, professional and helpful firm that
    cares about you and other veterans.

    Chisholm Chisholm & Kilpatrick should be ashamed of them-self, they claim to “take pride in serving the veterans who served for us.” That is a lie.

    They
    wouldn’t help me with my claim, which is fine. I understand that every
    business cant help every one and every law firm cant take every case but
    the after I submitted took the time to submit and share very personal
    information over the phone with them i.e very personal and intimate
    details about my service that I do not divulge lightly their firm would
    not even pay me the respect of letting me know why they refused to help
    me. I completely complied with all requests, responded to all of their
    inquires to painful things I experienced and encountered and they lack
    the integrity and compassion to even explain why they refuse to help.

    Maybe
    my case wasn’t financially worth it to Chisholm Chisholm &
    Kilpatrick and their wasn’t enough money in it for them to line their
    pockets with the money earned from the blood sweat and tears of
    suffering veterans? Im not sure if that’s the reason but considering
    they refuse to even explain themselves, that is the only reason I am
    left with.

    Please use another company that actually cares about
    veterans, I can say first hand Chisholm Chisholm & Kilpatrick does
    not!!!

  • can someone please explain to me why i got denied twice by the caregiver program when my husband is 100% disabled and we have all the proof of his disabilities and i pretty much do all the things a caretaker does and i also deal with the ups and downs and the emotions that come along with it. i have now had to write a 3rd letter for my appeal explaining to them why i am entitled to this it should not be like this to have to beg for help when this program is to help our veterans and caretakers im in the process of my 3rd appeal and im still waiting on a decision

  • I am at 80% paid at 100% unemployable, currently fighting social security, they stopped my benifits as they said my condition improved. VA letter says im unemployable, SSI letter say im unemployable. Confused.

  • Ive been out since January 2009 at 100% Disability. Is my wife of 5 1/2 years able to get this DEA/chapter 35 benefit? She only needs to redo a few certifications and somehow get money to do a non paid externship to finish her Associates in Medical Assisting. Is there a way for her to get money or a loan fir that. They expect her there 8-5 M-F so we (myself, the 2 kids, and herself) cant afford her to not have a full time job right now. So getting her degree and ever getting this much better job is basically being stonewalled. Any help would be great. Thank You.

  • Do you help veterans….not just with information because as you mentioned doing forms or knowing what is really what we can apply for is very hard for veterans to understand not only that other va assistance programs dont help…and the ones that can help they charge you an arm and a leg

  • Thanks guys. I would love to get help getting my spouse benefits. Ive got a combined rating of 140% for ptsd hearing loss and a gunshot wound resulting in the removal of my bicep.. My spouse works around the clock 24-7 to help me and neither of us receive any additional benefits.

  • i’m a ex spouse and my ex should have gotten 100% instead of 30%! Cause he had severe PTSD! He pass away 11 years and my question is can I get Indemnity compensation?! Because of his PTSD I had no choice but to divorced him because of his emotional abuse!! And it took a toll on my depression real bad!!

  • I reached out was told to send paper work. And was told they could not help with my case. No reason was given. So I just figured it had to do with my income.

  • I am currently rated at 80%, but am paid at the 100% rate permanent and total, due to IU. My wife needs health insurance, does she qualify for anything from the VA?

  • Our divorce states that upon his death, I am to be treated as his wife. Upon his death, would I be entitled to any benefits and if so, how do I go about securing those benefits?
    Thank you.

  • Help me with spouse benefits for deathof my husband’s he can with none sivces contact but this deaf certificate stated that we was not but we was at the Time of the his death thier are not divorce decree say that we was still married

  • Hi I’ve been married to a disabled veteran for 13months now… What are the benefits I’m entitled to? Counting on you. Have a good day!!!!

  • If a veteran is 100% disabled with permanent and total. Is the spouse only eligible for DEA benefits or Chapter 35. Can the child of the veteran use it as well?

  • Talk is cheap, I am retired US Army, 100% disabled, 2 Tours in Vietnam, First tour as a RECON Infantry Team Leader, MOSC 11F4P, 2d Battalion, 506th Infantry, 101st Airborne Division, and the VETERANS ADMINISTRATION SUCKS. I am now a vegetable due to being Airborne, taking Physical Training daily. Spent years in an Infantry Division, 2 years 2d ID, 3 years 8th Infantry division, over 2 Years in the 101st an Airborne Division Ft Campbell, KY and Vietnam, 1 Year Special Forces, 4-6 times in the 82d Airborne Division. Therefore 0% or 100%, nothing is different. VA Sucks

  • I am Totally and Permanently 100% disabled through the VA without the ability to work. I have been denied social security disability twice now even with an extensive medical history and my disability paperwork through the VA. How can SS continue to deny me social security benefits?

  • Our politicians talk big about taking care of our veterans. If they truly cared about doing the right thing, there would be a law ensuring that veterans who qualify and are granted 100% or IU disability via the Dept. of Veterans Affairs are granted Social Security disability automatically. Both are federal institutions and the way the SSA is dismissive of so many disabled veterans is shameful and a national disgrace. But will any politicians take a stand for us on that matter? You know the answer to that. I’ve heard murmurs on the issue from some VSO’s (veterans service organization) but nothing more than token statements. Then again as I type this I’m thinking that would stop firms like this one from getting their cut of veterans disability from Social Security and based on the power of the mighty American political lobby, I’ve found my answer.

    But thanks for allowing me to vent anyways.

  • During his illness and disability, I quit my job and was his caretaker without being added to his social security benefits and without compensation. Thank you.

  • I am the surviving spouse of a Viet Nam deceased (2002) disabled veteran. Am I allotted spousal benefits of any sort? None of which I have ever received. I am presently enrolled in an online school that automatically receives money from my social security disability payment. My husband passed away before things were sorted out. Would you please help me. The VA has been giving me the run-around.

  • My wife gets free education in Alabama but she already has her masters degree that the va wouldn’t pay for. I wish the va would just pay off her student loans because if she went back to school it would cost them more lol. They need to have that option for souses that already have an education. I find it stupid that they won’t pay for her masters. They told her only bachelors or below. Not sure why that would matter

  • IS the ChampVA medical insurance can be used by the spouse as the main medical insurance? or is champva just a supplementary benefit that acts as a secondary insurance?

  • Good Evening, I’m trying to find out if my Caregiver, wife can be subsidized after my death. I am 100% disabled and she takes care of me along with Homebound staff? Thank You

  • My husband apply so I can become his caregiver but we just got denied �� I been a caregiver for hem seen he got out of the military till now it’s hurts to know that the VA just don’t care
    Ihave lost most of my jobs because my husband needs me and VA is not helping ������my husband has 80% back knee and all so PTSD he has also been hospitalized please help
    we will appeal but what do we do next

  • I’m disabled.
    My deceased husband was only in the reserve. He had honorable discharge, he had permanent hearing loss and was blazin alcoholic.
    He got va disability until he passed.
    I was told that I can’t receive nothing because he didn’t do a term. Less than 90 days in reserve. I did get 2600$once 1 month after death but no more???
    I need to wrap my head around this somehow?

  • Good morning my question my spous pass i find out more about this that i could get spouse veteran benefits i get its been 10 years idid no can revice

  • I am 100% Permanent & Totally Disability (+ Home Bound). I haven’t worked in five years. I have experienced multiple complications due to my PTSD prior. I’m unable to work due to my PTSD. Am I eligible for SSDI?

  • I was going to get my wife to be my caretaker but she’s been making comments how she will use that position to control me and get power over me. Time for a divorce.

  • My individual disabilities total 240% but my combined rating is 100% plus I get a SMC. I have multiple blood cancers and gene mutations (Camp LeJeune contaminated drinking water). These blood cancers are not curable absent a stem cell transplant. I will be on chemo for the balance of my life or until my blood cancers mutate to full blown Leukemia at which time I will have go undergo a stem cell transplant if I’m a candidate at the time. My wife drives me to my doctor appointments and travels with me to Sloan Cancer Center. So is my wife entitled to care giver benefits? She currently has CHAMPVA insurance.

  • My spouse was kicked out of the caregiver program in 2016 because the clinicians refused to consider his work schedule and then claimed he was “noncompliant.” I have both TBI and PTSD, and was eligible for about 10 hours per week at the time. We appealed and were denied, and reapplied in 2018 and were also denied.

  • My spouse has been using CHAMPS for medical care she has developed cancer and we are soon to divorce. I was told that the day my divorce is finalized she looses champs coverage. She can’t get insurance anywhere! I’m100% disabled forever. Is there any way she can keep champs coverage?

  • How do you qualify as a caregiver? My husband is a disabled vet but is still able to work and all that, he has some mental issues that he needs help with. Could I qualify as a care giver?

  • I’m 100% P&T. Just wanted to add that ChampVA allows your spouse to see whatever doctor they want really, but does have deductibles for a few things and doesn’t cover dental (why?). Your spouse can however go to a VA center and get much of their care completely free there, except dental. For example, my wife gets her meds using the meds by mail program from the Detroit regional center. ChampVA covers in other countries, and as far as we’ve experienced so far, seems to be easier to deal with than the Foreign Medical Program. Just FYI.

  • Why was I charged $961 yesterday at the Spartanburg South Carolina County tax office when I wanted to apply for disabled veterans tag for my vehicle I showed my paper stating that I was 100% total and permanent service-connected disabled and I would just like to know why

  • The VA rated me at 80% and approve the unemployability I am receiving 100% payments per month over 3400$However I have not notified that I am I 100% can my spouse apply for DEA benefits?

  • If a vet risked his life as a vfw A vfw should get all benefits no questions asked. The vet Should be taken care of in all aspects.

  • We need info about Aid and assistance programs for Disabled Vet who is caretaker for wife, and can no longer provide needed assistance. Tks

  • Clarification: at 7:20 we state that DEA Benefits can be used for 35 weeksIn fact, it is 36 MONTHS, which we clear up later in the video. Sorry for the error!

  • My wife was blinded in air force 100 percent disabled. She passed away due to injury. I got 0 life insurace. Why? She was blind didnt know what she signed upon discharge. No advocate read her whats available etc. Death certificate says 100 percent connected death.

  • I have tried for years, my x passed away in 1993 we broke up for 20 years, got back together during the big snow, he asked me if we could get back together and get married I was so happy, we had a son together when he first got back from Vietnam, our son was 21when he passed,10 days after he ask me to marry him he passed away, He had agent orange, my son was exposed to the agent orange, I talk to the VA about it my son has a daughter,the guy from VA told me since he had a daughter that they would set up a trust fund in case she ever had problems because of being exposed to agent orange, every time I went to VA in Bessemer. There was a woman working there that was very very rude,she was very disrespectful towards me and my son,I was sent around and around in circles, everyone in that veterans office was very rude, one man told me that no one had put a claim in,said that there wasn’t anything on him, they all were disrespectful to both of us,so I still thought my son should have received his dad’s benefits since his father never received his benefits, His dad wasn’t doing well and he got treated worse than a dog after fighting for his country,, thanks and God bless you all for explaining everything to us all,have a blessed day

  • http://email.gofundme.com/ls/click?upn=McCelgEyxf19hZNOeSlreO6HA-2BSfGiGcMLzCiS-2ByOIkOLu9ajvhzY0Hx9mXf8B6yT3zoGC7DdXnNE0QWmIefGRJ7Evnw0Z7Zixo-2FMAVf0fEckxejFKwTG6r9F3Z5Fs2pgAwvAp778cKA-2BLWf5NRRaeznguvtvlf3gLCvGo1lDLtx3JL-2Flty8gCRIybiHxOOtuGAiTPVOBgMK-2FZq7tpMmFR-2B9p7B4vTofjeR9zNW9eRU-3DHGrP_x704-2BWbJBzwZX-2FqYky0C9v-2FQU4NxlqwvvUrvpo-2FaOaTrd3-2Bs4ynOlOD7H9RAfUTTDV4bSmHpv-2BLoB1HCadyN7NSTaHYd5Ql8Ni36xL-2FAkUffvtcvCOhaZ05woRQpKf5ola-2FPGjtIcQCQN8JcUK0bm3bP3EslMAakOrVhnH19Krua9aIWyMOFdxZ5QDD8cAPK149rxifwNTCunQXm9qd7gE5fG4DD2Gd-2FXPMiB2Da2hJdR-2FxKJ9N5JQOWlK3f-2Falwfm1OhoAO1xRYv8ZnC9bNeg-3D-3D

  • At your 7:20 ish mark, the male said that spouses receive 35 WEEKS of chapter 35, when in actuality, they receive 36 MONTHS of benefits. So, not only is your number wrong, but so is your length.

  • Make sure the Spouse has a DS LOGON Premium account; don’t wait to learn about DIC/Aid & Attendance. Ensure the VSR also knows to input the Dependent Before Submitting a claim. Call the EDU CALL CENTER 888-442-4551 instead of the HD when you don’t see your COE. Also the VA HANDBOOK can be found on the MHV website if you a have a Premium account. Reading IS FUNDAMENTAL.

  • Thank you for the info �� which I already know the majority of it! But I learned something new ������ but vets can also find information in the DAV book my husband is a Vietnam vet 100 % disabled because of the war and we went through the process and even if you get denied the first time reply back to back because by law they have to go back to when they denied you the first time and so that payment starts then when they first turn you down not on your second claim. and also not only is this video awesome because most vets get their information through word-of-mouth from each other it’s pass time for our government and society to start educating our vets on what they’re entitled to and the best way to go about getting it instead of waiting until they drop dead ������ and then their attitude is oh well guess we don’t have to pay them end of case SMH we owe them more than that because of their sacrifice for our freedom! This is why as a wife of a disabled vet I stay in front things I find out what’s going on what different program may sut my husband’s needs to make sure that he gets everything that he has coming to him because he serve he fought and he lost his Mobility because of that war!

  • Hey! There’s more to the VA than the Aid and Attendant Program! Watch and find out what other programs they have that will definitely be great for you!
    How Confident are You as a Family Caregiver? Take the Quiz
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