When You are Greater Than Tired Indications of Narcolepsy


What Is Narcolepsy?

Video taken from the channel: The Doctors


Here’s What Causes Narcolepsy

Video taken from the channel: Seeker


Treatment of Narcolepsy

Video taken from the channel: Harvard Medical School


Diagnosing Narcolepsy

Video taken from the channel: Harvard Medical School


Signs and Symptoms of Narcolepsy

Video taken from the channel: Neurology Live


10 Signs of Narcolepsy

Video taken from the channel: Stay Healthy


What is Narcolepsy?

Video taken from the channel: Harvard Medical School

The only sure way to diagnosis it is with a sleep study, but here are some signs: Excessive daytime sleepiness with an overwhelming urge to sleep during the day and several times a day. Sleep paralysis (unable to move or speak when falling asleep or waking up). Sleep attacks lasting about 10. The essential symptom is excessive daytime sleepiness (EDS), which means that you get overcome by an irresistible need to sleep during the day, and you can feel tired all the time.

EDS is usually the first symptom that people notice. Although narcolepsy is often thought of as an adult condition, symptoms most commonly start in childhood or adolescence. What Is Narcolepsy?

Narcolepsy is a chronic neurologic condition, which means that it involves nerve cells and chemicals in the brain. With narcolepsy, the brain is not able to control sleep-wake cycles normally. The symptoms can make it hard to. Take a Screener.

To find out whether you have narcolepsy, you should see a sleep specialist and undergo sleep laboratory testing. It’s helpful to provide the sleep specialist with as much information as you can about your symptoms. ➡️ Type 1 narcolepsy is more common and is associated with low levels of a brain chemical called hypocretin, which helps regulates a person’s sleep-wake cycles, according to the National Institute. Misdiagnosis is common, and many people go for 10 years or more after symptoms start before getting a diagnosis of narcolepsy. That’s why it’s important to be aware of the effects that narcolepsy can have on people’s lives and overall health.

Here are the 5 major symptoms of narcolepsy. These are the major symptoms, but you don’t need to experience them all to have narcolepsy. An uncontrollable urge to sleep, often at inappropriate times. Narcolepsy is more than just feeling ultra tired. It’s actually a chronic brain disorder.

People with narcolepsy have poorly regulated sleep-wake cycles, so they experience sudden and involuntary attacks of daytime sleepiness—whether for a few seconds or minutes—and often aren’t able to. Excessive Daytime Sleepiness (EDS) Excessive daytime sleepiness (EDS) is the essential symptom of narcolepsy, and it’s usually the first symptom that people notice. EDS means that you get overcome by an irresistible need to sleep during the day, and you can feel tired all the time. All people living with narcolepsy have excessive daytime sleepiness (EDS). People living with narcolepsy feel a constant and often uncontrollable desire to sleep throughout the day.

They may report feeling tired, fatigued, or that they have mental fog.

List of related literature:

The symptoms of narcolepsy are often classified as the narcolepsy tetrad (excessive daytime sleepiness, cataplexy, hypnagogic hallucination, and sleep paralysis) or pentad (narcolepsy tetrad plus insomnia).

“The Neuroscience of Sleep” by Robert Stickgold, Matthew P. Walker
from The Neuroscience of Sleep
by Robert Stickgold, Matthew P. Walker
Elsevier Science, 2010

The symptoms of narcolepsy include sudden loss of voluntary muscle tone and reflexes commonly triggered by emotion, a heavy meal, or stress (cataplexy), vivid hallucinations during sleep onset or when waking, and brief episodes of total paralysis at the beginning or end of sleep.

“Understanding Pharmacology E-Book: Essentials for Medication Safety” by M. Linda Workman, Linda A. LaCharity, Susan L. Kruchko
from Understanding Pharmacology E-Book: Essentials for Medication Safety
by M. Linda Workman, Linda A. LaCharity, Susan L. Kruchko
Elsevier Health Sciences, 2013

The cardinal symptoms of narcolepsy include excessive daytime sleepiness, hypnagogic hallucinations, sleep paralysis, and cataplexy, a sudden loss of muscle tone with strong emotions.

“Sleep Disorders Medicine: Basic Science, Technical Considerations and Clinical Aspects” by Sudhansu Chokroverty
from Sleep Disorders Medicine: Basic Science, Technical Considerations and Clinical Aspects
by Sudhansu Chokroverty
Springer New York, 2017

The symptoms of the narcolepsy tetrad include excessive daytime sleepiness, which is present in almost all patients, and the ancillary symptoms of cataplexy, sleep paralysis, and hypnagogic hallucinations (Fig. 15-2B).

“Netter's Neurology E-Book” by H. Royden Jones, Jr. Jr., Jayashri Srinivasan, Gregory J. Allam, Richard A. Baker, Lahey Clinic,Inc
from Netter’s Neurology E-Book
by H. Royden Jones, Jr. Jr., Jayashri Srinivasan, et. al.
Elsevier Health Sciences, 2011

This test is helpful for the diagnosis of narcolepsy, because two or more naps with REM sleep are diagnostic of narcolepsy unless the patient is suffering from another sleep disorder, sleep deprivation, or medication withdrawal.

“Textbook of Family Medicine E-Book” by Robert E. Rakel
from Textbook of Family Medicine E-Book
by Robert E. Rakel
Elsevier Health Sciences, 2007

In addition to daytime sleepiness, three other major symptoms frequently characterize narcolepsy: cataplexy, or the sudden loss of voluntary muscle tone; vivid hallucinations during sleep onset or on awakening; and brief episodes of total paralysis at the beginning or end of sleep.

“Fundamentals of Nursing E-Book: Active Learning for Collaborative Practice” by Barbara L Yoost, Lynne R Crawford
from Fundamentals of Nursing E-Book: Active Learning for Collaborative Practice
by Barbara L Yoost, Lynne R Crawford
Elsevier Health Sciences, 2019

Cataplexy is rarely the first symptom of narcolepsy, but it often develops within the first year of the onset of excessive daytime sleepiness.

“A Clinical Guide to Pediatric Sleep: Diagnosis and Management of Sleep Problems” by Jodi A. Mindell, Judith A. Owens
from A Clinical Guide to Pediatric Sleep: Diagnosis and Management of Sleep Problems
by Jodi A. Mindell, Judith A. Owens
Lippincott Williams & Wilkins, 2009

Narcolepsy type 1 is characterized by disabling daytime sleepiness and/or a transient loss of muscle tone triggered by emotions (cataplexy), optional symptoms such as disturbed night sleep, hallucinations and sleep paralysis, and hypocretin-1 deficiency.

“Narcolepsy: A Clinical Guide” by Meeta Goswami, Michael J. Thorpy, S.R. Pandi-Perumal
from Narcolepsy: A Clinical Guide
by Meeta Goswami, Michael J. Thorpy, S.R. Pandi-Perumal
Springer International Publishing, 2016

The symptoms most indicative of narcolepsy include cataplexy, or loss of muscle tone associated with heightened emotions, and excessive daytime sleepiness.

“The Insomnia Workbook: A Comprehensive Guide to Getting the Sleep You Need” by Stephanie A. Silberman, Charles M. Morin
from The Insomnia Workbook: A Comprehensive Guide to Getting the Sleep You Need
by Stephanie A. Silberman, Charles M. Morin
New Harbinger Publications, Incorporated, 2009

The classic tetrad of symptoms in narcolepsy includes (1) sleep attacks, (2) cataplexy (the sudden loss of muscle tone without change of consciousness), (3) sleep paralysis (inability to move after waking up), and (4) hypnagogic hallucinations (dreamlike imagery before falling asleep).

“Handbook of Developmental Psychopathology” by Michael Lewis, Karen D. Rudolph
from Handbook of Developmental Psychopathology
by Michael Lewis, Karen D. Rudolph
Springer US, 2014

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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  • A person is having symptoms like cataplexy, pin-point pupil lasting longer for about 4-5 hours… can it be Narcolepsy?? no history of substance use!

  • I fought diabetes for 20 years. I would literally “pass out” during meetings, driving, waiting in line at McDonald’s. I would wake up in my car not knowing where I was. I started loosing muscle control when I heard dry humor… I thought it was my blood sugar. Then I had a stoke at 54 and I knew I couldn’t fight no more. I hung up my car keys. It’s a long road to get diagnosed. You first enemy in this endeavor is yourself, then comes the medical system. While I believe the identifying criteria for narcolepsy is sound it took me many sleep study’s and two years to obtain the medical diag of narcolepsy 1. Very frustrating. Even worse my employment disability is ensured if I can no longer perform my duties… sounds proper but there twisting of things are criminal. Anyway… in my case thank God for Uncle Sam. I paid into the system for many years and they are a God send! If you have any weird symptoms don’t just try to forget about them, be proactive!

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • i was diagnosed with narcolepsy like 4 years ago but still have gotten no treatment bc my parents brush it off wish they realized how bad it is after watching this.

  • I found that no matter how much sleep I get, I react the same during the day, so I just get a small amount of sleep so I don’t just waste time because its not going to help anyways

  • I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don’t have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I’ll get sleep paralysis). Is this still be considered as narcolepsy? Help.

  • young Eliza if you ever come across this message or YouTube comment, as much as doctors try to tell you that you have a chronic disorder or chronic illness and they try to make you feel like there is no hope in your life or that you have this feeling of just lost hope in existence don’t let anyone tell you any of that remember these particular words and I’m going to put them in quotations. ” narcolepsy a chronic lifelong illness a rare sleeping disorder that causes suffering torment and sorrow throughout a person’s life however even with all this said you are extraordinary and unique as a person having this illness you are the only type of person in the world that can claim Supremacy over all others and it’s not Supremacy based on what you would think but by the suffering and torment you have to go through your whole entire life that allows you to use the word Supremacy in other words saying that you are unique and that your torment and suffering and sorrow is what allows you to claim Supremacy over anyone else in the world because no one else in the world can manage or live with narcolepsy if they were to experience it once or twice in their life they wouldn’t be able to handle it people with narcolepsy are uniquely special and don’t let anyone else tell you otherwise. Yes you will go through pain suffering torment sorrow English Rose you name it but it’s being able to go through all that and still continue to live on and try to take the best out of your gay today life is what makes you so unique because your average person that doesn’t have the sleeping disorder if they had just a small experience within this sleeping disorder they would not be able they will fail we are unique and I have a lot of respect for people that have this sleeping disorder but I can’t confirm nor deny that I have this for certain reasons and that is my curse in my life because I have to hide that I have narcolepsy unlike other people they don’t have to I have to hide that I have this.

  • i’m just waiting for one of them to just nod off mid-conversation, i would not be able to hold in a gut-busting laugh.
    Cataplexy? So you could be super angry then freeze?
    DAMN!! I’m easting and he pops the lid on some brains!

  • I just wanted to know why I could fall asleep anywhere like through turbulence or even when fireworks are going off since it’s close to 4th of July and people are setting off fireworks

  • i have cataplexy with narcolepsy and everything you said, every little detail was what’s happening to me and i’m only 17 and i have been experiencing this since i was about 7-8 years old.☹️

  • My sister was talking to me and i was sleepy i dont even remember talking to her so when i woke up she told me she was talking to me and i was responding by mumbling and it was like i was in and out if conciousness a lot as if i were narcoleptic so here i am trying to find out how narcolepsy works…

  • This is not a disease. One slips into theta and downloads information from other dimensions. These are gifted, psychic individuals. Science is WAY behind on this. There is more to this world. Always listen to your intuition. Took over 50 med combinations. Gave up. Started having visions and dreams that would come true a day or two later. Humanity is not ready for this information.

  • Unlike this video, those of us with Narcolepsy & Cataplexy..we aren’t able to sleep for 6 or 8 hours.We have to take medication in order to sleep like that.

  • So… I’ve been having similar sleep problems for years, but I can’t afford appointments. Not too long ago though my friend suggested I look into narcolepsy, because I kept telling them about my sleep issues. I don’t know if I’m narcoleptic, I’m probably just always tired; but it’s a struggle to get work done, stay in a class I really love being in, and not get myself into accidents while driving by myself. Recently, I think I’m experiencing sleep paralysis too. I feel too weak to move when getting sleepy or waking up, even when I hear my alarm go off, and I end up sleeping past that, and missing meetings… it’s such a pain. I don’t know why so many people think sleep issues are funny… ��

  • I think I was misdiagnosed in 1993 with ADD. They put me on Dexidrine Spanule (amphetamines), 15 mgs pills, taken 3 times a day plus I drink coffee and I STILL operate slowly and I STILL can fall asleep after being up for the day after a couple of hours. Sometimes I feel like I’m sleep walking in public. It really sucks.

  • I have narcolepsy and another thing where certain sounds makes you mad and one of my trigger sounds were in this and I got mad and turned down the volume and threw my phone and now my screen is cracked I’m an idiot.

  • 90% of people in the comments thinking they have this: No, you don’t. You’re just tired and exhausted because you don’t get enough sleep at night and eat unhealthy.
    I have a friend who ACTUALLY has this condition. It is definitely not just “being tired and exhausted”. They literally fall asleep ANYWHERE all of a sudden.

  • Too much talking about nonsense of bulshit. Narcolepsy can be done under EvilDeepState Government Illuminati’s NewWorldOrder’s Mind Control Artificially by Psychotronic Weapons like MK-Ultra telepathy ; Blue Beam ; V2-K voice to skull and more other weapons of mass destruction of Evil Ocult Jesuits of Vatican, Khazarian Mafia’s illuminati’s NewWorldOrder’s Depopulation Programs’s Dynasties: Rothschild’s Dynasty; RoyalFamily Dynasty ;Morgan’s Dynasty; Rockefellers’s Dynasty.;
    Medicines may not work at all and if you drive narcoleptically then you become a victim of death or a victim of evil harvesting organs for transplants then medical mafia pray that you die without any witness around
    I wish that the good hearty extraterrestrials to be sent on Earth by the Great God to rule out and kill the bad evil demonized humans who want to kill all 95% of us. We are punished here on Earth by our greedy Evil DeepState’s hitleristic government killer who never want any peace on Earth.

  • Drinking coffee or taking other stimulants will not work if you ever went overnight sleeping in the Hospitals. During time sleeping you get dead sleeping by weapons feeling nothing if they cut your body in pieces,but they only install micro-chips or nano-chips into your body silently secretly in you and using vaccines with ingredients of Evil Elites’s illuminati’s NewWorldOrder into your blood so your body serves like an Antenna of Evil Micro-electronic Towers & nowadays Evil Nano-electronic Satelites beaming frequency nano-energy upon your brain to send you to sleep but if you are young and drive a care like that you may have a fatal accident then taking you to emergency quickly to harvest your body organs with evil intention to die without any witness around
    then telling your wife, parents, friends that you died during emergency’s hours. If you suspect something telepathically the doctors will tell you that you got a mental illness labelling you with their inventing mental illnesses to control your mind.

  • I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don’t have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I’ll get sleep paralysis). Is this still be considered as narcolepsy? Help.

  • I’ve heard that Modafinil is very effective for Narcolepsy. I’ve got an impression that it’s one of the most decorated medications ever.

  • Bruh I used to do this when my mom is talkin to her friends at restaurants during job meetings. Like I remember I was at some really nice steak place and it was really calming. The worst situation to be in with this and I fell asleep on my food without knowing. And now on i sit with my mom during her business meets there.

  • there are degrees of narcolepsy. I’ve had it since i was kid and have always been able to get good sleep. for me sleep with narcolepsy is amazing.

  • I don’t have any experience with cataplexy but I’ve had issues with falling asleep randomly since kindergarten. I have dozed off while driving, while at work, while standing in a line, and my mom used to joke that I had “carcolepsy” because I always fall asleep while riding in a car or on an airplane. The drowsiness is so intense, there’s no way to fight it off. Especially in the afternoon or evening. I also frequently get sleep paralysis which, not until recently, I realized isn’t as common for people as I thought because I’ve always had it. I just wish there was an easy way to get some sort of diagnostic test.

  • I belong to the Lucky ones:
    2004 (18 yo) I was diagnosed with Narcolepsy. I had ALL symptoms (the scariest Part was mit the kataplexy-attacks, it was my Daily hypnogogic hallucinations at nights). I lost my apprenticeship in Information Systems and couldn’t accept an semi-professional offer for a soccer career. I got my kataplexy attacks in my exams, while laughing, when I was upset and excited. And so on. “A lifelong desease” I was told.
    Now: 2020 I am symptom-free!!!!!! Why? At the end if the 90s and early 2000s I had was vaccined against influenza. This caused “Narcolepsy-symptoms” in 100.000 Vaccination-cases. It was a turkish Professor Gazi Yasargil (Holding an award for neuroligician of the century) and I habe met him on vacation in turkey. After a 15 minute Talk about my case he insisted that I have the symptoms but not the Disease itself!!! Diagnosing me without any machine, Instruments or similar things. I listened to his advice and became Symptom free, as he predicted, with 28 years old. Now I am 35.
    I lost 10 years of my life because of this symptoms, I wish all the sufferers the best and the most important advice I was told by the prof. and I want to share with you was:
    Get your closest together, explain it openly, don’t resign from social activities, do your best, enjoy life and make fun of yourself. It was the best advice.

  • I don’t know why this is hard to diagnosis. The symtpoms and the way it looks is kind of out there imo. And that’s coming from a narcoleptic.

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • I think caffeine consumption may lead to inactivity of the hypercretin cells as their job is done by the caffeine which makes them obsolete.thus our brains In a way starts getting affected by this daily habit. I myself consume a lot of caffeine (by drinking tea every morning) and I too have a similar problem of sleep attacks.

  • In yoga there are some exercise like kapalbhati, anlom vilom and humming that can help reproduce hyporcretin cells. one of my friend has this problem. He cured this with yoga.You just have to practice daily and increase slowly. Now I am applying it to my father.He is improving slowly. My father had this serious problem for a long time. One night he fell off from standing position on his hands. He told this thing after few years when we start noticing him.he used to sleep in sitting position. But now he is improving. I hop he will be fine.

  • WOW, 10 years?¿? i think i have narcolepsy. since i was very young. i have cataplexy during the day and that vivid dreams during the day haunting i maybe have had some hallucination about noises, like calling my name and nobody did and there’s no one. What can i do?

  • Was just told no you don’t have narcolepsy, just lose 10 pounds and your symptoms will go away! What!??? This coming from a doc who was sure I had narcolepsy with cataplexy but the sleep study didn’t definitively show that. What should I do, second opinion? Im not convinced apnea is my only problem and explains all my symptoms.

  • I lowkey feel like I have this, I work in a office and I’m checking paperwork and writing and all of a sudden I start to fall asleep and my hand goes numb and my body tips forward then I snapped out of my sleepyness like I wasn’t just falling asleep.
    I’m always so damn tired and I sleep a full night and this morning I woke up like if I was never asleep, just got up.
    I always feel tired, I have to go to the restroom and take a nap.

  • I’m so terrified of getting sleep paralysis and it’s very hard for me to sleep idk why sleeping in the day gets rid of my Paranoia but it does and it messes up my life..

  • WTF!? Get the flu and get narcolepsy?! Stop the world I’m getting off. @Seeker, hey you know in order to find out what this doctor did find out with Fritz he had to kill Fritz and rip out its brain right?

  • I have narcolepsy with cataplexy, and this is by far the best explanation of narcolepsy I’ve seen to date. Raising Narcolepsy & Cataplexy Awareness, Thank You!

  • i have this issue where i sleep and I’m very tired then usual so i will sleep for 5 minutes only, and I’ll dream scary stuff and I’ll wake up quick and still know what happened during that dream. I also have anixety and depression and always stressed out.

  • Could you imagine living your whole life just to die and your brain show up in a video for a split second before it’s replaced by a simulation?

  • Ya my sleep study I was surprised how fast I fell asleep as well. Turns out I have severe sleep apnea. Watching this video I am not sure what the difference is between sleep Apnea and Narcolepsy.

  • So, I’m here because I’m afraid I might have narcolepsy. Almost every question the doctor asked I said yes to myself. I sleep ALL the damn time. I literally have to FORCE myself out of bed. I’ve slept for 18 hours one time and still woke up exhausted and wanting to sleep more. I have moments where I’m in my room watching tv, painting or eating and my head will just drop and I go limp & then feel myself going into a deep sleep, & I’d have to force myself to wake back up because I still have things to do that day. I’m ALWAYS tired. I can probably fall asleep anywhere if I could. I can also be in the middle of a conversation and if someone is talking to me, I check out & space out and didn’t hear a WORD the person said. My mom always would get angry at me because she said I wasn’t listening to her. I only had one experience with sleep paralysis. That was the scariest moment of my life to be honest. And yes, I do see things. Orbs, and shadows. I’m worried but it’s the middle of the pandemic, & there’s no way in hell I’m going to a doctor during this crazy time. I’ll have to wait until all this passes before I can get properly diagnosed.

  • I had all the symptoms except, but “waking up randomly at night” is kinda controllable. It takes about 2 hours until I get up, just to say “sleep you idiot” and go back to sleep. Guess I’m narcoleptic.

    Sleep paralysis makes me so uncomfortable and nervous, I can’t move my body despite being awake, it’s like your brain doesn’t works anymore or isn’t responding to you. What I try to do is go back to sleep, bit my tongue or move some fingers to make some noice, but most of the times I just wake up randomly in it.

    The worst part is that some times I have difficulties breathing during sleep (pretty rare, but it can happen to me), and I got breathing difficulty with sleep paralysis. It was the worst feeling ever. You can’t breathe properly, and you can’t do anything about it because you’re paralyzed. I hate this thing.

  • There is too much misinformation about narcolepsy, because the doctors keep passing on the same old discriptions of symptoms they’re too rigid, because I’ve met many people like myself, who have cataplexy for much longer than one minute, and people who also have myoclonic jerking before they have an attack or when they try to force themselves out of a cataplexy attack too quickly.

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • I feel like I have narcolepsy, I’m sleepy all the time and then I gotta drink lots of caffeine and take sleeping pills to offset the effects of the caffeine and it’s a horrible cycle ��

  • I experience all of these symptoms. My dr doesn’t listen he just said I’m psychotic as I said I hallucinate at night. I can’t cope anymore I’m so tired all the time I nod off walking

  • There’s no way I don’t have this some of the symptoms I had more as a child like sleep paralysis and halusantion nowadays I’m just constantly tired and this helped a lot on knowing what I got I’m gonna see a doctor very soon to help deal with it

  • For anyone else who stumbles upon this, my cataplexy is induced by nostalgia rather than just “haha a joke” or angry feelings. This narrow view of the trigger delayed my diagnosis for a while. Any emotion, even those others may find mundane, can be a trigger.

    For me, if I have a distant memory I haven’t thought of in a while, something from childhood that is neither a happy or sad memory, just one that makes you go “Oh yeah, that thing/place”, My vision blurs slightly, things go a little dark, and my peripheral vision collapses and everything looks like I’m looking at a picture (hard to explain, but imagine looking at a picture of a tree and leaning to the side to look behind the tree in the picture).

    On top of that, a sorta pull in my chest, or more like my center of gravity, and one or both of my knees buckle. The knees just give out, no sensation, no tingling, no numbness; they just turn off for a split second, like a gap in the signal to the brain of just dead air.

    Those are my symptoms that only started up at about 26-27 years old. Before that, since 2006 I had excessive daytime sleepiness. My doctor at the time thought it was mononucleosis. Only in the last couple years did I get an Epstein-Barr test and find out I never had it. The only explanation now is that narcolepsy started when I was 13 or so.

    I’ve been on Xyrem for a couple years now. It works well, but the cost is astronomical. I’m on a very low dose, but it does stop the cataplexy. Nuvigil was like sugar pills. Vyvanse is good until you get used to it, then you have all the jitters with none of the wakefulness.

    Hope this helps.

  • I was diagnosed with narcolepsy at age 7 and would lump if listening to a funny joke I don’t halustinate but i dream a lot. I don’t even have to be sleep five minutes and I start dreaming ; the strangest and weirdest dreams

  • It’s actually an autoimmune disorder that affects your neurological system. Which I’m hoping means there’ll be more to be done for my narcolepsy because I’m tired of having it.

  • CBN!!! Esp patches or sublingual from that kick in fast before sleep

    Not CBD, not THC (isn’t THC great tho ☺️)

    CBN!!!!���������� Please try

    Wishing EVERYONE on this comment thread a wonderful relaxation where everything relaxes just right
    Not too much, not too little

    You will drift into a sleep that’s not too deep, not too light

    Your breathing will be maintained perfectly there is no need to be afraid of any nightmares because they will not be there later and even those bad dreams serve a purpose to remind you of how good the happy times can be

    This rest period is to serve you with optimal healing and reconfiguration
    As you close your eyes with every inhale your whole body is realigning, rebalancing, and restoring health

    You can get through this
    How do I know?
    You’ve made it this far and people do look up to you wether they admit it or not

    Let them think of you what they will
    They can call you lazy (you know your trying your hardest )
    They can call you dumb ( you know your frequency is just as good if not better than theirs)
    They can call you sick (but you know what your body tells you to do, and you are in a healing state every time you sleep)

    sending healing vibes to everyone here much love

  • I was diagnosed with narcolepsy at the end of last year. It gets worse every week and school is hell because of it. Medication is really helpful though and I’m working hard to stay positive!!

  • i was always falling asleep in classes and i can’t drive for a long period of time cause i sleep too….reading is hard too….everything that needs focus or a point of interest with your sight…well u can’t control it, youll fall asleep….sleeping 12 hours a night is very easy for us hehe…and i got the sleep paralysis often, but maybe it could help, i do less sleep paralysis when i ate less sugar before to sleep, and i try to not do naps in the afternoon, cause the paralysis will appear then

  • For many years doctors thought I had absent seizures, taking the medication for it only made my narcolepsy worse. Here recently they sent me to a sleep specialist that concluded I had narcolepsy. It sucks having this and honestly I wouldn’t wish it to my worst enemy… it’s just to much to deal with ;-;

  • I’ve collapsed from cataplexy more times than I can count. I once fell asleep in an empty bathtub. But the worst symptom I have is brain fog, which is where my brain feels like Dial-up internet. I get sleepy, irritable, my speech gets slurred, and my entire body feels like it’s underwater. I’m so glad that there’s finally awareness to this awful disease.

  • In my experience of (admittedly low-grade) narcolepsy, Modafinil has it licked. 200mg in the morning, and then another 100mg before lunch. Your body doesn’t absorb it so well if you’ve eaten, so take the additional dose before lunch!

  • Looking to know how to work it out. Sleep paralysis, hypnagogic hallucinations, insomnia, narcolepsy. Fear of sleep death. Extreme sleepiness but constant ability to keep 3rd winds

  • It’s up to you to get your sleep cycle straightened up and working right. Find out what you’re doing wrong and correct it. When I was under state care, we had some seizure patients but I wonder if they were really seizures after all. In the other state care, you didn’t go down and less you were allowed. They kept you up and going regardless of your condition. We all lived because laziness was never tolerated. When your sleep cycle happens to be messed up, too bad for you if you were at the Ohio Center in the 80s. You were only allowed to go to bed at a certain time and you had to be up at a certain time. If you didn’t sleep well, too bad for you! At least you slept when you were supposed to. One time I was allowed to lay down on my bed and I unknowingly slipped off to sleep. I was sleeping real good when suddenly out of the blue, a staff member grab me by the hand and dragged me out of bed. I didn’t know the unit was actually lining up to go to the cafeteria. No one was allowed to be alone in the unit. I was still pretty groggy as the staff member was roasting me out of the unit and toward the cafeteria. I was just waking up when I finally reached the cafeteria and was seated with my meal. It was the last time this ever happened, it never happened again

  • Thats crazy. I would always gets these insanely vivid and unforgettable dreams whenever i got the flu. I even woke up and got out of bed one time still believing i was in a dream. I guess this kinda explains why.

  • Even when it’s involved with your adhd people choose to attribute it to depression. They always want to get you on antidepressants rather than looking into things deeper and trying to figure out what’s really going on.

  • I have this… my sleep paralysis isnt scary and i am aware of my dreams and i control them sometes my own dreams wake me up rapidly sometimes before falling asleep i will hear voices of a malle and female talking to eachother random words lol

  • I have Narcolepsy and ADHD. I am being treated for it antidepressant and ADHD medications as well as some sleeping pills. I hated living like that tired n sleepy all the time. But I fought it so hard I did not want it to define or limit my life. I just got my bs in microbiology it took a lot out of me but I did it and I’m planning to got all the way to my phd.

  • I actually diagnosed myself at 13 but the doctors didn’t confirm it till a year later. I had many sleep studies and have had the worst result my neurologist has seem. I am in illdkk

  • Dr mignot please research how we can increase hypocretin levels artificially to understand one more sleep disorder called Kleine Levin syndrome

  • I would have an aura, when driving. A feeling came over me, as if I was going down under. I would have time only to pull over, put my car in park..then in a deep sleep for 10 minutes. Weird!!!

  • I highly suspect that my husband has Narcolepsy. He keeps making excuses not to see a doctor though. The one time he did, the doc said “I don’t think it’s Narcolepsy, I think it’s sleep apnea.) Here are the reasons I think he has Narcolepsy:

    1. He can fall asleep at the drop of a hat. We can’t watch a movie without him falling asleep.
    2. He can fall asleep as soon as his head hits the pillow, and I have seen him enter REM sleep within 5 minutes of falling asleep.
    3. He is CONSTANTLY extremely tired. It doesn’t matter if he slept 2 hours or 13 hours. He is still exhausted.
    4. His grandmother had Narcolepsy (with cataplexy). She would faint when she had intense emotions. (he doesn’t have that though, or at least not that I have noticed.)
    5. If he is up and doing stuff, he is fine. As soon as he sits down and starts to relax, he falls asleep. Doesn’t matter what time of the day or if he even did anything strenuous, he WILL start nodding off. We can’t just sit and cuddle and watch a movie. He will fall asleep not long into it. He doesn’t understand why I can’t just “let him sleep and finish the movie”. Him falling asleep just ruins everything! I’m suppose to enjoy cuddling and a movie while he is snoring in my ear? I’ve dealt with this for 9 years and will continue to, but GOD I wish he would just see a damn doctor!!!!!

  • 2 qus: 1. Can flue vaccine, like flu virus itself, induce the immune response that destroys hypocretin and brings on narcolepsy?

    2. What are prospects for this research leading to a cure?

  • This girl reminds me so much of myselfvery outgoing and bubbly. Around 3:00 when she breaks down a little bit, hit me. The frustration and struggle is real. I got diagnosed at 16 years old, I’m 32 years now.

  • The single largest obstacle is the obscene cost of being diagnosed so that action can be taken.
    And please tell us how one sleeps for 8 hours at a time without extensive medication????? Oh wait, one must be formally diagnosed first… LMAO!
    Yet another pie in the sky video telling us how things should be rather than acknowledging and presenting viable options for what IS.

  • Does that means i dont have to use my useless medication and back to the land of the living or should i have to wait for a 10 or 20 another yrs?

  • Narcolepsy is NOT brought on by emotion. Cataplectic seizures are. First 30 seconds & you’re wrong. Hypnogogic hallucinations are light behind the eyes. Lucid dreaming is wakeful. There may be good stuff here, but 40 seconds in & the mistakes are huge. Get it right or get it off of youtube because I’m tired of correcting misinformation about me to others in the real world they learned from this bs. Your doctor is behavioral.& psychology? That’s the CRAP that hurts narcoleptics. Only neurologists focused on neural science should be involved. This is frustrating. I don’t @#$^&#^# have SWINE FLU? is this a joke? What… the… @#$%? It is an auto immune disorder! Ohhhh… bad luck. Well, there you go… science, people. STUPID!

  • I was diagnosed with type one narcolepsy a few years ago. After being on a regular medication routine everything seemed to be going well…until recently. Now I’ve changed meds and suddenly I have been feeling incredibly sick. My cognitive skills are seriously lacking right now. Also, because my cataplexy is mostly triggered by fear (I’m absolutely PETRIFIED of thunder) and stress…living in Moore, Oklahoma is definitely NOT my idea of fun. I haven’t been able to return to work in a few days now and it’s really frustrating. Hopefully I still actually have a job to return to. Tornado season is literally the worst time for me… I can’t wait until these storms are over and I don’t have to worry so much about the cataplexy.

  • I’ve had this since age 3 from a tonsillitis infection. My 1st grade teacher tried to let Mom know that I seemed tired all the time, but she never took me to a doctor. It completely destroyed my life. I’m 59 now, and I just found out what has been wrong with me all my life. There’s no cure for it but at least I know that there’s a name for it.

  • @ 2:30 So I love this video. It’s so informative and accurate. To the dr. when she mentions “head trauma, Illness, immunizations” that may explain symptoms can you expand on how an immunization could fit those symptoms? Which immunization is known to bring on EDS et al.?

  • Her experience with narcolepsy describes me perfectly. I’m not diagnosed but I have severe muscle weakness, muscle loss sometimes, extreme day time sleepiness, nightmares, insomnia, hallucinations, and sleep paralysis and sometimes automatic behaviors.

  • No offence, but this doctor seems like she has narcolepsy herself��… I was diagnosed in the late 80ties. A lot of people did not know what it was. And they blamed it on frim lazyness to voodoo. Thrn when i went to the hospital, they gave me all kinds of drugs, like Ritalin to anything close to coke… I had to take like a cocktail of 8 pills.. That didnt help and it was giving me all kinds of side effects. So i stopped… Now i get by on shear will power. I can feel an attack coming so i can get by better during the day. But some days… I just cant.
    I wished more people would be more educated to this. Like teachers and people at work.
    That was hell for me…. I hope alot of you have done better.

  • I Remember Multiple Times Having To Get Down On The Sidewalk For A Nap. Some Of These Were Very Public Sidewalks Also. Basically I Would ” Collapse ” On A Sidewalk. Chronic Relentless Destructive Exhaustion. Narcolepsy Is No Joke

  • I think i have this. I fall asleep suddenly and at random times.. Like at the library while reading or on computer and watching tv. Even once outside on my porch. And outside my job once. Its dangerous and i wake up confused most of the time.

  • i get sleep paralysis.. and its HORRIBLE. its painful, its frightening, its sickening and i dont know what to do about it. its so painful and frightening it scares me to go back to sleep

  • What a joke. If I had that choice I’d stay in bed all the time. Being honest about feeling sleepy doesn’t give you an excuse to actually be sleepy. I’d say you want sleep? Go out there and earn it. Coffee will help you, join the club.

  • My symptoms get triggered from stress. For example I was falling asleep even thru the nurses trying ccx to keep me awake, while in labor with my 2nd son because there was complications and I was so stressed and panicked.

  • After decades of trying different methods and life changes to live a normal life, other people’s judgements remain my biggest challenge. Every time I get to a good place, they either think I could be doing it naturally without medications etc and then I have setbacks and have to start all over again. Acceptance is key

  • I’ve had this apparently since I was little and sad part is I was just diagnosed at the age of 38 through a day time study and I have obstructive sleep apnea were I did a night time study. Was so tired of being called lazy all the time when in fact this is a desease. I was falling asleep within 2min and was dreaming within 3min. Not good. I’m on medication now and sord of helps

  • I’ve had this since age 3 from a tonsillitis infection. I wish Mom had taken me to a doctor when my first grade teacher let her know I seemed tired all the time. I didn’t find out until this year at age 59. It’s too late for me to enjoy this life but hopefully I can enjoy the afterlife!!

  • The worst thing about this condition is that you will hear things from people like ”yeah Im tired as wel”. Thinking they suffer as much. Many people even try to teach me about how to sleep better. Even though they just want to help me, people should know that someone with narcolepsy is already a sleep expert and had experimented with blue light, temperature, sound, food, caffeine, alcohol, sleep schedules, relaxation, medication, matress, light therapy and more.

  • This doc and video is WAY to optimistic lol!!!! Almost making it out to be no big deal. It’s a disease and it’s debilitating!!! Don’t beat around a bush. My stimulants are my lifeblood and I don’t know one narcoleptic that gets by ONLY taking the “vigils.” I take Nuvigil WITH my adderall. It’s depressing as hell and it’s real

  • I was just diagnosed with narcolepsy and it makes me tear up to see that this girl isn’t alone, because I experience the same, so we aren’t alone in this.

  • To be honest I don’t even know if I have narcolepsy because in school I would just nod away and then I’d start dreaming thinking that I’m still awake and then when I wake up it was as if I was hallucinating what was happening right in front of my eyes even though I was asleep and then sometimes but I’m not going away and I fall asleep for about 5 minutes I wake up and I feel as if I bit my tongue I do have fragmented sleep and something to wake up at 3 in the morning for no reason and then I fall back to sleep and then I wake up at 6 in the morning and then I fall back to sleep and all of a sudden I wake up and it’s 2 in the afternoon and then I could be okay and then all of a sudden I start feeling sleepy again at 6pm

  • btw i don’t have narcolepsy/never been diagnosed, i have a host of other illnesses that are likely to blame for my tiredness.
    i have constant tiredness to the point its painfulbut its hard because i can’t always fall asleep. but then sometimes i can’t stop falling asleep. there have been days where i won’t exactly fall asleep, but i’ll zone out while being fully aware and i cant move easily and my eyes twitch like REM sleeping. its not often, only once a month, but its scary when it does. my eyes won’t open, i suddenly zone out while walking and wake up just in time to stop myself from falling, etc. but the sleeps only last for a few seconds. i also don’t dream anymore (i attribute that to medication i’m taking for my mental illness as i used to have extremely vivid dreamslucid dreams, in colour, with sound and touch and even taste and smell, as well as daydreams with the same qualities and i was a maladaptive daydreamer, meds stopped all of that). i assume its chronic fatigue, either due to anemia, mental illness, or chronic pain. but i do feel the struggle of constantly on the edge of passing out and no matter how much you sleep (like… 12 hours at night and 4 hours during the day as i do) you are never any less tired. it hurts. ��

  • That is terrifying to have to deal with. I have actually witnessed a girl at an old job have an “attack” while she was working. Just fell over and appeared to have passed out/sleeping. She woke up a little while later and explained that she has narcolepsy. I never heard of it before then. Alot of my coworkers thought she was just making it up though. Never assume things about people.

  • I have Narcolepsy with Cataplexy and went through so many stimulants. Armodafinil was the best for me for a while but it did not make me feel better. It kept me awake but not alert and not rested. Cataplexy SSRI/SNRI did not help me whatsoever.

    However Xyrem (Sodium Oxybate) changed my life. It was hard to get on, and starting side effects I was warned about were rough and lasted like half a year. But now Ive been on it for over 3 years and I feel amazing. Waking up in the morning I’m still groggy so take a low dose of Vyvanse to get going. Other than that without Xyrem I honestly feel like I would have killed myself at some point from not having my condition managed well and a not supportive family. Xyrem lets me live a mostly normal life and I’m eternally grateful for it.

  • I am so sick of the “live healthy” message.
    I never drink, never smoke, eat more vegetables and fruit than anyone I know, never eat junk food or sweets, force myself to go to the gym while most of my friends drink every weekend and under the week, smoke and eat trash.

    it’s NOT about a healthy lifestyle. fuck that.

  • My ” Narcolepsy ” Was Caused By Chronic Exhaustion Over That Was Incremental Over Nearly 3 Years. This Chronic Exhaustion Also Brought On An Acute Depression. I Was In Bad Shape. In The Middle Of The Day I Would Get So Beat Down Exhausted That I Would Race To A Sofa Or Some Variation There Of To Ensure That I Would Not Collapse On A Floor In Public.

  • I was diagnosed with Narcolepsy August 21st. After being treated with medication I finally have my life back. I am only 20 and it took me 6 years to get a correct diagnosis. I was diagnosed with depression, ADHD, anxiety. Now that I am doing better I am actually going off my Effexor. Thank you doctors for talking about Narcolepsy. It needs to be talked about!

  • I need to go see a sleep specialist but it’s just way to expensive, almost 2k just to talk to a specialist!?! I’m almost positive I have narcolepsy, and insomnia at the same time. I’ll be doing something and I’ll fall asleep in the middle of doing it but while laying down I cant sleep?

  • I have to concentrate on not falling asleep during the day, i have missed over 30 class sessions in online school just because i fall asleep randomly, i have not been medically diagnosed of narcolepsy. I am too scared to go to a doctor or tell my mom that i am having symptoms of narcolepsy through out the day.

  • Vaccines are very safe, but… Can certain parts of a flu vaccine (ie: virus parts) mimic neuropeptides like hypocretin or possibly other neurotransmitters (eg: dopamine)? If so, can a flu vaccine risk causing narcolepsy (or other disease like a movement disorder) in a person with risk factors?

    [Dear anti-vaxers: Vaccines are very safe, prevent disease, save lives, and avoid suffering. The likelihood of vaccines causing health issues is nearly zero. Weigh that against the risk of the disease being prevented.]

  • I like to join in club I’m a narcolepsy catalepsy patient to but in addition of that I’m suffering from sleep apnea too

    don’t know whether I’m going to die cuz of narcolepsy while I’m bathing or driving or I die with sleep apnea sigh……

  • I got norcolepsy as well and it’s really annoying sometimes:( even with medications you feel sleepy. You won’t fall asleep all the time, but you still feel kinda tired…:/

  • i have diagnosed with narcolepsy and catblexy since 2000 during these years i have noticed that
    Yawning before the attacks of narcolepsy starts prvented me from both falling to sleep and also delay the cataplexy attacks…..anybody couls try that…

  • Hello fellow narcolepsy patients.

    Unfortunately science don’t know much about narcolepsy yet. There are no proven cure for it. To help with the symptoms, drugs are the best option.

    Modafinil is the most stable and safe drug you can get. However it is known to cause severe anxiety after some time of use. The next option would be Methylphenidate. Its side effects are much more vague than modafinil and the experience really varies from person to person. Other options would be adderall, xanax, xylem, GHB or effexor. I personally don’t recommend adderall since it is known to cause brain damages. Most people just go for Modafinil or Methylphenidate.

    Other treatments than medications would be exercising/healthy diet and good mental health. Depression is known to cause fatigue.. but honestly you shouldn’t expect much from simply exercising/eating healthy.

  • Cataplexy person here. This form comes and displays itself differently for everybody. Like if I really needed to, I could move again, just with great difficulty. I wonder how the treatments will vary or if they even will?

  • So she just has this? Nothing brought it on other than normal puberty… very interesting

    I got this from a endocrine tumor (on my spleen pancreas and stomach… but I had a small on on ovarian cyst too) messing with my adrenal glands and hormones
    I was on fight or flight adrenaline and little to no sleep for so long till my adrenals were just shot
    By age 25 I got Parkinson’s added on to my dystonia

    I have sleep apnea but when it’s when I’m awake now!!!!
    I’m not overweight I’m thin like that girl and just turned 30
    This sucks

  • I believe Im just one lazy bastard. The sleepyness doesnt control me to suddenly fall asleep without control, I can stay awake but do realize countless times in my life since teens I could sleep all day and still be sleepy the next during summer vacations I would be like wtf?!! I slept 16hrs yesterday. Anyway today to fight this drowzy feeling I find that if I eat only �� sliced or preparred as a drink It prevents this from happening and I take a power napp in the afternoon if I need one like 45minutes. You will feel like you slept 24hrs its amazing.
    If I eat a nice greasy breakfast ������or ��sugar dairy breakfast. I’m guaranteed to feel sleepy soon afterwards. I also found a 8 job in a bricks n motor job doesnt help I deliver on my own hours and my sleep has improved. Dictating my own hours allows me to feel freedom which helps and when I need that powernapp I can take it anytime. A regular 9-5 cubical or office type job I have to wait for lunch and by then the sleep may not be as strong by the time I get comfortable place. Its best to take that powernap as soon as you feel it find a good park place pull over in my van and sleep like a baby. I hope this helps some as its improved my lazy ass. So in the morning Eat watermelon only or you can mix it up with pure strawberries blackberries and slight lemon juice pears.. these fruits never let me down. A banana may make me feel sleepy so I avoid it. Stay away fr sugars and u will last fr the time you wake up to around 12-2pm for a power nap. The watermelon will coat your stomach just right if you wake up feeling starving and settle it pure and clean so u can stay awake alert and eat something heavy at lunchtime before or after your 45nap. If you have more time just fall asleep and after 1.5hrs you will wake naturally and be good until bedtime.

  • This video is so basic it’s almost harmful. Saying a person is just sleepy is misleading. It would have been better to explore what happens when people go decades not getting adequate sleep.  I wish he would have discussed memory loss, brain fog, immune system breakdown, etc. Normal lifestyles? For one, Narcolepsy affects people at varying degrees, where some need to work jobs that involve constant movement and others can’t keep a job and are on disability.
    Also, our medical field is so dependent on drugs, that they spend little time discussing the important lifestyle changes Narcoleptics need to take, depending on the severity of their disorder.
    I’m really disappointed in Harvard for this video.

  • Appreciate Video! Forgive me for the intrusion, I would appreciate your initial thoughts. Have you researched Millawdon Dessert Allowed Trick (search on google)? It is a good one of a kind guide for exterminating your sleep apnea or snoring minus the headache. Ive heard some pretty good things about it and my friend Sam at very last got astronomical results with it.

  • Diagnosed with Narcolepsy since last March. Best way to describe it is, imagine being awake for 5 days straight and going about your day like that and never feeling any relief. Sure I take Armodanfinil and it helps, but not all day and it’s not a cure all.
    On top of exhaustion, you wake up all the time at night, have super vivid dreams that seem real, and yes hallucinations like the woman described. Also extremely poor memory and cataplexy. Even things like bringing in groceries from the car is extremely tiring. People with narcolepsy aren’t lazy, we just have zero energy.

  • I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don’t have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I’ll get sleep paralysis). Is this still be considered as narcolepsy? Help.

  • Excellent info. I have narcolepsy with cataplexy & parasomnias. I’ve done 4 sleep studies. A blood test showed I have two genes that most of the population does not have & a few percentage have one gene or the other but rarely both. Having both genes meant I had a 72% chance of having sleep disorders. The sleep study & sleep diary factored in with that 72% & the result was a proper diagnosis (after 15 years of seeking medical help).

  • Also: if they ever find out why almost ALL reported cases of sleep paralysis involve some sort of “dark figure” or sense of person in the room I’d kill to know! There has to be some connection there…

  • Ever since I had the swine flu in 2009 (I was in 6th grade), I’ve been chronically exhausted and was diagnosed with sleep apnea in sophomore year of high school. I’m certain h1n1 was at least partially responsible.

  • Damn, I wasn’t expecting everything in the video to line up so perfectly with my daily symptoms. Oh well, at least I am more informed before my sleep study.

  • I ve been sleeping all the time and I’m scared because I had this madection called amblefir in a mental hospital and it knocked me out cold

  • Almost 25 years spent on finding out about something that was always obvious. But didn’t explain a cure for it. Which is what we been waiting 25 years for. Lmao. Scientist now a days.

  • Very nice video. I think that narcolepsy may be genetic in humans as well. I am the only one diagnosed with narcolepsy in my family; however, many other family members (who seem to be in denial) have many of the same symptoms that I do.

  • I think I’ve fallen asleep from tiredness during work and I imagine I’m walking around places other than where work is. I fall asleep no matter how much sleep I get. I work 3rd shift at Walmart, but I can sleep 7 hours and fall asleep in the car when my dad takes me to work and I can fall asleep later on when I’m working! I can fall asleep at night while off work even if I’ve already slept during the day and sometimes I can sleep the next day! Sometimes I get insomnia too!

  • Who ever is reading this a doctor or whatever I think I have sleep paralysis because when I wake up sometime I try to move but I don’t and I have so much vivid dreams so when I go to sleep I can’t move

  • Not sure of my issue but I struggle with fighting an undescribably strong urge to sleep during the first 4 hrs of work and I’m on my feet on into the day. I’ll actually start experiencing that beggining of dream state while awake but its more just confusional arousal. If I am fresh and heavily interested I’ll remain awake but if its mundane, repetative, and easy, I risk nodding off standing.

  • Great video! Very important that people know Narcolepsy is auto-immune caused brain damage. People with Narcolepsy (PwN) even develop a glial scar, just like survivors of stroke. Also, you can develop Narcolepsy by experiencing a Traumatic Brain Injury (or TBIlike from multiple concussions, or car accidents) if that same area of the brain is damaged. So many tend to write off Narcolepsy in invalidating ways, saying we’re lazy or just need to drink more coffee or whatever. Nope, it’s actual brain damage. Grateful for this professor and all those who are seeking to understand and better treat Narcolepsy!
    Hoping for more medications to help increase deep wave/restful sleep (which PwN greatly lack due to high REM and unregulated sleep stages), as there are currently only two meds that do this. Many don’t respond to them or have unbearable side effects or reactions. There are many stimulants out there and in development, but many can not handle stims for various reasons. We sorely need more options for the sleep aspect of treatment! The current two medications are GABA-B agonists, but maybe there is even another way we could get the same result. Like how one of the new stimulants acts on histamine receptors which hasn’t been done before. Here’s hoping.

  • Kpop people are annoying when they comment… we get it, you’re here because of bts you ALLL don’t need to comment tbh one or two is just fine. Just reply under one person who commented that they’re “here because of _” post. ��

  • I am also facing with sleep paralysis montly once or twice but no symptoms noticed when I did walk or run rest of the days as usual.

  • After my diagnosis, I was told by my specialist that my family is the rare case of human narcolepsy caused by mutation. My Grandfather, his mother, my aunts, and I all have confirmed narcolepsy.

    My mom and sister likely do too.

  • ERROR at 12 seconds. Narcolepsy isn’t triggered by joy, this is cataplexy. As a person with narcolepsy, this distinction is important, because during a cataplexy attack, the narcoleptic is still aware of the world around them, they just are limp and unable to respond because of the paralysis of voluntary muscles. Sleep attacks are different from cataplexy attacks, even though they appear similar to the onlooker.

  • I suffer from this,I started with medication for some months, then I stopped, now I drink 2 cups of coffee per day, one as soon as I wake up or preferably around 10-11 AM which is a good time to take full advantage of the caffeine (based on recent studies for cortisol levels and etc.), and one in the evening before 7 pm, because caffeine needs 6 hours to be fully processed in our body, so I can sleep with no caffeine circulating in my body and making my sleep difficult; caffeine might cause hallucinations, which I experienced more than once in sleep paralysis… It isn’t the least funny or pleasant; 1 minute feels like hours of struggle.
    And that’s just the tip of the iceberg, cataplexy is mesmerizing; I was the kind of person that does things full; I laugh loudly, I appreciate things and love them as they come and easily get excited. Now that I suffer from cataplexy, I’m refraining from such emotions, because they could make me fall, and that’s without taking into consideration; stress, confusion, and what not.
    I’m the best kind of customer the media wants, if I’m at home, I got to play interesting games, watch interesting movies etc. All while ( sometimes ) still getting sleep episodes on my desktop.
    If I’m out and alone, I got to put on my headset, whether be it listening to music or youtube videos, or I would fall asleep on public transport, and miss my stop.
    I just wrote this where people can relate and know they’re not alone; I’m male, 23, it isn’t the least easy on me, even though I consider myself being a tough man, but, I had my own personnal issues which started this vicious cycle of sleep disorder.
    I hope you all well, I hope that no more people will suffer from this, but more importantly, be happy that you are whole, if not, be happy that you have a mind of your own, appreciate little things in life, there are people out there who are having it much worse…
    I end this with love and compassion for all.

  • So nice to see narcolepsy addressed and new discoveries being made. I have it, and it’s always been surrounded by a cloud of mystery even in the medical community. Thank you!

  • this is really informative!! thank you seeker for inviting dr. mignot! thank you dr. mignot for being so determined in your research and explaining so well!!

  • I was diagnosed with diabetes T2 many years ago. I have progressed to taking insulin. For years I thought my “melting” when laughing, sleep attacks, and lack of energy was due to blood sugar. As these “weird” symptoms got worse I found myself drinking 12 monster rehabs and still falling asleep in the drive thru with my foot on the break. I fall “asleep” in seconds. So I haven’t drove for 2 years. With the addition of a stroke I am disabled… I want to thank everyone who pays taxes because SSDI came through for me. My private insurance however is a joke! Everyone take care and thanks!

  • I just experience this, when I woke up or I thing I woke up I felt something jumping at my neck and attacking me. It felt so real. Never thought hallucination could feel this way.

  • And I believed I had SLEEP PARALYSIS!!! ALONE! I have all the 10 symptoms in this video! MY job as a Retired RN of 40 active years served…ARE reserved in the after-effects which live on within us…the working various shifts and the anxiety and worry constantly that comes with the job in general… and never-ending and continuous fight or flight experiences… IN Any field of Nursing for that matter and especially as a Retired Psych. RN…The residual effects are never really is put to rest…it is a part of us all who worked this profession. Depression…of course…after a certain age…the percentage is high on that! Add in personal stressors…and general lifestyle changes that are not all that healthy…mentally or physically. It all adds up…RIGHT HERE! TYSM!

  • Narcolepsy, you fickle bitch. I’ve been diagnosed with narcolepsy w/ cataplexy. Had a great sleeping pattern seemingly my whole life until about 27. The truly sad part was that I didn’t even think the being tired all the time was something seriousI went in for the muscle weakness and felt like a freakin looney toon for telling the FOUR doctors I saw that “sometimes I fall when I laugh.” Took the MLST and went into REM all five times…last of which was the shortest they’d ever seen at the lab (less than 1 minute). I received FIVE diagnoses that day (narcolepsy/ cataplexy/ hypersomnia/ obstructive sleep apnea/ dyssomnia). I totally get why they don’t understand the disorder, my symptoms are so similar to hers yet I cannot seem to STAY asleep. I wake up on average about 20-25 times a night. Modafinil HELPS, but I still feel like I’m operating at like 50% almost 100% of the time…

  • I got very sick with the swine flu when I was 6 it was awful soon after I developed sleep paralysis and have awful dreams it’s been 10 years later and it still occurs at least once a week, this blew my mind

  • The tears started flowing by the end especially when she said she was so relived because she thought there was just something wrong with her.:-(. I was about 17 when I first noticed issues. I wasn’t diagnosed until I was 40. Spent the majority of my life not only beating myself up, but allowing others to as well. Hearing so called loved ones diagnosis of “lazy”, “depressed”, and even “bipolar” created a life long internal struggle. I didn’t believe I was any of those, but what if I was and just didn’t want to accept it? the actual diagnosis has been very emotional, and hard. From just processing so many years of self doubt to now the health issues from the abuse I put my body through just to try to function “normally” is catching up to me.

  • Yes please do one on Schizophrenia! My son had symptoms from the age of 5 after a horrible device and was diagnosed at the age of 12. All the books available in librarys say that you can’t have a normal life… I believe that is not true and we have raised our son to believe that he will have to work a little harder then most but he has every right and chance of having a normal life, job, friends, and a family of his own one day. He has just turned 16 years old and is A-B honor roll.

  • I’ve had Type 1 Narcolepsy for 31 of my 38 years on earth. Type 1, meaning, with Cataplexy, and all the other ‘fun’ symptoms it comes with. I wouldn’t wish it on my worst enemy. The Doctor Mignots of the world, give us hope. 1:01 “Narcolepsy isn’t really about falling asleep, it’s about not being able to stay awake” Frickin’ nailed it!

  • I definitely have this but not diagnosed, as with many of my other symptoms. It’s really dangerous for an isolated, disabled, female on public transport and in work and on campus etc. The doctors don’t believe me nor care. All the professionals I’ve seen have been so dismissive. No matter how much I sleep, I’ve not had one day in the last 8 years where I’ve not uncontrollably fallen asleep and jerked awake and also been somewhere in between & not able to control myself, it’s very hard to explain. It happens so frequently every day and has wasted years of my life away. Obviously it’s not the main or only problem in my life but it is debilitating and I think it is caused by or getting worse because of the beyond stressful life I am enduring. I’ve tried so many things to no success. I don’t look unwell at all but I am. I can feel my brain or head region weakening and even stinging and my eyes are very detached and heavy. What can I do? The brain is so beautiful. Thanks in advance.

  • It seems like our immune systems are easily subverted or cranked into overdrive. Would think that creatures as adaptable as humans would have more adaptive immune systems as well.

  • Haha “Can it be white wine?” great video Seeker folk! Loved the animations and loved learning about something that I had zero understanding of!

  • Having nightmares manifest in reality before you properly fall asleep causing extreme terror, which in turn causes cataplexy, which in turn makes the brain fall asleep partially again and manifest more nightmares, getting myself stuck in a perpetual cycle of sleep paralysis and nightmare hallucinations assaulting your every sense while getting constantly paralysed. Not a fun time, I became afraid of sleep and insomniac. Thankfully, everything is better now that it’s medicated.

  • This is the best video on narcolepsy that I’ve ever seen! I immediately subscribed after watching this! In the future, I’d love to see a video explaining type 1 and type 2.

  • Well now this has me wondering if I have it! I fall asleep all the time, have even through school! And definitely had sleep paralysis and lucid dreaming!

  • When I’m in rem sleep during the day, about six to eight times a day. I don’t nod off to sleep, but rather, I keep doing my activities in a robot mode. Funny, I’m not aware of what I’m doing, I find my purse in the oven, my glasses in the freezer, my keys in a drawer. I can’t find things if I’ve put them away whilst I was in rem sleeps. Some are only a few minutes others only a few seconds.

  • How CONVENIENT for pharmaceutical companies.
    How about other recommended vaccines and their side effects?
    Also caused other illnesses, which when taken care of will cost you a huge amount of money.
    Just sayin.

  • to answer the ending question: caffeine. long term use of caffeine.
    which is almost impossible to avoid with our food options and our food behaviors we pass on to our children.

  • It’s nice having someone who knows what they are talking about explain a scientific breakthrough (especially when they are partly or mostly responsible themselves for that breakthrough) instead of a parrot who is trying (way too hard) to be “hip” and “exciting” and just comes off as condescending and intelligent.

  • I had no idea having the h1n1 virus could cause someone to have narcolepsy. Hearing that was a like a light bulb going off in my head. Back in 2009 I had swine flu. Watching this video makes me pretty sure I have narcolepsy in part due to the h1n1 virus.

  • I have type 1 narcolepsy and my father was a veteran of the First World War. I was born in 1941 and always remember my father as being sick. It is possible he died of flu because my family received support benefits. I came down with symptons after an operation on my leg. I was in the hospital for about 3 months. Do you think there is a relationship?

  • I remember the time when teachers used to scold me bcz I always look sleepy in class. And I sometimes slept in class. They accused me taking drug. I was so sad. But my friends know my illness and keep supporting me till this day

  • Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

  • I’m really not sure if I have narcolepsy or not, I can sleep for like 10+ hours and then out of no where maybe a few hours later I feel my eyes closing randomly and I’m like Noooo I’m not sleepy but then I can’t fight it at all. I have insanely intense dreams constantly, waking up constantly mid sleep in panics or I “hear” things and wake up like in a panic thinking someone is about to kill me. I’ve never experienced sleep paralysis, my partner thinks I have some case of PTSD which also makes sense. But yeah sucks man!

  • my symptoms just started appears about 4 months ago…every night is horrible. i’m always exhausted now, i wouldnt’ wish this on my worst enemy

  • I was diagnosed in 2012 (it is now 2019) but looking back it is clear I’ve had it since childhood. However, I was labeled as “lazy” “unmotivated” “lacking effort”. Those labels have haunted me to this day, even tho I graduated from a nursing program in the top 5% of ALL campuses while raising 2 kids, taking care of a house, pets AND a dying husband. Yet after my husband died 4 years ago, my autoimmunes flared and at 35 have made me disabled. Narcolepsy and type 1 diabetes (which is what killed my husband) play off each other and they make the other worse. Its a vicious cycle! And humiliating to live with…especially in a world that lacks empathy and compassion.

  • This video series is awesome. Kudos to all the Seeker crew and medical specialists that made it possible. Surprisingly I wasn’t expecting swine to get any worse than already being a source for Trichinella spiralis, Taenia solium and Ascaris suum. I was aware of the H1N1 virus, unaware that it’s a strong risk factor for narcolepsy. ��.

  • Adenosine Tri Phosphat (ATP) is energy for our neurons, once depleted it is transformed into ADP. When sensors in our brain feel enough ADP it triggers sleepiness to we can replenish our ATP energy with glucose and phosphate. Caffein is a ADP-sensor blocker and this is how it helps us stay awake. With narcolepsy there might be something wrong with ADP-sensors or with ATP production.

  • If epilepsy is hyperactivity of our excitatory neuronal system then narcolepsy is hyperactivity of our inhibitory neuronal system.

  • I can stay awaken for 2-3 days constantly and at 4th day I need whole sleep almost more than 24 hours-What kind of sleeping disorder it is?? We can’t call it lack of sleep because at 4th day I sleep in extreme ie. More than 24 hours and nor we call it excessive sleep because prior to that sleep I can stay awaken for at least 3 straight days??? I want to get rid of this problem and also want to know more about what I’m going through Anyone please help

  • But the flu is not the only way to get it. I never had the swine flu, and no one in my family has it, but I do, probably from a concussion when I was 6 years old.

  • FINALLY!!! shout out to my narcoleptic brothers and sister. I’ve got the fun one with cataplexy and it’s about damn time someone does a narcolepsy video that isn’t a cartoon guy in a sleeping cap.

  • How do I get a hold of the doctors on the show. My sister needs help. She loves to cook and was once an employee at hard rock in Hollywood as a cook. She loves to cook, but as soon as she injured herself at work she was not able to work, she has a broken tendon on her left foot. It is always causing her pain and has messed with her walking that has resulted in her knee being a compensation to her foot for her to walk. She needs help bad. She wants her dream job back. Can somebody give me info on how to contact the doctors?