I Understand the Discomfort of Alzheimer s, however i Also Be aware of Love

 

Ed Sheeran Afire Love [Official]

Video taken from the channel: Ed Sheeran


 

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The Longest Loss: Alzheimers Disease and Dementia

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Episode #6 I wasn’t expecting this today. It turned out to be the worst day of my life

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Why We May Already Have a Cure for Alzheimer’s Disease | Wade Self | TEDxMarquetteHighSchool

Video taken from the channel: TEDx Talks


 

The Last Stage of Alzheimer’s: What You Need to Know | Brain Talks | Being Patient

Video taken from the channel: Being Patient Alzheimer’s


I know the pain of losing your mom to Alzheimer’s. But I also know the love—the love and bond between a mother and daughter. It’s a. I know the pain of losing a parent to Alzheimer’s. I know the pain of grieving the loss of someone you love before they even die.

I know the pain of losing more and more of your mom every day. I know the pain of trying to learn and. Also known as Sundowner’s Syndrome, the Alzheimer’s patient becomes enraged late in the day resulting in temper tantrums that rival a two-year-old. Hammond, C. (2018).

Alzheimer’s: When. People at the end stages of Alzheimer’s disease are commonly afflicted with pain and suffering. Communicating this pain is a struggle for many of these patients, caretakers, and loved ones. Not only does the patient have to deal with the physical and mental deterioration accompanying dementia, but that person is often dealing with chronic pain as well. It is important to remember that people with dementia feel pain, just like everyone else.

Major causes of pain often stem from immobility, arthritis, infections or a combination of conditions, referred to as comorbidities. A person who has constant pain needs regular pain medication to control it and be comfortable. Pain in dementia. People with dementia often experience several co-morbid conditions at the same time, but there is widespread evidence that untreated pain in this group is common (Scherder et al 2009) and that they often have inequitable access to effective pain assessment and management.Retrospective interviews with relatives and carers indicated that significantly more dementia. Alzheimer’s patients feel pain but because it’s hard for them to tell anyone about it, their pain is undertreated, say Australian researchers.

While dementia itself does not typically cause physical pain, there are often other conditions in people with dementia that do cause pain. The majority of dementia cases are in older adults, and this age group carries a high risk of osteoarthritis, urinary tract infections, falls, and pressure sores, all of which can cause significant pain. She has suffered from ostoarthritis for 11 years and, more recently, from osteoporosis as well. She tolerated the pain with difficulty before she started showing symptoms of Alzheimer’s two years ago.

I know she was in great pain because she often talked about it and was listless and uninterested in life. You know how frustrating and heartbreaking dementia symptoms are from the point of view of a caregiver. You know the pain of slowly seeing a loved one slip away.

List of related literature:

We know, all of us, when we no longer love, that forgetfulness, that even a vague memory do not cause us so much suffering as an ill-starred love.

“Delphi Complete Works of Marcel Proust (Illustrated)” by Marcel Proust
from Delphi Complete Works of Marcel Proust (Illustrated)
by Marcel Proust
Delphi Classics, 2013

I used to think Alzheimer’s was hopeless—it still is, he may some day have to go to a nursing home, but I have so much hope because we can be together now and have some happy times.

“Transitions Theory: Middle Range and Situation Specific Theories in Nursing Research and Practice” by Afaf I. Meleis, PhD, DrPS (hon), FAAN
from Transitions Theory: Middle Range and Situation Specific Theories in Nursing Research and Practice
by Afaf I. Meleis, PhD, DrPS (hon), FAAN
Springer Publishing Company, 2010

Most people will agree that there is no greater test for unconditional love than having a loved one with Alzheimers.

“On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss” by Elisabeth Kübler-Ross, David Kessler
from On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss
by Elisabeth Kübler-Ross, David Kessler
Scribner, 2005

The worst is that all these misfortunes endlessly aggravate my greatest pain, and that the more desolate your memory makes me the more I love to think of you.

“La Nouvelle HŽlo•se: Julie, Or the New Eloise” by Jean-Jacques Rousseau, Judith H. McDowell
from La Nouvelle HŽlo•se: Julie, Or the New Eloise
by Jean-Jacques Rousseau, Judith H. McDowell
Pennsylvania State University Press, 2010

And then it came to me — the one good thing about Alzheimer’s disease is that you finally forget all the bad things in your life.

“Anger Management For Dummies” by W. Doyle Gentry
from Anger Management For Dummies
by W. Doyle Gentry
Wiley, 2011

It can be devastating to watch a loved one suffer from Alzheimer’s for many years.

“The End of Illness” by David B. Agus
from The End of Illness
by David B. Agus
Free Press, 2012

But I will never forget the way my mother helped my father put on his socks and shoes before the Alzheimer’s robbed him of his ability to walk.

“More Beautiful Than Before” by Steve Leder
from More Beautiful Than Before
by Steve Leder
Hay House, 2017

It is particularly painful when the person with Alzheimer’s disease or related disorder no longer recognizes a family member.

“Gerontologic Nursing E-Book” by Sue E. Meiner, Jennifer J. Yeager
from Gerontologic Nursing E-Book
by Sue E. Meiner, Jennifer J. Yeager
Elsevier Health Sciences, 2018

And I love you rather as if we had been nursed together, nourished by this same memory, and nourished by this same death.

“Derrida: A Biography” by Benoit Peeters
from Derrida: A Biography
by Benoit Peeters
Wiley, 2013

Yet ask anyone who cares about someone with Alzheimer’s or another dementia if their heart isn’t aching.

“Nonviolent Communication: A Language of Life: Life-Changing Tools for Healthy Relationships” by Marshall B. Rosenberg, Deepak Chopra
from Nonviolent Communication: A Language of Life: Life-Changing Tools for Healthy Relationships
by Marshall B. Rosenberg, Deepak Chopra
PuddleDancer Press, 2015

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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27 comments

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  • I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease, and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that have any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different option to into. Never make your own success path a secret. There should be no shame. Contact Dr Rohan with [email protected] gmail.com, It may also help you too.

  • Sadly, your momma not remembering who you are because her memories were being destroyed by a god awful disease must of been absolutely devastatingly crushing, but your momma was still able to point out your pain and she knew it wasn’t your sinuses. She reach out to touch your arm and comfort you, give you multiple hugs before you left and without prompting felt compelled to tell you how much she loved you with the purest emotion she could express. She may have not been able to express that you were her son (she even called you her daughter and you look nothing like a female), but she knew you were somebody important and that she didn’t want to lose.

    Here is something that you might need a little reminding of you knew who she was and she raised a good man. She could see that every time she looked you in the eyes and obviously trusted you impeccably. She never once got upset or spoke to you like you were a stranger. Somewhere she struggled to remember or express herself, and it’s weird how we all forget words we have used for 30+ years, but she didn’t forget the word love. Your momma loved you very much. It’s obvious you love your momma very much. Because of you the world is a better place.

  • My 88 year old mother in-law has late stage Alzheimer’s. Last year she couldn’t remember us. She calls my wife different names. She would see people who weren’t there. The hallucinations only got worse and she was always hysterical. She can’t take care of herself at all now. Presently she has lost the ability to speak and refuses to eat. She barely walks. We see she has respiratory problems. Her house is kept at 85 degrees F and she wears three sweaters. Her weight loss has been substantial. She’s 5’9 and her weight is down to 100 pounds. Her doctor told us her weight loss will only increase.

  • With my dad, at the end, we told our dad that it was okay for him to go. We told him that mom would be fine. We told him we loved him, but go do what he needed to do. He passed after one week.

  • What I love about this song is the unique perspective under which he sings about his grandparents’ love. We usually don’t think about it in terms of passion and fire, but he was enough sensible to understand that such a love story was born and risen through flames. And even though people get old, and the way they care and feel about each others inevitably changes, they will always cherish how alive they felt together when they were young, beautiful and filled with desire.

  • I watched this when it was first posted and for some reason it’s popped into my feed again. Thank you for sharing your experience with this horrible disease. I’m sorry for what you and your family went through.

  • I revoked mom’s hospice which only took seconds, so they feeding tube can be put in. Her regular Medicare paid for that. Once in-which is only a ten minute surgery with a local-she tolerated the tube feed and water flushes well so she got readmitted to hospice on discharge. That took only seconds.

  • My fathers last stage lasted just a few weeks. He also had early onset. From the time of his diagnosis until he passed was exactly five years. The same thing also happened with my father and the morphine. His hospice bed was delivered to his home, he got in it that night, and never got out. As soon as he was given the morphine he was out, and the death rattle and “o” breathing began. I remember hospice having us take suckers and rub them in his mouth to help with the dryness from the “o” breathing. I had one hand on his heart, and the other holding one of his hands when his heart stopped. I’m just grateful I was able to get home and be with him those last six hours I got. He was there with me when I took my first breath, and I was there with him when he took his last.

  • there are many instances where a person nearing death from Alzheimer’s becomes able to speak and carry on short significant conversations, they also recognize people. This means we don’t lose “our memory”. I took care of my father who did not speak but we communicated with hand squeezes, smile, tears, eyes. I have Alzheimer’s now and was unable to get out of bed and dressed 4 years ago, I started cbd oil and am walking dog, cook food some days. It slowed my decline? People tell me I don’t have it because I “talk”. For me it feels like living with a different set of eyes, I feel more connected to earth, and I have to move soon. I also helped my Dad’s dry mouth with a soft cloth wet on his tongue. The only thing that ever feels “thirsty” is the tongue. Both parents no food no water peaceful deaths by end of 5 days. I hope I’m that lucky but whatever.
    appreciate these women talking about the end of life and comfort, how it matters.

  • My granny died 4 days ago and i was so shocked that i couldn’t cry at all, but this song made me feel everything i didn’t this last days, what a beautiful song.

  • This song and “Clover Cage Mirror Mirror” are the two songs keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better. We are in this together…….

  • ⚘��Such a BEAUTIFUL song��⚘
    ��In Memory of��
    ��Your family would have loved��
    ⚘��THIS special Tribute ED��⚘
    ��from������covid19��sept2020��xx

  • This is so hard to watch, my heart ache for you. My son decided he does not want me in his life. I miss him so much. You are a son anyone will be proud of

  • What is wrong with suicide or euthanasia for these patients? Who would want to go through such misery and wind up with the same inevitable end, death. I don’t know why it’s so difficult to broach this topic. It is cowardice.

  • I just came across this page. Ive been an Alzheimer’s caregiver for 20plus years. But son ur strength n luv is beautiful. Ur mother is gone but ur angel is still here

  • That had to be the most difficult thing when your mother does not recognize that you are her son. She knows that you are someone close to her, but doesn’t remember that she has a son. Your mom was such a beautiful person. I don’t know what I will do when the day comes that my stepfather doesn’t remember my mom, or us kids. He calls me “Knothead,” and I call him “Ol Shmuck,” after the movie, Grumpy old men. Dementia is such a heartless disease. To watch it progress on someone that you love is the saddest thing ever.

  • Bro. really respectful you doing a good job as she take care of you in your childhood… I love the way how you treat her with patience ��

  • Once Morphine begins and self sustaining medication is discontinued, it is the beginning of comfort care. I run 4 Assisted Living facilities.

  • Thanks for you for your discussion. My mother died last Tuesday morning 12 February from this disease. My lovely mum died in exactly the same way as Jasja Kotterrnman described her mum’s decline. She lost her cognitive reasoning, i.e. here ability to play bridge, then scrabble, watch tv, first.Then her mobilty, followed by her speech. Over the space of two months. Her hearing was there till the end. And her sense of touch. We held her hand and gave her losts of kisses right through the night till the end. She declined in the space of three months.

    The one thing I find hard to understand is in comparison with others ladies, her friends who have Alzheimer’s, my mother has gone so quickly. I kept her in her home and we visited a care home near by for about three years. These are others ladies, her friends who have this disease have settled on a plateau of forgetfulness, and slight cognitive imparement. That is, they think I am the Care Home owner, or one of them thinks I am her husband, another asks questions at the same time every afternoon, she is in the Sundowning phase. “Who is taking me upstsirs to my bed? She repats at 3.30 pm every day.
    What is keeping them going where my mother has declined so rapidly? Is it their medicine? Is it they get better care in the Care Home?

  • I got a feeding tube put in my mom because it can take two to three weeks to die slowly of dehydration, even when hospice is giving them drugs. They cannot overdose them because that would be assisted suicide which is illegal. Despite all the so-called evidence-base research that says don’t do a feeding tube with someone end-stage Alzheimer’s-mom is doing better physically, but her Alzheimer’s is getting worse..as expected. It gave her some more life..hey we only have one mom and that’s that so why not. Mom is putting on weight from tube feeding, and no longer has to worry about dehydration.

  • I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as a caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that has any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different options to into. Never make your own success path a secret. There should be no shame. Contact Dr. Rohan with [email protected] gmail.com, It may also help you too.

  • Even in the midst of dementia she knows his heart is breaking when they are discussing who he is to her. She tells him that he can cry in front of her. Mommas always know.

  • This is the only video I’ve ever balled my eyes out to. This hit on a whole new level of feeling. I’m so sorry joe and I feel your deepest pains

  • So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I’ve been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained, working with different physicians across the country with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don’t stop until you get it. With Homeocure Worldwide treatment, there is hope, don’t give up! contact them on their youtube channel for more info

  • Your interview with Teepa Snow was a great intelligent start—she’s the best—and you might also greatly profit from interviewing Katherine Mannix who wrote With the End in Mind, a revolutionary book that discusses what happens at death. I’ve read all the books, or almost, and this one should be read by anyone who’s not seen death up close before and either fears or dreads it in themselves or others. It also very correctly addresses what hospice is about and—contrary to what many of your commenters think about it below—what it is not.

  • Now you know what it’s like to be a new mother oh, Joey. Without the hospital and all the crying and pooping. This is almost exactly how she had to raise you, now it is your turn to raise her, I hope it is

  • Finding out that Buffy the Vampire Slayer inspired this song just made this 10x better, and 100x sadder. The piano song in the background is a sample of the song “Remembering Jenny” from the episode “Passion”. OUCH, MY HEART