When You are Greater Than Tired Indications of Narcolepsy

 

What Is Narcolepsy?

Video taken from the channel: The Doctors


 

Here’s What Causes Narcolepsy

Video taken from the channel: Seeker


 

Treatment of Narcolepsy

Video taken from the channel: Harvard Medical School


 

Diagnosing Narcolepsy

Video taken from the channel: Harvard Medical School


 

Signs and Symptoms of Narcolepsy

Video taken from the channel: Neurology Live


 

10 Signs of Narcolepsy

Video taken from the channel: Stay Healthy


 

What is Narcolepsy?

Video taken from the channel: Harvard Medical School


The only sure way to diagnosis it is with a sleep study, but here are some signs: Excessive daytime sleepiness with an overwhelming urge to sleep during the day and several times a day. Sleep paralysis (unable to move or speak when falling asleep or waking up). Sleep attacks lasting about 10. The essential symptom is excessive daytime sleepiness (EDS), which means that you get overcome by an irresistible need to sleep during the day, and you can feel tired all the time.

EDS is usually the first symptom that people notice. Although narcolepsy is often thought of as an adult condition, symptoms most commonly start in childhood or adolescence. What Is Narcolepsy?

Narcolepsy is a chronic neurologic condition, which means that it involves nerve cells and chemicals in the brain. With narcolepsy, the brain is not able to control sleep-wake cycles normally. The symptoms can make it hard to. Take a Screener.

To find out whether you have narcolepsy, you should see a sleep specialist and undergo sleep laboratory testing. It’s helpful to provide the sleep specialist with as much information as you can about your symptoms. ➡️ Type 1 narcolepsy is more common and is associated with low levels of a brain chemical called hypocretin, which helps regulates a person’s sleep-wake cycles, according to the National Institute. Misdiagnosis is common, and many people go for 10 years or more after symptoms start before getting a diagnosis of narcolepsy. That’s why it’s important to be aware of the effects that narcolepsy can have on people’s lives and overall health.

Here are the 5 major symptoms of narcolepsy. These are the major symptoms, but you don’t need to experience them all to have narcolepsy. An uncontrollable urge to sleep, often at inappropriate times. Narcolepsy is more than just feeling ultra tired. It’s actually a chronic brain disorder.

People with narcolepsy have poorly regulated sleep-wake cycles, so they experience sudden and involuntary attacks of daytime sleepiness—whether for a few seconds or minutes—and often aren’t able to. Excessive Daytime Sleepiness (EDS) Excessive daytime sleepiness (EDS) is the essential symptom of narcolepsy, and it’s usually the first symptom that people notice. EDS means that you get overcome by an irresistible need to sleep during the day, and you can feel tired all the time. All people living with narcolepsy have excessive daytime sleepiness (EDS). People living with narcolepsy feel a constant and often uncontrollable desire to sleep throughout the day.

They may report feeling tired, fatigued, or that they have mental fog.

List of related literature:

The symptoms of narcolepsy are often classified as the narcolepsy tetrad (excessive daytime sleepiness, cataplexy, hypnagogic hallucination, and sleep paralysis) or pentad (narcolepsy tetrad plus insomnia).

“The Neuroscience of Sleep” by Robert Stickgold, Matthew P. Walker
from The Neuroscience of Sleep
by Robert Stickgold, Matthew P. Walker
Elsevier Science, 2010

The symptoms of narcolepsy include sudden loss of voluntary muscle tone and reflexes commonly triggered by emotion, a heavy meal, or stress (cataplexy), vivid hallucinations during sleep onset or when waking, and brief episodes of total paralysis at the beginning or end of sleep.

“Understanding Pharmacology E-Book: Essentials for Medication Safety” by M. Linda Workman, Linda A. LaCharity, Susan L. Kruchko
from Understanding Pharmacology E-Book: Essentials for Medication Safety
by M. Linda Workman, Linda A. LaCharity, Susan L. Kruchko
Elsevier Health Sciences, 2013

The cardinal symptoms of narcolepsy include excessive daytime sleepiness, hypnagogic hallucinations, sleep paralysis, and cataplexy, a sudden loss of muscle tone with strong emotions.

“Sleep Disorders Medicine: Basic Science, Technical Considerations and Clinical Aspects” by Sudhansu Chokroverty
from Sleep Disorders Medicine: Basic Science, Technical Considerations and Clinical Aspects
by Sudhansu Chokroverty
Springer New York, 2017

The symptoms of the narcolepsy tetrad include excessive daytime sleepiness, which is present in almost all patients, and the ancillary symptoms of cataplexy, sleep paralysis, and hypnagogic hallucinations (Fig. 15-2B).

“Netter's Neurology E-Book” by H. Royden Jones, Jr. Jr., Jayashri Srinivasan, Gregory J. Allam, Richard A. Baker, Lahey Clinic,Inc
from Netter’s Neurology E-Book
by H. Royden Jones, Jr. Jr., Jayashri Srinivasan, et. al.
Elsevier Health Sciences, 2011

This test is helpful for the diagnosis of narcolepsy, because two or more naps with REM sleep are diagnostic of narcolepsy unless the patient is suffering from another sleep disorder, sleep deprivation, or medication withdrawal.

“Textbook of Family Medicine E-Book” by Robert E. Rakel
from Textbook of Family Medicine E-Book
by Robert E. Rakel
Elsevier Health Sciences, 2007

In addition to daytime sleepiness, three other major symptoms frequently characterize narcolepsy: cataplexy, or the sudden loss of voluntary muscle tone; vivid hallucinations during sleep onset or on awakening; and brief episodes of total paralysis at the beginning or end of sleep.

“Fundamentals of Nursing E-Book: Active Learning for Collaborative Practice” by Barbara L Yoost, Lynne R Crawford
from Fundamentals of Nursing E-Book: Active Learning for Collaborative Practice
by Barbara L Yoost, Lynne R Crawford
Elsevier Health Sciences, 2019

Cataplexy is rarely the first symptom of narcolepsy, but it often develops within the first year of the onset of excessive daytime sleepiness.

“A Clinical Guide to Pediatric Sleep: Diagnosis and Management of Sleep Problems” by Jodi A. Mindell, Judith A. Owens
from A Clinical Guide to Pediatric Sleep: Diagnosis and Management of Sleep Problems
by Jodi A. Mindell, Judith A. Owens
Lippincott Williams & Wilkins, 2009

Narcolepsy type 1 is characterized by disabling daytime sleepiness and/or a transient loss of muscle tone triggered by emotions (cataplexy), optional symptoms such as disturbed night sleep, hallucinations and sleep paralysis, and hypocretin-1 deficiency.

“Narcolepsy: A Clinical Guide” by Meeta Goswami, Michael J. Thorpy, S.R. Pandi-Perumal
from Narcolepsy: A Clinical Guide
by Meeta Goswami, Michael J. Thorpy, S.R. Pandi-Perumal
Springer International Publishing, 2016

The symptoms most indicative of narcolepsy include cataplexy, or loss of muscle tone associated with heightened emotions, and excessive daytime sleepiness.

“The Insomnia Workbook: A Comprehensive Guide to Getting the Sleep You Need” by Stephanie A. Silberman, Charles M. Morin
from The Insomnia Workbook: A Comprehensive Guide to Getting the Sleep You Need
by Stephanie A. Silberman, Charles M. Morin
New Harbinger Publications, Incorporated, 2009

The classic tetrad of symptoms in narcolepsy includes (1) sleep attacks, (2) cataplexy (the sudden loss of muscle tone without change of consciousness), (3) sleep paralysis (inability to move after waking up), and (4) hypnagogic hallucinations (dreamlike imagery before falling asleep).

“Handbook of Developmental Psychopathology” by Michael Lewis, Karen D. Rudolph
from Handbook of Developmental Psychopathology
by Michael Lewis, Karen D. Rudolph
Springer US, 2014

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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61 comments

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  • A person is having symptoms like cataplexy, pin-point pupil lasting longer for about 4-5 hours… can it be Narcolepsy?? no history of substance use!

  • I fought diabetes for 20 years. I would literally “pass out” during meetings, driving, waiting in line at McDonald’s. I would wake up in my car not knowing where I was. I started loosing muscle control when I heard dry humor… I thought it was my blood sugar. Then I had a stoke at 54 and I knew I couldn’t fight no more. I hung up my car keys. It’s a long road to get diagnosed. You first enemy in this endeavor is yourself, then comes the medical system. While I believe the identifying criteria for narcolepsy is sound it took me many sleep study’s and two years to obtain the medical diag of narcolepsy 1. Very frustrating. Even worse my employment disability is ensured if I can no longer perform my duties… sounds proper but there twisting of things are criminal. Anyway… in my case thank God for Uncle Sam. I paid into the system for many years and they are a God send! If you have any weird symptoms don’t just try to forget about them, be proactive!

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • i was diagnosed with narcolepsy like 4 years ago but still have gotten no treatment bc my parents brush it off wish they realized how bad it is after watching this.

  • I found that no matter how much sleep I get, I react the same during the day, so I just get a small amount of sleep so I don’t just waste time because its not going to help anyways

  • I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don’t have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I’ll get sleep paralysis). Is this still be considered as narcolepsy? Help.

  • young Eliza if you ever come across this message or YouTube comment, as much as doctors try to tell you that you have a chronic disorder or chronic illness and they try to make you feel like there is no hope in your life or that you have this feeling of just lost hope in existence don’t let anyone tell you any of that remember these particular words and I’m going to put them in quotations. ” narcolepsy a chronic lifelong illness a rare sleeping disorder that causes suffering torment and sorrow throughout a person’s life however even with all this said you are extraordinary and unique as a person having this illness you are the only type of person in the world that can claim Supremacy over all others and it’s not Supremacy based on what you would think but by the suffering and torment you have to go through your whole entire life that allows you to use the word Supremacy in other words saying that you are unique and that your torment and suffering and sorrow is what allows you to claim Supremacy over anyone else in the world because no one else in the world can manage or live with narcolepsy if they were to experience it once or twice in their life they wouldn’t be able to handle it people with narcolepsy are uniquely special and don’t let anyone else tell you otherwise. Yes you will go through pain suffering torment sorrow English Rose you name it but it’s being able to go through all that and still continue to live on and try to take the best out of your gay today life is what makes you so unique because your average person that doesn’t have the sleeping disorder if they had just a small experience within this sleeping disorder they would not be able they will fail we are unique and I have a lot of respect for people that have this sleeping disorder but I can’t confirm nor deny that I have this for certain reasons and that is my curse in my life because I have to hide that I have narcolepsy unlike other people they don’t have to I have to hide that I have this.

  • i’m just waiting for one of them to just nod off mid-conversation, i would not be able to hold in a gut-busting laugh.
    Cataplexy? So you could be super angry then freeze?
    DAMN!! I’m easting and he pops the lid on some brains!
    MMMMgggaaahhhhHH!

  • I just wanted to know why I could fall asleep anywhere like through turbulence or even when fireworks are going off since it’s close to 4th of July and people are setting off fireworks

  • i have cataplexy with narcolepsy and everything you said, every little detail was what’s happening to me and i’m only 17 and i have been experiencing this since i was about 7-8 years old.☹️

  • My sister was talking to me and i was sleepy i dont even remember talking to her so when i woke up she told me she was talking to me and i was responding by mumbling and it was like i was in and out if conciousness a lot as if i were narcoleptic so here i am trying to find out how narcolepsy works…

  • This is not a disease. One slips into theta and downloads information from other dimensions. These are gifted, psychic individuals. Science is WAY behind on this. There is more to this world. Always listen to your intuition. Took over 50 med combinations. Gave up. Started having visions and dreams that would come true a day or two later. Humanity is not ready for this information.

  • Unlike this video, those of us with Narcolepsy & Cataplexy..we aren’t able to sleep for 6 or 8 hours.We have to take medication in order to sleep like that.

  • So… I’ve been having similar sleep problems for years, but I can’t afford appointments. Not too long ago though my friend suggested I look into narcolepsy, because I kept telling them about my sleep issues. I don’t know if I’m narcoleptic, I’m probably just always tired; but it’s a struggle to get work done, stay in a class I really love being in, and not get myself into accidents while driving by myself. Recently, I think I’m experiencing sleep paralysis too. I feel too weak to move when getting sleepy or waking up, even when I hear my alarm go off, and I end up sleeping past that, and missing meetings… it’s such a pain. I don’t know why so many people think sleep issues are funny… ��

  • I think I was misdiagnosed in 1993 with ADD. They put me on Dexidrine Spanule (amphetamines), 15 mgs pills, taken 3 times a day plus I drink coffee and I STILL operate slowly and I STILL can fall asleep after being up for the day after a couple of hours. Sometimes I feel like I’m sleep walking in public. It really sucks.

  • I have narcolepsy and another thing where certain sounds makes you mad and one of my trigger sounds were in this and I got mad and turned down the volume and threw my phone and now my screen is cracked I’m an idiot.

  • 90% of people in the comments thinking they have this: No, you don’t. You’re just tired and exhausted because you don’t get enough sleep at night and eat unhealthy.
    I have a friend who ACTUALLY has this condition. It is definitely not just “being tired and exhausted”. They literally fall asleep ANYWHERE all of a sudden.

  • Too much talking about nonsense of bulshit. Narcolepsy can be done under EvilDeepState Government Illuminati’s NewWorldOrder’s Mind Control Artificially by Psychotronic Weapons like MK-Ultra telepathy ; Blue Beam ; V2-K voice to skull and more other weapons of mass destruction of Evil Ocult Jesuits of Vatican, Khazarian Mafia’s illuminati’s NewWorldOrder’s Depopulation Programs’s Dynasties: Rothschild’s Dynasty; RoyalFamily Dynasty ;Morgan’s Dynasty; Rockefellers’s Dynasty.;
    Medicines may not work at all and if you drive narcoleptically then you become a victim of death or a victim of evil harvesting organs for transplants then medical mafia pray that you die without any witness around
    you.
    I wish that the good hearty extraterrestrials to be sent on Earth by the Great God to rule out and kill the bad evil demonized humans who want to kill all 95% of us. We are punished here on Earth by our greedy Evil DeepState’s hitleristic government killer who never want any peace on Earth.

  • Drinking coffee or taking other stimulants will not work if you ever went overnight sleeping in the Hospitals. During time sleeping you get dead sleeping by weapons feeling nothing if they cut your body in pieces,but they only install micro-chips or nano-chips into your body silently secretly in you and using vaccines with ingredients of Evil Elites’s illuminati’s NewWorldOrder into your blood so your body serves like an Antenna of Evil Micro-electronic Towers & nowadays Evil Nano-electronic Satelites beaming frequency nano-energy upon your brain to send you to sleep but if you are young and drive a care like that you may have a fatal accident then taking you to emergency quickly to harvest your body organs with evil intention to die without any witness around
    then telling your wife, parents, friends that you died during emergency’s hours. If you suspect something telepathically the doctors will tell you that you got a mental illness labelling you with their inventing mental illnesses to control your mind.

  • I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don’t have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I’ll get sleep paralysis). Is this still be considered as narcolepsy? Help.

  • I’ve heard that Modafinil is very effective for Narcolepsy. I’ve got an impression that it’s one of the most decorated medications ever.

  • Bruh I used to do this when my mom is talkin to her friends at restaurants during job meetings. Like I remember I was at some really nice steak place and it was really calming. The worst situation to be in with this and I fell asleep on my food without knowing. And now on i sit with my mom during her business meets there.

  • there are degrees of narcolepsy. I’ve had it since i was kid and have always been able to get good sleep. for me sleep with narcolepsy is amazing.

  • I don’t have any experience with cataplexy but I’ve had issues with falling asleep randomly since kindergarten. I have dozed off while driving, while at work, while standing in a line, and my mom used to joke that I had “carcolepsy” because I always fall asleep while riding in a car or on an airplane. The drowsiness is so intense, there’s no way to fight it off. Especially in the afternoon or evening. I also frequently get sleep paralysis which, not until recently, I realized isn’t as common for people as I thought because I’ve always had it. I just wish there was an easy way to get some sort of diagnostic test.

  • I belong to the Lucky ones:
    2004 (18 yo) I was diagnosed with Narcolepsy. I had ALL symptoms (the scariest Part was mit the kataplexy-attacks, it was my Daily hypnogogic hallucinations at nights). I lost my apprenticeship in Information Systems and couldn’t accept an semi-professional offer for a soccer career. I got my kataplexy attacks in my exams, while laughing, when I was upset and excited. And so on. “A lifelong desease” I was told.
    Now: 2020 I am symptom-free!!!!!! Why? At the end if the 90s and early 2000s I had was vaccined against influenza. This caused “Narcolepsy-symptoms” in 100.000 Vaccination-cases. It was a turkish Professor Gazi Yasargil (Holding an award for neuroligician of the century) and I habe met him on vacation in turkey. After a 15 minute Talk about my case he insisted that I have the symptoms but not the Disease itself!!! Diagnosing me without any machine, Instruments or similar things. I listened to his advice and became Symptom free, as he predicted, with 28 years old. Now I am 35.
    I lost 10 years of my life because of this symptoms, I wish all the sufferers the best and the most important advice I was told by the prof. and I want to share with you was:
    Get your closest together, explain it openly, don’t resign from social activities, do your best, enjoy life and make fun of yourself. It was the best advice.

  • I don’t know why this is hard to diagnosis. The symtpoms and the way it looks is kind of out there imo. And that’s coming from a narcoleptic.

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • I think caffeine consumption may lead to inactivity of the hypercretin cells as their job is done by the caffeine which makes them obsolete.thus our brains In a way starts getting affected by this daily habit. I myself consume a lot of caffeine (by drinking tea every morning) and I too have a similar problem of sleep attacks.

  • In yoga there are some exercise like kapalbhati, anlom vilom and humming that can help reproduce hyporcretin cells. one of my friend has this problem. He cured this with yoga.You just have to practice daily and increase slowly. Now I am applying it to my father.He is improving slowly. My father had this serious problem for a long time. One night he fell off from standing position on his hands. He told this thing after few years when we start noticing him.he used to sleep in sitting position. But now he is improving. I hop he will be fine.

  • WOW, 10 years?¿? i think i have narcolepsy. since i was very young. i have cataplexy during the day and that vivid dreams during the day haunting i maybe have had some hallucination about noises, like calling my name and nobody did and there’s no one. What can i do?

  • Was just told no you don’t have narcolepsy, just lose 10 pounds and your symptoms will go away! What!??? This coming from a doc who was sure I had narcolepsy with cataplexy but the sleep study didn’t definitively show that. What should I do, second opinion? Im not convinced apnea is my only problem and explains all my symptoms.

  • I lowkey feel like I have this, I work in a office and I’m checking paperwork and writing and all of a sudden I start to fall asleep and my hand goes numb and my body tips forward then I snapped out of my sleepyness like I wasn’t just falling asleep.
    I’m always so damn tired and I sleep a full night and this morning I woke up like if I was never asleep, just got up.
    I always feel tired, I have to go to the restroom and take a nap.

  • I’m so terrified of getting sleep paralysis and it’s very hard for me to sleep idk why sleeping in the day gets rid of my Paranoia but it does and it messes up my life..

  • WTF!? Get the flu and get narcolepsy?! Stop the world I’m getting off. @Seeker, hey you know in order to find out what this doctor did find out with Fritz he had to kill Fritz and rip out its brain right?

  • I have narcolepsy with cataplexy, and this is by far the best explanation of narcolepsy I’ve seen to date. Raising Narcolepsy & Cataplexy Awareness, Thank You!

  • i have this issue where i sleep and I’m very tired then usual so i will sleep for 5 minutes only, and I’ll dream scary stuff and I’ll wake up quick and still know what happened during that dream. I also have anixety and depression and always stressed out.

  • Could you imagine living your whole life just to die and your brain show up in a video for a split second before it’s replaced by a simulation?

  • Ya my sleep study I was surprised how fast I fell asleep as well. Turns out I have severe sleep apnea. Watching this video I am not sure what the difference is between sleep Apnea and Narcolepsy.

  • So, I’m here because I’m afraid I might have narcolepsy. Almost every question the doctor asked I said yes to myself. I sleep ALL the damn time. I literally have to FORCE myself out of bed. I’ve slept for 18 hours one time and still woke up exhausted and wanting to sleep more. I have moments where I’m in my room watching tv, painting or eating and my head will just drop and I go limp & then feel myself going into a deep sleep, & I’d have to force myself to wake back up because I still have things to do that day. I’m ALWAYS tired. I can probably fall asleep anywhere if I could. I can also be in the middle of a conversation and if someone is talking to me, I check out & space out and didn’t hear a WORD the person said. My mom always would get angry at me because she said I wasn’t listening to her. I only had one experience with sleep paralysis. That was the scariest moment of my life to be honest. And yes, I do see things. Orbs, and shadows. I’m worried but it’s the middle of the pandemic, & there’s no way in hell I’m going to a doctor during this crazy time. I’ll have to wait until all this passes before I can get properly diagnosed.

  • I had all the symptoms except, but “waking up randomly at night” is kinda controllable. It takes about 2 hours until I get up, just to say “sleep you idiot” and go back to sleep. Guess I’m narcoleptic.

    Sleep paralysis makes me so uncomfortable and nervous, I can’t move my body despite being awake, it’s like your brain doesn’t works anymore or isn’t responding to you. What I try to do is go back to sleep, bit my tongue or move some fingers to make some noice, but most of the times I just wake up randomly in it.

    The worst part is that some times I have difficulties breathing during sleep (pretty rare, but it can happen to me), and I got breathing difficulty with sleep paralysis. It was the worst feeling ever. You can’t breathe properly, and you can’t do anything about it because you’re paralyzed. I hate this thing.

  • There is too much misinformation about narcolepsy, because the doctors keep passing on the same old discriptions of symptoms they’re too rigid, because I’ve met many people like myself, who have cataplexy for much longer than one minute, and people who also have myoclonic jerking before they have an attack or when they try to force themselves out of a cataplexy attack too quickly.

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • I feel like I have narcolepsy, I’m sleepy all the time and then I gotta drink lots of caffeine and take sleeping pills to offset the effects of the caffeine and it’s a horrible cycle ��

  • I experience all of these symptoms. My dr doesn’t listen he just said I’m psychotic as I said I hallucinate at night. I can’t cope anymore I’m so tired all the time I nod off walking

  • There’s no way I don’t have this some of the symptoms I had more as a child like sleep paralysis and halusantion nowadays I’m just constantly tired and this helped a lot on knowing what I got I’m gonna see a doctor very soon to help deal with it

  • For anyone else who stumbles upon this, my cataplexy is induced by nostalgia rather than just “haha a joke” or angry feelings. This narrow view of the trigger delayed my diagnosis for a while. Any emotion, even those others may find mundane, can be a trigger.

    For me, if I have a distant memory I haven’t thought of in a while, something from childhood that is neither a happy or sad memory, just one that makes you go “Oh yeah, that thing/place”, My vision blurs slightly, things go a little dark, and my peripheral vision collapses and everything looks like I’m looking at a picture (hard to explain, but imagine looking at a picture of a tree and leaning to the side to look behind the tree in the picture).

    On top of that, a sorta pull in my chest, or more like my center of gravity, and one or both of my knees buckle. The knees just give out, no sensation, no tingling, no numbness; they just turn off for a split second, like a gap in the signal to the brain of just dead air.

    Those are my symptoms that only started up at about 26-27 years old. Before that, since 2006 I had excessive daytime sleepiness. My doctor at the time thought it was mononucleosis. Only in the last couple years did I get an Epstein-Barr test and find out I never had it. The only explanation now is that narcolepsy started when I was 13 or so.

    I’ve been on Xyrem for a couple years now. It works well, but the cost is astronomical. I’m on a very low dose, but it does stop the cataplexy. Nuvigil was like sugar pills. Vyvanse is good until you get used to it, then you have all the jitters with none of the wakefulness.

    Hope this helps.

  • I was diagnosed with narcolepsy at age 7 and would lump if listening to a funny joke I don’t halustinate but i dream a lot. I don’t even have to be sleep five minutes and I start dreaming ; the strangest and weirdest dreams

  • It’s actually an autoimmune disorder that affects your neurological system. Which I’m hoping means there’ll be more to be done for my narcolepsy because I’m tired of having it.

  • CBN!!! Esp patches or sublingual from that kick in fast before sleep

    Not CBD, not THC (isn’t THC great tho ☺️)

    CBN!!!!���������� Please try

    Wishing EVERYONE on this comment thread a wonderful relaxation where everything relaxes just right
    Not too much, not too little

    You will drift into a sleep that’s not too deep, not too light

    Your breathing will be maintained perfectly there is no need to be afraid of any nightmares because they will not be there later and even those bad dreams serve a purpose to remind you of how good the happy times can be

    This rest period is to serve you with optimal healing and reconfiguration
    As you close your eyes with every inhale your whole body is realigning, rebalancing, and restoring health

    You can get through this
    How do I know?
    You’ve made it this far and people do look up to you wether they admit it or not

    Let them think of you what they will
    They can call you lazy (you know your trying your hardest )
    They can call you dumb ( you know your frequency is just as good if not better than theirs)
    They can call you sick (but you know what your body tells you to do, and you are in a healing state every time you sleep)
    YOU HAVE A SPACE TO FILL ON THIS EARTH HERE WITH US

    sending healing vibes to everyone here much love

  • I was diagnosed with narcolepsy at the end of last year. It gets worse every week and school is hell because of it. Medication is really helpful though and I’m working hard to stay positive!!

  • i was always falling asleep in classes and i can’t drive for a long period of time cause i sleep too….reading is hard too….everything that needs focus or a point of interest with your sight…well u can’t control it, youll fall asleep….sleeping 12 hours a night is very easy for us hehe…and i got the sleep paralysis often, but maybe it could help, i do less sleep paralysis when i ate less sugar before to sleep, and i try to not do naps in the afternoon, cause the paralysis will appear then

  • For many years doctors thought I had absent seizures, taking the medication for it only made my narcolepsy worse. Here recently they sent me to a sleep specialist that concluded I had narcolepsy. It sucks having this and honestly I wouldn’t wish it to my worst enemy… it’s just to much to deal with ;-;

  • I’ve collapsed from cataplexy more times than I can count. I once fell asleep in an empty bathtub. But the worst symptom I have is brain fog, which is where my brain feels like Dial-up internet. I get sleepy, irritable, my speech gets slurred, and my entire body feels like it’s underwater. I’m so glad that there’s finally awareness to this awful disease.

  • In my experience of (admittedly low-grade) narcolepsy, Modafinil has it licked. 200mg in the morning, and then another 100mg before lunch. Your body doesn’t absorb it so well if you’ve eaten, so take the additional dose before lunch!

  • Looking to know how to work it out. Sleep paralysis, hypnagogic hallucinations, insomnia, narcolepsy. Fear of sleep death. Extreme sleepiness but constant ability to keep 3rd winds

  • It’s up to you to get your sleep cycle straightened up and working right. Find out what you’re doing wrong and correct it. When I was under state care, we had some seizure patients but I wonder if they were really seizures after all. In the other state care, you didn’t go down and less you were allowed. They kept you up and going regardless of your condition. We all lived because laziness was never tolerated. When your sleep cycle happens to be messed up, too bad for you if you were at the Ohio Center in the 80s. You were only allowed to go to bed at a certain time and you had to be up at a certain time. If you didn’t sleep well, too bad for you! At least you slept when you were supposed to. One time I was allowed to lay down on my bed and I unknowingly slipped off to sleep. I was sleeping real good when suddenly out of the blue, a staff member grab me by the hand and dragged me out of bed. I didn’t know the unit was actually lining up to go to the cafeteria. No one was allowed to be alone in the unit. I was still pretty groggy as the staff member was roasting me out of the unit and toward the cafeteria. I was just waking up when I finally reached the cafeteria and was seated with my meal. It was the last time this ever happened, it never happened again

  • Thats crazy. I would always gets these insanely vivid and unforgettable dreams whenever i got the flu. I even woke up and got out of bed one time still believing i was in a dream. I guess this kinda explains why.

  • Even when it’s involved with your adhd people choose to attribute it to depression. They always want to get you on antidepressants rather than looking into things deeper and trying to figure out what’s really going on.

  • I have this… my sleep paralysis isnt scary and i am aware of my dreams and i control them sometes my own dreams wake me up rapidly sometimes before falling asleep i will hear voices of a malle and female talking to eachother random words lol

  • I have Narcolepsy and ADHD. I am being treated for it antidepressant and ADHD medications as well as some sleeping pills. I hated living like that tired n sleepy all the time. But I fought it so hard I did not want it to define or limit my life. I just got my bs in microbiology it took a lot out of me but I did it and I’m planning to got all the way to my phd.