Take care of Caregivers

 

Self-Care and Managing Expectations for Parents and Caregivers

Video taken from the channel: UCLACART


 

Caring for the Caregivers: 3 Tools for Self-Care | Cristol Barrett O’Loughlin | TEDxLuxembourgCity

Video taken from the channel: TEDx Talks


 

Care for caregivers: Being a caregiver to someone with breast cancer | CNA Lifestyle

Video taken from the channel: CNA


 

Care for Caregivers

Video taken from the channel: Electronic Caregiver


 

Caring for YOU, the Caregiver

Video taken from the channel: havethattalk


 

Self-Care as a Caregiver: Protecting Yourself from Burnout

Video taken from the channel: Psych Hub Education


 

Caring for the caregivers | Frances Lewis | TEDxSnoIsleLibraries

Video taken from the channel: TEDx Talks


If you’re an “at home” Caregiver, Professional Caregiver or you operate a community that cares for individuals with Alzheimer’s dementia, this web site and all of the information and services it provides are here for you. There are over 15 Million unpaid caregivers at home providing care to loved ones with Alzheimer’s and sadly 30% of those “at home” caregivers will pre-decease the people they are caring for. Most in-home caregivers help seniors with their daily tasks while keeping them company.

In general, they can help them get around the house safely, prepare meals, clean the house and give medication reminders. Most caregivers can also help with taking seniors to doctor appointments and running errands if. About Care For CareGivers This site is a place to help support the people that support us. Designed specifically for professional caregivers, this website represents a partnership between the Canadian Mental Health Association in BC and Safecare BC, and is proudly supported the BC Ministry of Mental Health and Addictions. A caregiver is anyone who provides help to another person in need, such as an ill spouse or partner, a disabled child, or an aging relative.

However, family members who are actively caring for an older adult often don’t self-identify as a “caregiver.” Recognizing this role can help caregivers receive the support they need. Here are some of the common tasks caregivers do: Buy groceries, cook, clean house, do laundry, provide transportation Help the care receiver get dressed, take a shower, take medicine Transfer someone out of bed/chair, help with physical therapy, perform medical interventions—injections, feeding tubes, wound treatment, breathing treatments. Caregivers should stay home and monitor their health for COVID-19 symptoms while caring for the person who is sick.

Symptoms include fever, cough, and shortness of breath but other symptoms may be present as well. Trouble breathing is a more serious warning sign that you need medical attention. A caregiver helps a person with special medical needs in performing daily activities. Tasks include shopping for food and cooking, cleaning the house, and giving medicine.

Many government programs allow family members of veterans and people with disabilities to get paid for caring for them. About 53 million Americans provide care without pay to an ailing or aging loved one, and they do so for an average of nearly 24 hours per week, according to the “Caregiving in the U.S. 2020” report by AARP and the National Alliance for Caregiving (NAC). That unpaid commitment can make it hard for caregivers to make ends meet. Adult Day Health Care Centers (ADHC) ADHC Centers are a safe and active environment with constant supervision designed for Veterans to get out of the home and participate in activities.

It is a time for the Veteran you care for to socialize with other Veterans while you, the Family Caregiver, get some time for yourself. Caring for a loved one with a chronic illness is one of the most difficult tasks a family caregiver can master. If you add that to the demands of child care and a job, it becomes even more of a challenge.

List of related literature:

Caregivers may include spouses, partners, family members, friends, hired attendants, and other health care workers such as nurses and nurse’s aides.

“Occupational Therapy with Elders E-Book: Strategies for the Occupational Therapy Assistant” by Helene Lohman, Rene Padilla, Sue Byers-Connon
from Occupational Therapy with Elders E-Book: Strategies for the Occupational Therapy Assistant
by Helene Lohman, Rene Padilla, Sue Byers-Connon
Elsevier Health Sciences, 1920

Most home visits focus on helping the patient and caregiver achieve independence with care in the home, including home care by therapists, home infusion teaching by nurses, and care management, instead of providing direct physical care.

“Maternal Child Nursing Care in Canada E-Book” by Shannon E. Perry, Marilyn J. Hockenberry, Deitra Leonard Lowdermilk, Lisa Keenan-Lindsay, David Wilson, Cheryl A. Sams
from Maternal Child Nursing Care in Canada E-Book
by Shannon E. Perry, Marilyn J. Hockenberry, et. al.
Elsevier Health Sciences, 2016

Most home visits now focus on helping the patient and caregiver achieve independence with care in the home, including home care by therapists, home infusion teaching by nurses, and care management, rather than direct provision of physical care.

“Wong's Nursing Care of Infants and Children Multimedia Enhanced Version” by Marilyn J. Hockenberry, David Wilson, Donna L. Wong, Annette Baker, R.N., Patrick Barrera, Debbie Fraser Askin
from Wong’s Nursing Care of Infants and Children Multimedia Enhanced Version
by Marilyn J. Hockenberry, David Wilson, et. al.
Mosby/Elsevier, 2013

In addition to providing a protective and therapeutic environment for those needing care, the day care centers offer family caregivers respite from the burden of caregiving and allow employed caregivers to continue to work and care for their loved ones at home.

“Encyclopedia of Social Work” by Harry L. Lurie, National Association of Social Workers
from Encyclopedia of Social Work
by Harry L. Lurie, National Association of Social Workers
National Association of Social Workers, 1965

Typically the home care nurse can assess the degree of involvement of family-unit caregiver roles in such areas as financial contribution, housekeeping, childcare, child socialization, recreation, kinship (maintaining contact with family members), and therapeutic administration (meeting family member affective needs).

“Home Care Nursing Practice: Concepts and Application” by Robyn Rice
from Home Care Nursing Practice: Concepts and Application
by Robyn Rice
Mosby Elsevier, 2006

The home care nurse may need to assist patients of multiple age groups to learn selfcare and assist caregivers to support patients’ efforts or actively participate in diabetes management.

“Clinical Drug Therapy for Canadian Practice” by Kathleen Marion Brophy, Heather Scarlett-Ferguson, Karen S. Webber, Anne Collins Abrams, Carol Barnett Lammon
from Clinical Drug Therapy for Canadian Practice
by Kathleen Marion Brophy, Heather Scarlett-Ferguson, et. al.
Wolters Kluwer Health/Lippincott Williams & Wilkins, 2010

Most caregivers are involved in coordinating health and allied health care and taking people with IDD to and from appointments.

“Health Care for People with Intellectual and Developmental Disabilities across the Lifespan” by I. Leslie Rubin, Joav Merrick, Donald E. Greydanus, Dilip R. Patel
from Health Care for People with Intellectual and Developmental Disabilities across the Lifespan
by I. Leslie Rubin, Joav Merrick, et. al.
Springer International Publishing, 2016

Caregivers are individuals who provide home-based, uncompensated care including assistance with activities of daily living (e.g., eating, bathing, dressing) and the performance of medical and nursing tasks (e.g., administering medication, changing bandages).

“Abeloff's Clinical Oncology E-Book” by John E. Niederhuber, James O. Armitage, James H Doroshow, Michael B. Kastan, Joel E. Tepper
from Abeloff’s Clinical Oncology E-Book
by John E. Niederhuber, James O. Armitage, et. al.
Elsevier Health Sciences, 2019

First, there is direct caring for the person, which includes physical care (e.g., feeding, bathing, grooming), emotional care (e.g., listening, talking, offering reassurance), and services to help people meet their physical and emotional needs (e.g., shopping for food, driving to appointments, going on outings).

“Forced to Care: Coercion and Caregiving in America” by Evelyn Nakano Glenn
from Forced to Care: Coercion and Caregiving in America
by Evelyn Nakano Glenn
Harvard University Press, 2010

Home Care • Assess the client and caregiver at every visit for the quality of their relationship, and for the quality and safety of the care provided.

“Mosby's Guide to Nursing Diagnosis E-Book” by Gail B. Ladwig, Betty J. Ackley, Mary Beth Makic
from Mosby’s Guide to Nursing Diagnosis E-Book
by Gail B. Ladwig, Betty J. Ackley, Mary Beth Makic
Elsevier Health Sciences, 2019

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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26 comments

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  • Being a willing caregiver to my wife, ( of 48 years) diagnosed with AD i feel that after 6 months I am becoming a Jekyll and Hyde having to live in two different worlds in real time. Now I am at the stage of exhaustion and losing interest in trying to slow the progression. Being totally exhausted each day, and having to plan for the tomorrows, along with producing meals, and still running our business, my main worry is that I will not be around to give her the love and care she needs as she progresses.

  • Anger, resentment, and frustration are conditions of caregiving. It doesn’t mean we don’t love those to whom we provide care; we have to recognize that these emotions are perfectly normal. Dedicating time to ourselves helps mitigate these feelings.

  • What about the daughter…the caregiver to their parent. What about, that, plus the fact the other 2 siblings abandoned her.
    Why is there a focus on a spouse as caregiver.
    I felt so alone and isolated, nobody understands how hard it was.

  • Caregiving kills the caregiver way to early. Its absolutely not right for a married couple taking care of wifes grandmother because other family is nonexistent. It’s not right to give up your house, life and putting marriage on hold to move in with grandma who can still physically do things but is used to things always being done by grandpa who passed. I feel so alone and worried about wifes wellbeing. We live to serve grandma and no longer live for us anymore. I’m tired of the people who get to live their own life in their own house say you’re doing a good thing and it will be alright. It’s a sentence to servitude and absolutely wears you down mentally and financially. I’m working to keep her retirement lifestyle going by using our future retirement. Just so sad for our life and what it has become.

  • Every emergency response system has a “BUTTON.”  Don’t be fooled by old technology that leaves you stranded when you need help in an emergency. The ECG Alert System provides a comprehensive monitoring system that protects the user by advanced technology that help the users even if they can’t press a “BUTTON.”

    If you would like to learn how to protect yourself or a loved one from the consequences of poor planning, contact Shane Ownbey at 801.554.4142. He is the area rep for Eastern Washington, but would assist you regardless of where you are in the USA! http://www.electroniccaregiver.com 

  • 30 yrs old and took care of both my grandparents alone until they both passed last year. Dad has had ALZ 5 years. I gave up opportunities and relationships. I loved them dearly and do not regret it, but i feel very lost and lonely. Lost all my friends in the process. I feel old.

  • for others who believe that a care giver should swallow there feelings,to me that’s just an easy way to distance them selves from your reality un till its becomes there turn.,,,,,

  • “…words are the property of all alike, whereas such deeds as these belong only to Our loved ones. Strive then with heart and soul to distinguish yourselves by your deeds.” Baha’u’llah, Baha’i Faith

  • I think this talk is really good because mostly when society talks about caregivers it’s about people caring for elderly relatives or an elderly caring for the spouse it’s very rare to hear about how it is for middle aged or young couples caring for each other and there are a whole other set of issues.

  • It’s been 10 days since I’ve been a caregiver to my mom who broke her arm & had surgery and I can’t imagine what other ppl feel who have been doing it for years. As an introvert who needs time for herself I feel like I’m losing my sense of self everyday slowly. I’m not complaining & I wouldn’t want anyone else to care for my mom but my God I feel so stressed out at the end of the day. I’m sleep deprived & hardly have time for myself or to pursue the things I love. Even though the situation is temporary but I now truly feel for caregivers.

  • Care givers die a slow and painful death. All the time waiting that someone will rescue them one day, but destiny kill them every second. It’s really tough to get through this. I have been going through struggles, responsibilities, pressure all my life and ended up in care giver. My whole life has been stopped and I don’t what how long I will carry on. I have lost all I had and I always want to do so much. Life is miserable.

  • So what should a care giver do if they’re caring for a person, and the family and patient expects you to do stuff that you’re not supposed to do? How can a care giver defend themselves without losing their job?

  • I just made a video about caregiver burnout, I coach women dealing with burnout: @cjoA
    It’s really helpful to meditate and do relaxation techniques to be
    able to cope with caring for elder’s especially with dementia. I had to deal with this myself. It’s awful.

  • Thank you Frances, for your encouragement word’s and have a deeper understanding concerning a medical condition issues in my family… Challenges… Yes! It’s so true how direct main points and agree what my partner Leonzio.Travelz������ true facts he said too me his teaching, make a determined decision to draw closer too him every to and enjoy every day.. My comment is to realise the critical for making progress in all relationships including families struggling with motivation or discipline in this areas of well-being (health wise) to different age levels…. To study & be encourage too look into study plans we have, challenging, which can help me make this a daily habit….Tool boxz on aboard… So true indeed…
    Supplication with thanksgiving…We don’t have to be weighed down by Anxiety, worry or fearful thoughts.. Is our instruction manual like a road map… Yes A life changing power.. Wisdom.. Encouragement, comfort.. If it isn’t a specific answer to a particular or problem, we find life principles that lead uz to it..
    Wife Betty Rangiwai������Aotearoa Warrior Waihine Toa.

  • My 55 year old husband who I have been married to for 33 yrs.had a major stroke in 2017 nd I brought him home because that just happen to be my line of work.Almost two years later I am at my wits end.I can handle the physical but the mental.OMG

  • 4 yrs in to demenia my husband is horrible,but nice to others,but not me,but he glady excepts everything i do for him,what causes the selfiousness?what cause this? I’m not going to make it I hate to see the way he will be even 2 yrs from now,any suggestions out there?

  • When my father fell ill, my mother did not want to take care of him! He was the best husband for 52 years and she simply did not want to take care of him. I became his main caregiver.

  • Many thanks for your important work regarding caregiving. This is clear,practical and scientific information. It is also very timely as I’m caring for my husband with terminal brain cancer. As a psychologist I know your strategies work. Day to day thou I often forget to do them.I’ll start each day reminding myself now.

  • We had the misfortune to go through that with my mother who passed away and my grandmother with dementia. It feels like a never ending nightmare:(

  • I feel like running away right now,I feel cheated,really cheated,It wouldnt be this way if my husband hadnt changed so badlym he lies and lies on me, he blames me for his demenia he hits me attacks me with screaming,and we are only 4 yrs into the onset of the dementia he is only 61 help?

  • What about daycare providers and the stress we feel? We get paid but that does not negate the stress of dealing with children and their families. I am tired of this only addressing caregiving for a family member. The symptoms are the same and abuse is happening because of it.

  • im a state care provider. take care of terminally ill and fully disabled and it is very hard but rewarding. been fighting depression over 16 years and very high stress. it is really hard cause you become close to the person you’re caring for then they pass. something needs to be done though. care providers are highly under paid. no matter what though, this is my calling. helping ppl that have noone and doing egerything i can to keep them home and out of a hospital and a home. one of many things i learned over the years is there is noone that has more fight and spirit than a person fighting/dying from cancer. i can handle my own but it would be nice if were paid more than $10 hr and have health insurance.

  • Im there too caring for my husband of 46 years with Parkinsons…im 10 years in in this care…im exhausted i need a lot more than 15 mins…people tell me take care of yourself and im like when? 15 mins aint gonna do it

  • America’s most advanced caregiving technology that provides life safety monitoring for the chronically ill, disabled, and aging.

    This product saves lives!

    If you have questions about the Electronic Caregiver please feel free to contact me at 801.554.4142. I am the area rep for Eastern Washington, but would assist you regardless of where you are in the US. http://www.electroniccaregiver.com 

  • Diabetic Emergencies!!!

    More than 20 million people in the United States have diabetes, with an estimated six million people being unaware they have it. Over seventy million Americans are considered pre-diabetics. Every day we deal with emergencies for diabetics that come on suddenly, and unexpectedly. Diet, distractions and inconsistent routines can sneak up and steal a family member away if we’re not careful. The numerous side effects and complications associated with diabetes such as neuropathy, leads to frequent fall injuries, head traumas and household accidents. 

    The Electronic Caregiver saves lives for those with diabetes day after day! Our clients are always grateful for the relationship and care we provide. It is often difficult for people to ask for help, or admit vulnerability, and that simple psychological road blocks leads to millions of avoidable mortalities each decade. To truly and repeatedly save lives requires that each of us urge and insist that those we love realize the more they have, the more they have to lose. A $1.67 for wonderful and fulfilling peace of mind and comprehensive back up protection, is the only way to live! 

    Here’s some additional tips to manage diabetics and reduce emergencies, and some facts you should know if someone you love is living with the disease. To prevent diabetic emergencies is to effectively manage the disease through making health food choices, exercise and frequently checking blood glucose levels.

    Diabetics may experience life-threatening emergencies from too much or too little insulin in their bodies. Too much insulin can cause a low sugar level (hypoglycemia), which can lead to insulin shock. Not enough insulin can cause a high level of sugar (hyperglycemia), which can cause a diabetic coma. 

    Symptoms of insulin shock include:

    • Weakness, drowsiness
    • Rapid pulse
    • Fast breathing
    • Pale, sweaty skin
    • Headache, trembling
    • Odorless breath
    • Numbness in hands or feet
    • Hunger

    Symptoms of diabetic coma include:

    • Weak and rapid pulse
    • Nausea
    • Deep, sighing breaths
    • Unsteady gait
    • Confusion
    • Flushed, warm, dry skin
    • Odor of nail polish or sweet apple
    • Drowsiness, gradual loss of consciousness

    First aid for both conditions is the same:

    • If the person is unconscious or unresponsive, use the Electronic Caregiver system to summon emergency responders immediately. The service knows about the health condition, the address, others to notify, and physicians contact information and preferred hospital. 
    • If an unconscious person exhibits life-threatening conditions, place the person horizontally on a flat surface, check breathing, pulse and circulation, and administer CPR while waiting for professional medical assistance
    • If the person is conscious, alert and can assess the situation, assist him or her with getting sugar or necessary prescription medication.
    • If the person appears confused or disoriented, give him or her something to eat or drink and seek immediate medical assistance.

    While you’re administering hands-on support for your loved one, having our certified EMTs handling paramedic notification, alerting other health professionals, and keeping you updated until the help arrives at your loved ones side, really places your mind and heart at ease. Our automatic hands-free two way communication console works wonders and our operators feel like guardian angels during a crises. Our medication management solution usually makes sure these types of emergencies don’t occur in the first place, but if they do, help is one the way. Our system will remind diabetics to take medications, inject insulin, check blood sugar and more! 

    Please help me spread the word. We all have loved ones, neighbors and friends dealing with age, loss of agility, cardiovascular disease, diabetes, cancer, respiratory disorders, stroke recovery and more. Those at higher risk need us most and you can be the shepherd of good will and a life altering, life saving intervention by helping me demonstrate our system to them. Once you experience the benefit of knowing you helped save a life, you’ll carry that endearing event in your heart for all the years to come, and you’ll want to help me save more. 

    Please click on my youtube link and watch this quick reenactment of a sister dealing with her diabetic sister. It’ll give you chills. Watch closely. 

    Care for Caregivers

  • Cristol, so happy I was able to finally able to locate and watch your TedTalk. Wow, I had no idea about your family history. You did a great job delivering your message and thankfully I had a box of Kleenex close by while watching your talk. Tell Jim hi for me.