Official audio for my song ‘Afire Love’, taken from my album ‘x’. Buy the album via iTunes here: http://smarturl.it/x-itunesdlx. Subscribe to my channel: http://bit.ly/SubscribeToEdSheeran. Hear the rest of the album: http://bit.ly/XOfficialPlaylist. Buy CD Boxset & Vinyl here: http://smarturl.it/x-album. Buy on Google Play: http://smarturl.it/x-googleplaydlx. Follow me on…. Facebook: http://www.facebook.com/EdSheeranMusic. Twitter: http://twitter.com/edsheeran. Instagram: http://instagram.com/teddysphotos. Official Website: http://edsheeran.com
Nearly 60 percent of caregivers who care for someone with Alzheimer’s disease or another dementia rate the emotional stress of caregiving as high or very high. A new Alzheimer’s diagnosis can bring with it a whirlwind of stress, confusion and anxiety about what to expect as the disease progresses. This web seminar will offer a how-to look at caring for someone with Alzheimer’s or other dementias. The emphasis will be on the care and dignity of the individual, to help them live a more fulfilling life. It will also detail a person-centered care approach to help successfully manage behaviors and positively engage the individual with the disease. From June 2017
The 22nd program in HFA’s award-winning Living with Grief series explores the many losses and nearly nonstop grieving by people with dementia and those around them, that often begins at time of diagnosis and continues, unsupported, for years. The program features a combination of interviews with patients, caregivers and clinicians with discussion by a panel of experts. For more information on the program, please go hospicefoundation.org
Our host, Mary Crowe, interviews Care Dimensions’ IT Support Services Supervisor Hope Drysdale about the challenges she and her family experienced caring for her father who had Alzheimer’s Disease at end of life and how hospice was able to help the whole family.. https://youtu.be/Utpijyxvwnk
Mother and Son’s Journey with Dementia The day started out good until I started asking my Mother questions. One question led to another until I heard the words that no child ever wants to hear.. When I started this video series I made a commitment to my Mother, caregivers and other people suffering from Dementia that we would make a difference and show the world the suffering that’s involved with this disease. I plan on taking this video series all the way to the end.. The people that are suffering and have suffered from Dementia deserve that everyone know the pain and suffering they have been through.. I know I’m not the first child to go through this with their Mother or Father and I won’t be the last. I now know the loss and pain they felt when this horrible day finally came.. This day I will never forget.. We hope everyone will learn more about Dementia during this journey.. Watch All Episodes. https://www.youtube.com/c/joejoe. Subscribe. http://bit.ly/SubToJoeJoe. On Facebook. https://www.facebook.com/groups/MollyJoey/. Instagram https://instagram.com/mollysmovement/. Mailing Address: Molly Daley. 6724 Perimeter Loop Rd. PMB 122, Dublin, OH 43017. Email. [email protected]
In this inspiring talk, Dr. Wade Self details the information we know about Alzheimer’s Disease along with why drugs that have failed clinical trials might still work. Dr. Self also describes the significant advancements made in diagnostics and in measuring the state of the disease. Wade has dedicated the past 10 years to research focused on developing new treatments for. neurological diseases. Wade received his PhD in Neuroscience from Washington University in St. Louis. School of Medicine, where his research focused on improving clinical trial design for amyotrophic lateral. sclerosis (Lou Gehrig’s Disease). Wade is now a scientist at Abbvie Inc., where he helps develop new. treatments for Alzheimer’s Disease. As Wade walks into the laboratory each day, he thinks about the. incredible individuals who courageously endure suffering at the hands of neurological disorders. He. fights for them every day, and will continue to do so throughout his scientific career. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx
Being Patient talks to Dr. Liz Sampson, an expert in end-life-care, and Jasja Kotterman, who lost her mother to Alzheimer’s, about what to expect in the last stage of Alzheimer’s and the best way to care for a loved one.. Our mission is to give people impacted by dementia a better resource and connection to experts at the forefront of research. Our founder Deborah Kan funded Being Patient solely with her own savings to understand if people would value such a resource. Our audience has grown so rapidly, we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient’s editorial costs. We employ a team of journalists to give you the best possible information on dementia and brain health without bias.. To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatientalzheimers/. For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
I know the pain of losing your mom to Alzheimer’s. But I also know the love—the love and bond between a mother and daughter. It’s a. I know the pain of losing a parent to Alzheimer’s. I know the pain of grieving the loss of someone you love before they even die.
I know the pain of losing more and more of your mom every day. I know the pain of trying to learn and. Also known as Sundowner’s Syndrome, the Alzheimer’s patient becomes enraged late in the day resulting in temper tantrums that rival a two-year-old. Hammond, C. (2018).
Alzheimer’s: When. People at the end stages of Alzheimer’s disease are commonly afflicted with pain and suffering. Communicating this pain is a struggle for many of these patients, caretakers, and loved ones. Not only does the patient have to deal with the physical and mental deterioration accompanying dementia, but that person is often dealing with chronic pain as well. It is important to remember that people with dementia feel pain, just like everyone else.
Major causes of pain often stem from immobility, arthritis, infections or a combination of conditions, referred to as comorbidities. A person who has constant pain needs regular pain medication to control it and be comfortable. Pain in dementia. People with dementia often experience several co-morbid conditions at the same time, but there is widespread evidence that untreated pain in this group is common (Scherder et al 2009) and that they often have inequitable access to effective pain assessment and management.Retrospective interviews with relatives and carers indicated that significantly more dementia. Alzheimer’s patients feel pain but because it’s hard for them to tell anyone about it, their pain is undertreated, say Australian researchers.
While dementia itself does not typically cause physical pain, there are often other conditions in people with dementia that do cause pain. The majority of dementia cases are in older adults, and this age group carries a high risk of osteoarthritis, urinary tract infections, falls, and pressure sores, all of which can cause significant pain. She has suffered from ostoarthritis for 11 years and, more recently, from osteoporosis as well. She tolerated the pain with difficulty before she started showing symptoms of Alzheimer’s two years ago.
I know she was in great pain because she often talked about it and was listless and uninterested in life. You know how frustrating and heartbreaking dementia symptoms are from the point of view of a caregiver. You know the pain of slowly seeing a loved one slip away.
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We know, all of us, when we no longer love, that forgetfulness, that even a vague memory do not cause us so much suffering as an ill-starred love.
I used to think Alzheimer’s was hopeless—it still is, he may some day have to go to a nursing home, but I have so much hope because we can be together now and have some happy times.
The worst is that all these misfortunes endlessly aggravate my greatest pain, and that the more desolate your memory makes me the more I love to think of you.
Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.
I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease, and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that have any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different option to into. Never make your own success path a secret. There should be no shame. Contact Dr Rohan with [email protected] gmail.com, It may also help you too.
Sadly, your momma not remembering who you are because her memories were being destroyed by a god awful disease must of been absolutely devastatingly crushing, but your momma was still able to point out your pain and she knew it wasn’t your sinuses. She reach out to touch your arm and comfort you, give you multiple hugs before you left and without prompting felt compelled to tell you how much she loved you with the purest emotion she could express. She may have not been able to express that you were her son (she even called you her daughter and you look nothing like a female), but she knew you were somebody important and that she didn’t want to lose.
Here is something that you might need a little reminding of you knew who she was and she raised a good man. She could see that every time she looked you in the eyes and obviously trusted you impeccably. She never once got upset or spoke to you like you were a stranger. Somewhere she struggled to remember or express herself, and it’s weird how we all forget words we have used for 30+ years, but she didn’t forget the word love. Your momma loved you very much. It’s obvious you love your momma very much. Because of you the world is a better place.
My 88 year old mother in-law has late stage Alzheimer’s. Last year she couldn’t remember us. She calls my wife different names. She would see people who weren’t there. The hallucinations only got worse and she was always hysterical. She can’t take care of herself at all now. Presently she has lost the ability to speak and refuses to eat. She barely walks. We see she has respiratory problems. Her house is kept at 85 degrees F and she wears three sweaters. Her weight loss has been substantial. She’s 5’9 and her weight is down to 100 pounds. Her doctor told us her weight loss will only increase.
With my dad, at the end, we told our dad that it was okay for him to go. We told him that mom would be fine. We told him we loved him, but go do what he needed to do. He passed after one week.
What I love about this song is the unique perspective under which he sings about his grandparents’ love. We usually don’t think about it in terms of passion and fire, but he was enough sensible to understand that such a love story was born and risen through flames. And even though people get old, and the way they care and feel about each others inevitably changes, they will always cherish how alive they felt together when they were young, beautiful and filled with desire.
I watched this when it was first posted and for some reason it’s popped into my feed again. Thank you for sharing your experience with this horrible disease. I’m sorry for what you and your family went through.
I revoked mom’s hospice which only took seconds, so they feeding tube can be put in. Her regular Medicare paid for that. Once in-which is only a ten minute surgery with a local-she tolerated the tube feed and water flushes well so she got readmitted to hospice on discharge. That took only seconds.
My fathers last stage lasted just a few weeks. He also had early onset. From the time of his diagnosis until he passed was exactly five years. The same thing also happened with my father and the morphine. His hospice bed was delivered to his home, he got in it that night, and never got out. As soon as he was given the morphine he was out, and the death rattle and “o” breathing began. I remember hospice having us take suckers and rub them in his mouth to help with the dryness from the “o” breathing. I had one hand on his heart, and the other holding one of his hands when his heart stopped. I’m just grateful I was able to get home and be with him those last six hours I got. He was there with me when I took my first breath, and I was there with him when he took his last.
there are many instances where a person nearing death from Alzheimer’s becomes able to speak and carry on short significant conversations, they also recognize people. This means we don’t lose “our memory”. I took care of my father who did not speak but we communicated with hand squeezes, smile, tears, eyes. I have Alzheimer’s now and was unable to get out of bed and dressed 4 years ago, I started cbd oil and am walking dog, cook food some days. It slowed my decline? People tell me I don’t have it because I “talk”. For me it feels like living with a different set of eyes, I feel more connected to earth, and I have to move soon. I also helped my Dad’s dry mouth with a soft cloth wet on his tongue. The only thing that ever feels “thirsty” is the tongue. Both parents no food no water peaceful deaths by end of 5 days. I hope I’m that lucky but whatever. appreciate these women talking about the end of life and comfort, how it matters.
My granny died 4 days ago and i was so shocked that i couldn’t cry at all, but this song made me feel everything i didn’t this last days, what a beautiful song.
This song and “Clover Cage Mirror Mirror” are the two songs keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better. We are in this together…….
This is so hard to watch, my heart ache for you. My son decided he does not want me in his life. I miss him so much. You are a son anyone will be proud of
What is wrong with suicide or euthanasia for these patients? Who would want to go through such misery and wind up with the same inevitable end, death. I don’t know why it’s so difficult to broach this topic. It is cowardice.
I just came across this page. Ive been an Alzheimer’s caregiver for 20plus years. But son ur strength n luv is beautiful. Ur mother is gone but ur angel is still here
That had to be the most difficult thing when your mother does not recognize that you are her son. She knows that you are someone close to her, but doesn’t remember that she has a son. Your mom was such a beautiful person. I don’t know what I will do when the day comes that my stepfather doesn’t remember my mom, or us kids. He calls me “Knothead,” and I call him “Ol Shmuck,” after the movie, Grumpy old men. Dementia is such a heartless disease. To watch it progress on someone that you love is the saddest thing ever.
Thanks for you for your discussion. My mother died last Tuesday morning 12 February from this disease. My lovely mum died in exactly the same way as Jasja Kotterrnman described her mum’s decline. She lost her cognitive reasoning, i.e. here ability to play bridge, then scrabble, watch tv, first.Then her mobilty, followed by her speech. Over the space of two months. Her hearing was there till the end. And her sense of touch. We held her hand and gave her losts of kisses right through the night till the end. She declined in the space of three months.
The one thing I find hard to understand is in comparison with others ladies, her friends who have Alzheimer’s, my mother has gone so quickly. I kept her in her home and we visited a care home near by for about three years. These are others ladies, her friends who have this disease have settled on a plateau of forgetfulness, and slight cognitive imparement. That is, they think I am the Care Home owner, or one of them thinks I am her husband, another asks questions at the same time every afternoon, she is in the Sundowning phase. “Who is taking me upstsirs to my bed? She repats at 3.30 pm every day. What is keeping them going where my mother has declined so rapidly? Is it their medicine? Is it they get better care in the Care Home?
I got a feeding tube put in my mom because it can take two to three weeks to die slowly of dehydration, even when hospice is giving them drugs. They cannot overdose them because that would be assisted suicide which is illegal. Despite all the so-called evidence-base research that says don’t do a feeding tube with someone end-stage Alzheimer’s-mom is doing better physically, but her Alzheimer’s is getting worse..as expected. It gave her some more life..hey we only have one mom and that’s that so why not. Mom is putting on weight from tube feeding, and no longer has to worry about dehydration.
I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as a caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that has any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different options to into. Never make your own success path a secret. There should be no shame. Contact Dr. Rohan with [email protected] gmail.com, It may also help you too.
Even in the midst of dementia she knows his heart is breaking when they are discussing who he is to her. She tells him that he can cry in front of her. Mommas always know.
So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I’ve been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained, working with different physicians across the country with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don’t stop until you get it. With Homeocure Worldwide treatment, there is hope, don’t give up! contact them on their youtube channel for more info
Your interview with Teepa Snow was a great intelligent start—she’s the best—and you might also greatly profit from interviewing Katherine Mannix who wrote With the End in Mind, a revolutionary book that discusses what happens at death. I’ve read all the books, or almost, and this one should be read by anyone who’s not seen death up close before and either fears or dreads it in themselves or others. It also very correctly addresses what hospice is about and—contrary to what many of your commenters think about it below—what it is not.
Now you know what it’s like to be a new mother oh, Joey. Without the hospital and all the crying and pooping. This is almost exactly how she had to raise you, now it is your turn to raise her, I hope it is
Finding out that Buffy the Vampire Slayer inspired this song just made this 10x better, and 100x sadder. The piano song in the background is a sample of the song “Remembering Jenny” from the episode “Passion”. OUCH, MY HEART
I’ve dealt w bj with of my grandmother’s having alzheimers. I myself later had to go thru 10 brain surgeries in an 18 month span. It caused alot of dementia like spells where I couldn’t remember my kids names. I knew they belonged to me thou. I just couldn’t remember alot of things. After my teenage kids got over the shock and pain, they’d pull out photo albums and ask questions. Like who is this. If I couldn’t remember they’d tell me. I do remember the shock and pain written on their faces. It tore my heart up. I was trying so hard to remember their names. So I’ve been on both sides. It’s not easy to say the least. We dont want to forget our precious memories made over the years
Your a great son god bless you and your family ����thankyou not everyone can do this you had great respect for your mum my daughter hasn’t spoken to me in 3years and it has broke my heart
This pain you can see in his eyes at 11:40 is just so intense. My grandma had Lew body dementia and died at age 88 I talked to her about a month before she died and the last time she was able to say my name I just couldnt handle how much trouble she had just performing the act of saying my name…. I would never wish this disease on anyone even my worst enemy… For anyone out there that knows someone who is suffering please know you are NOT alone and please do NOT let said victim believe they are alone….
It doesn’t matter who you are to her… just that you’re a kind and loving person. The way she responds to you says that she knows in her heart you are connected… she doesn’t have the words…����
I feel so much for you my man. I’m 15 and my grandma has Alzheimer’s. On my birthday this year she called me the wrong name, she also thought she was my aunt once when I visited her. To see the perseverance this man had on his mother inspires me to someday be this way with my grandma. Thank you
So so so sorry for you That was a painful video to watch!! She sounded so innocent and child-like…My heart hurt for you. May God Bless you for taking such good care of her!
I am so sorry for your loss man. I couldn’t ever imagine the pain that you went through. I myself was raised by my mother and grandparents, I am now starting to see the early signs in my grandmother who is my bestfriend and I cannot ever imagine living without calling my grandma every day after work.
This is a good guy. But it’s driving me crazy that his mother has asked him over and over in so many ways who she is to him and he won’t just be clear and explain to her that she is his mother and he is his son. She has forgotten so much but she knows he is sad. He should be more real with her. He should quit quizzing her and give her the info she so craves. He’s confusing her and making her anxious.
Desr Joey I feel your pain this happen to me with my beloved��Mom while in the hospital with terminal cancer, diabetes & broken hip. For 40 minutes she suffer a “sundowning episode” it was terrible�� she didn’t know who I was��, that she didn’t have kids, didn’t know what the clock or lights where for, she told me “take me to the sea, I want to run far away and never come back, don’t leave me alone”. I was terrified and broken into a million pieces. So, I told her, Mamita you’ll be okay, let’s pray to the Lord Jesus Christ. We pray our Holy Father prayer maybe….30 times and thank God she look at me again with her beautiful Brown eyes that have always light up my soul and My Life��. That’s when I noticed Mom was back����. I revive those moments when I saw you crying and I broke again but this time for you, feeling your pain. Much love to you Joey stay strong & God bless you for being a great son.��
So sad that she’s no longer with us. Shout out to all who are victims of dementia and those who have to experience their loved ones having it. It truly hurts and takes a lot of guts and bravery to deal with. Stay strong man. And R.I.P molly. ��
Have some respect for you mother and let her have her privacy. It’s not about you. My wife suffers with this. I know she would NOT want the world gawking at her. This helps no one. You are very very selfish.
I was this years old when I realized that this song’s beginning sounds exactly like Hardline’s Hot Cherie. https://www.youtube.com/watch?v=GB3yNH-BW94 it’s literally the same tone
Shit when I look at my son I see you Shit after all we been through Never thought it would end like this mess constant stress so I take drugs to suppress the Pain If only we could be together again
And (Allâh says), “We have enjoined on every human being concerning his parents (to be good to them). His mother is worn and wasted in bearing him and it takes her two years to wean him. And give thanks to Me and to your parents. To Me shall be the (ultimate) return (of you all). /////you are agood man
Same thing happend to my grand mother i was a little kid and i loved her so much when i stayed with her alone in the room she paniced all the time she thought i was some stranger who broke in to the house she was calling for help she thought i was gonna hurt her and that always broke my heart so much but once for a second i managed to make her recognize me she was so amazed that it was me that was one of the best feeling i have ever felt i was so happy but sadly this memory lasted for like 20 seconds or so after she forgot everything about me again and started calling for help what a terrible thing to happen to someone.
I believe my mother has been in stage 6 for at least a month. She seems to have rapidly lost “normal” thoughts and connections. She still uses many words although she uses some incorrectly and substitutes for the ones she loses. She also loses train of thought mid sentence or changes track. She calls me “mom”, forgets her children and forgets my father died many years ago.
I suppose my question(s) are: Do the stages speed up when you reach the later stages?
Do the swallowing problems come and go for awhile? My mother periodically has had swallowing problems for the past 5 months where she tells me she just has too much spit and she doesn’t know what to do except wipe her mouth. This happens 1 or 2 times a month then it resolves itself. I thought that the swallowing was very end stage 7 yet she has been having these bouts for a few months.
Hi Joe I know how you felt when you asked your mom who you were and she didn’t know. A month ago, it happened to me that my mother did not know who I was, I reminded you of your YouTube video raw greetings from Belgium I wish you health for my mother❤️����
This song and “Clover Cage On My Mind” are the only two things keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better……………
Holy shit my grandma has the same..the only person she remembered is her dead husband and one of her daughter even tho she have 12 kids..she forgot most of them including my mom,I remembered visiting her 3 years ago and then she keep asking who my mom is and keep searching for her husband..she keep forgetting that he already died over 20 years ago,my mom cried when she can’t remember her even she forget my mom name…that’s why u should enjoy every moment cuz nothing will stay the same in just a year..she died 2 years ago at the age of 92..I know it’s tough..best wishes for you Joe����
Just kill on tell our Government…. Car Crash…. he wrong….They good it’s all over….One more Life innocent Gone….Away Pin down….Yuh Affi…..Somewhere some how
Finally had the courage to listen to this again because this reminds me of grandpa. To those who lost their loved ones, i hope we remember them not with tears in our eyes but with a smile.
My grandma passed away 3 years ago,i remember listening to this while i was in shock for the notice.Then my other grandma passed away the next day and i just couldnt stop listening to this song “whit your body next to mine our hearts will beat as one”,i wished so bad that it could be real,i was on point to suicide.Nowadays its like”anything would be as yesterday but life is there,they wouldnt like to saw u sad and heartbreaking”.
Thank you for sharing…I am helping a neighbor with this and hoping her family will be coming soon for her. So She will be with family…Jean is only in her early 60’s and is wonderful person…
My grandma is in her early stages of dementia and I know one day she won’t remember who I am so this made my cry so hard. Seeing the ones you love most forget who you are is so painful. My condolences go out to this guy.
Wow. It just makes you appreciate what you have that him and I have lost. Who ever watches this video PLEASE respect your mum and dad before it is to late. I am only 13 and I have already lost it. ��
I have a few ideas about her thought processes and I figured I would share. Throughout the video, she has this idea that there are two Joeys. I think she knows that the man she’s talking to is named Joey and she also knows younger Joey from the pictures in her room. She just doesn’t know they are the same person. But I think she comes close.
At 18:02 she asks “Are there two Rosies? Er, twowhat am I trying to say…” She was trying to ask if there are really two Joeys.
At 20:22 she says “I think I had it all mixed up about the two…” then trails off. She is very close to understanding that this Joey and young Joey are the same. But she doesn’t quite get there.
All that aside, this is probably the saddest video I have ever seen. But I’m glad it exists. The way she still cares for him is truly heartwarming.
Joe I know your pain, my dad died of LBD a year ago. We worked side by side for 22 years. We were best friends. You are a good son and should be proud. You were a lighthouse to your mom when she was lost in the fog.
⚘��WOW!! ANYONE ELSE AGREE…How difficult����to write this song & music❓BUT TO SING IT‼O.M.G ������!!Love from Australia������(covid19��aug2020)��stay safe ALL��
I know this isn’t time for jokes but when she asked him about the rose/Rosie whatever and then did the long silent pause and said “What did I ask you?” Reminded me of like when you’re in the middle of a conversation and the edibles hit
All the men watching this know what they felt while seeing this man crying the heart out of himself………. literally when u see a men cry like this u know something really terrible had happened…..in this video i just say a boy crying just a child would after losing his mommy………..GOD BLESS YOU.
This song and “Clover Cage WarCry” are two songs keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better.
Emily I miss you like crazy Shit who would have know you’d have my baby shit I’m crazy so they call me shady but your the only lady I need shit iv lost you so I greave
Saying that she couldn’t go to bed with you crying, rubbing your arm because she knew that you were sad…a Mamma always carrie’s her babies in her heart. Even though this disease is stealing her memories…SHE KNEW…A MAMMA ALWAYS KNOWS.
It’s funny… This video reminds me of one of my favorite aunts. She was so close to me and I even was able to take care of her kids. She passed away last year….. I miss her to death honestly. That plus this song deadass made me cry a couple times.
![Ed Sheeran Afire Love [Official]](https://i.ytimg.com/vi/JznXx1Ns374/hqdefault.jpg "Ed Sheeran Afire Love [Official]")
I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease, and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that have any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different option to into. Never make your own success path a secret. There should be no shame. Contact Dr Rohan with [email protected] gmail.com, It may also help you too.
Sadly, your momma not remembering who you are because her memories were being destroyed by a god awful disease must of been absolutely devastatingly crushing, but your momma was still able to point out your pain and she knew it wasn’t your sinuses. She reach out to touch your arm and comfort you, give you multiple hugs before you left and without prompting felt compelled to tell you how much she loved you with the purest emotion she could express. She may have not been able to express that you were her son (she even called you her daughter and you look nothing like a female), but she knew you were somebody important and that she didn’t want to lose.
Here is something that you might need a little reminding of you knew who she was and she raised a good man. She could see that every time she looked you in the eyes and obviously trusted you impeccably. She never once got upset or spoke to you like you were a stranger. Somewhere she struggled to remember or express herself, and it’s weird how we all forget words we have used for 30+ years, but she didn’t forget the word love. Your momma loved you very much. It’s obvious you love your momma very much. Because of you the world is a better place.
My 88 year old mother in-law has late stage Alzheimer’s. Last year she couldn’t remember us. She calls my wife different names. She would see people who weren’t there. The hallucinations only got worse and she was always hysterical. She can’t take care of herself at all now. Presently she has lost the ability to speak and refuses to eat. She barely walks. We see she has respiratory problems. Her house is kept at 85 degrees F and she wears three sweaters. Her weight loss has been substantial. She’s 5’9 and her weight is down to 100 pounds. Her doctor told us her weight loss will only increase.
With my dad, at the end, we told our dad that it was okay for him to go. We told him that mom would be fine. We told him we loved him, but go do what he needed to do. He passed after one week.
What I love about this song is the unique perspective under which he sings about his grandparents’ love. We usually don’t think about it in terms of passion and fire, but he was enough sensible to understand that such a love story was born and risen through flames. And even though people get old, and the way they care and feel about each others inevitably changes, they will always cherish how alive they felt together when they were young, beautiful and filled with desire.
I watched this when it was first posted and for some reason it’s popped into my feed again. Thank you for sharing your experience with this horrible disease. I’m sorry for what you and your family went through.
I revoked mom’s hospice which only took seconds, so they feeding tube can be put in. Her regular Medicare paid for that. Once in-which is only a ten minute surgery with a local-she tolerated the tube feed and water flushes well so she got readmitted to hospice on discharge. That took only seconds.
My fathers last stage lasted just a few weeks. He also had early onset. From the time of his diagnosis until he passed was exactly five years. The same thing also happened with my father and the morphine. His hospice bed was delivered to his home, he got in it that night, and never got out. As soon as he was given the morphine he was out, and the death rattle and “o” breathing began. I remember hospice having us take suckers and rub them in his mouth to help with the dryness from the “o” breathing. I had one hand on his heart, and the other holding one of his hands when his heart stopped. I’m just grateful I was able to get home and be with him those last six hours I got. He was there with me when I took my first breath, and I was there with him when he took his last.
there are many instances where a person nearing death from Alzheimer’s becomes able to speak and carry on short significant conversations, they also recognize people. This means we don’t lose “our memory”. I took care of my father who did not speak but we communicated with hand squeezes, smile, tears, eyes. I have Alzheimer’s now and was unable to get out of bed and dressed 4 years ago, I started cbd oil and am walking dog, cook food some days. It slowed my decline? People tell me I don’t have it because I “talk”. For me it feels like living with a different set of eyes, I feel more connected to earth, and I have to move soon. I also helped my Dad’s dry mouth with a soft cloth wet on his tongue. The only thing that ever feels “thirsty” is the tongue. Both parents no food no water peaceful deaths by end of 5 days. I hope I’m that lucky but whatever.
appreciate these women talking about the end of life and comfort, how it matters.
My granny died 4 days ago and i was so shocked that i couldn’t cry at all, but this song made me feel everything i didn’t this last days, what a beautiful song.
This song and “Clover Cage Mirror Mirror” are the two songs keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better. We are in this together…….
⚘��Such a BEAUTIFUL song��⚘
��In Memory of��
��Your family would have loved��
⚘��THIS special Tribute ED��⚘
��from������covid19��sept2020��xx
This is so hard to watch, my heart ache for you. My son decided he does not want me in his life. I miss him so much. You are a son anyone will be proud of
What is wrong with suicide or euthanasia for these patients? Who would want to go through such misery and wind up with the same inevitable end, death. I don’t know why it’s so difficult to broach this topic. It is cowardice.
I just came across this page. Ive been an Alzheimer’s caregiver for 20plus years. But son ur strength n luv is beautiful. Ur mother is gone but ur angel is still here
That had to be the most difficult thing when your mother does not recognize that you are her son. She knows that you are someone close to her, but doesn’t remember that she has a son. Your mom was such a beautiful person. I don’t know what I will do when the day comes that my stepfather doesn’t remember my mom, or us kids. He calls me “Knothead,” and I call him “Ol Shmuck,” after the movie, Grumpy old men. Dementia is such a heartless disease. To watch it progress on someone that you love is the saddest thing ever.
Bro. really respectful you doing a good job as she take care of you in your childhood… I love the way how you treat her with patience ��
Once Morphine begins and self sustaining medication is discontinued, it is the beginning of comfort care. I run 4 Assisted Living facilities.
Thanks for you for your discussion. My mother died last Tuesday morning 12 February from this disease. My lovely mum died in exactly the same way as Jasja Kotterrnman described her mum’s decline. She lost her cognitive reasoning, i.e. here ability to play bridge, then scrabble, watch tv, first.Then her mobilty, followed by her speech. Over the space of two months. Her hearing was there till the end. And her sense of touch. We held her hand and gave her losts of kisses right through the night till the end. She declined in the space of three months.
The one thing I find hard to understand is in comparison with others ladies, her friends who have Alzheimer’s, my mother has gone so quickly. I kept her in her home and we visited a care home near by for about three years. These are others ladies, her friends who have this disease have settled on a plateau of forgetfulness, and slight cognitive imparement. That is, they think I am the Care Home owner, or one of them thinks I am her husband, another asks questions at the same time every afternoon, she is in the Sundowning phase. “Who is taking me upstsirs to my bed? She repats at 3.30 pm every day.
What is keeping them going where my mother has declined so rapidly? Is it their medicine? Is it they get better care in the Care Home?
I got a feeding tube put in my mom because it can take two to three weeks to die slowly of dehydration, even when hospice is giving them drugs. They cannot overdose them because that would be assisted suicide which is illegal. Despite all the so-called evidence-base research that says don’t do a feeding tube with someone end-stage Alzheimer’s-mom is doing better physically, but her Alzheimer’s is getting worse..as expected. It gave her some more life..hey we only have one mom and that’s that so why not. Mom is putting on weight from tube feeding, and no longer has to worry about dehydration.
I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer’s disease and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed — it also turns your world as a caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that has any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different options to into. Never make your own success path a secret. There should be no shame. Contact Dr. Rohan with [email protected] gmail.com, It may also help you too.
Even in the midst of dementia she knows his heart is breaking when they are discussing who he is to her. She tells him that he can cry in front of her. Mommas always know.
This is the only video I’ve ever balled my eyes out to. This hit on a whole new level of feeling. I’m so sorry joe and I feel your deepest pains
So sad, but anyone who has looked after a loved one with dementia will know how hard it is physically and mentally. My heart goes out to anyone/everyone affected by Alzheimer/Dementia. A huge shout out to any caregiver doing this alone! I feel your journey. I feel your pain because I’ve been there. My mom was also diagnosed in her 60s. Feeling absolutely shattered, heartbroken and drained, working with different physicians across the country with little or no improvement. I was exhausted and overwhelmed to look any further. Crying a lot through frustration, anger and despair, But today with the help of Homeocure Worldwide Natural Medicine, my mother is completely healthy and well again. I think we only need more support and sunlight to overcome this dreadful disease. Search for support regardless and don’t stop until you get it. With Homeocure Worldwide treatment, there is hope, don’t give up! contact them on their youtube channel for more info
Your interview with Teepa Snow was a great intelligent start—she’s the best—and you might also greatly profit from interviewing Katherine Mannix who wrote With the End in Mind, a revolutionary book that discusses what happens at death. I’ve read all the books, or almost, and this one should be read by anyone who’s not seen death up close before and either fears or dreads it in themselves or others. It also very correctly addresses what hospice is about and—contrary to what many of your commenters think about it below—what it is not.
Now you know what it’s like to be a new mother oh, Joey. Without the hospital and all the crying and pooping. This is almost exactly how she had to raise you, now it is your turn to raise her, I hope it is
Finding out that Buffy the Vampire Slayer inspired this song just made this 10x better, and 100x sadder. The piano song in the background is a sample of the song “Remembering Jenny” from the episode “Passion”. OUCH, MY HEART
I’ve dealt w bj with of my grandmother’s having alzheimers. I myself later had to go thru 10 brain surgeries in an 18 month span. It caused alot of dementia like spells where I couldn’t remember my kids names. I knew they belonged to me thou. I just couldn’t remember alot of things. After my teenage kids got over the shock and pain, they’d pull out photo albums and ask questions. Like who is this. If I couldn’t remember they’d tell me. I do remember the shock and pain written on their faces. It tore my heart up. I was trying so hard to remember their names.
So I’ve been on both sides. It’s not easy to say the least. We dont want to forget our precious memories made over the years
Your a great son god bless you and your family ����thankyou not everyone can do this you had great respect for your mum my daughter hasn’t spoken to me in 3years and it has broke my heart
This pain you can see in his eyes at 11:40 is just so intense. My grandma had Lew body dementia and died at age 88 I talked to her about a month before she died and the last time she was able to say my name I just couldnt handle how much trouble she had just performing the act of saying my name…. I would never wish this disease on anyone even my worst enemy… For anyone out there that knows someone who is suffering please know you are NOT alone and please do NOT let said victim believe they are alone….
It doesn’t matter who you are to her… just that you’re a kind and loving person. The way she responds to you says that she knows in her heart you are connected… she doesn’t have the words…����
I feel so much for you my man. I’m 15 and my grandma has Alzheimer’s. On my birthday this year she called me the wrong name, she also thought she was my aunt once when I visited her. To see the perseverance this man had on his mother inspires me to someday be this way with my grandma. Thank you
So so so sorry for you That was a painful video to watch!! She sounded so innocent and child-like…My heart hurt for you. May God Bless you for taking such good care of her!
I am so sorry for your loss man. I couldn’t ever imagine the pain that you went through. I myself was raised by my mother and grandparents, I am now starting to see the early signs in my grandmother who is my bestfriend and I cannot ever imagine living without calling my grandma every day after work.
This is a good guy. But it’s driving me crazy that his mother has asked him over and over in so many ways who she is to him and he won’t just be clear and explain to her that she is his mother and he is his son. She has forgotten so much but she knows he is sad. He should be more real with her. He should quit quizzing her and give her the info she so craves. He’s confusing her and making her anxious.
Used to listen to this song/album when I visited my Grandma in the hospital,
It’s been nearly 4 years since her passing and I always think of her whenever I listen to this album, thank you for the bittersweet memories Ed��
Desr Joey I feel your pain this happen to me with my beloved��Mom while in the hospital with terminal cancer, diabetes & broken hip. For 40 minutes she suffer a “sundowning episode” it was terrible�� she didn’t know who I was��, that she didn’t have kids, didn’t know what the clock or lights where for, she told me “take me to the sea, I want to run far away and never come back, don’t leave me alone”. I was terrified and broken into a million pieces. So, I told her, Mamita you’ll be okay, let’s pray to the Lord Jesus Christ. We pray our Holy Father prayer maybe….30 times and thank God she look at me again with her beautiful Brown eyes that have always light up my soul and My Life��. That’s when I noticed Mom was back����.
I revive those moments when I saw you crying and I broke again but this time for you, feeling your pain.
Much love to you Joey stay strong & God bless you for being a great son.��
So sad that she’s no longer with us. Shout out to all who are victims of dementia and those who have to experience their loved ones having it. It truly hurts and takes a lot of guts and bravery to deal with. Stay strong man. And R.I.P molly. ��
You can see the pain in his eyes,you can see he’s about to cry,you can see he’s trying to hide it,but the tears keep fightin,rest in peace ������
They have found a cure for alzheimer’s disease at the sunnybrook hospital in Canada it’s called focused ultrasound check it out on YouTube good luck
Have some respect for you mother and let her have her privacy. It’s not about you. My wife suffers with this. I know she would NOT want the world gawking at her. This helps no one. You are very very selfish.
I was this years old when I realized that this song’s beginning sounds exactly like Hardline’s Hot Cherie. https://www.youtube.com/watch?v=GB3yNH-BW94 it’s literally the same tone
¿como haces para componer canciones tan hermosas? Las leo y pareciera que son para mi, no he parado de llorar con esta canción. Ed Sheeran
Shit when I look at my son I see you
Shit after all we been through
Never thought it would end like this mess constant stress so I take drugs to suppress the Pain If only we could be together again
And (Allâh says), “We have enjoined on every human being concerning his parents (to be good to them). His mother is worn and wasted in bearing him and it takes her two years to wean him. And give thanks to Me and to your parents. To Me shall be the (ultimate) return (of you all).
/////you are agood man
Same thing happend to my grand mother i was a little kid and i loved her so much when i stayed with her alone in the room she paniced all the time she thought i was some stranger who broke in to the house she was calling for help she thought i was gonna hurt her and that always broke my heart so much but once for a second i managed to make her recognize me she was so amazed that it was me that was one of the best feeling i have ever felt i was so happy but sadly this memory lasted for like 20 seconds or so after she forgot everything about me again and started calling for help what a terrible thing to happen to someone.
I believe my mother has been in stage 6 for at least a month. She seems to have rapidly lost “normal” thoughts and connections. She still uses many words although she uses some incorrectly and substitutes for the ones she loses. She also loses train of thought mid sentence or changes track. She calls me “mom”, forgets her children and forgets my father died many years ago.
I suppose my question(s) are: Do the stages speed up when you reach the later stages?
Do the swallowing problems come and go for awhile? My mother periodically has had swallowing problems for the past 5 months where she tells me she just has too much spit and she doesn’t know what to do except wipe her mouth. This happens 1 or 2 times a month then it resolves itself. I thought that the swallowing was very end stage 7 yet she has been having these bouts for a few months.
Hi Joe I know how you felt when you asked your mom who you were and she didn’t know. A month ago, it happened to me that my mother did not know who I was, I reminded you of your YouTube video raw greetings from Belgium I wish you health for my mother❤️����
This song and “Clover Cage On My Mind” are the only two things keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better……………
Holy shit my grandma has the same..the only person she remembered is her dead husband and one of her daughter even tho she have 12 kids..she forgot most of them including my mom,I remembered visiting her 3 years ago and then she keep asking who my mom is and keep searching for her husband..she keep forgetting that he already died over 20 years ago,my mom cried when she can’t remember her even she forget my mom name…that’s why u should enjoy every moment cuz nothing will stay the same in just a year..she died 2 years ago at the age of 92..I know it’s tough..best wishes for you Joe����
Just kill on tell our Government…. Car Crash…. he wrong….They good it’s all over….One more Life innocent Gone….Away Pin down….Yuh Affi…..Somewhere some how
Finally had the courage to listen to this again because this reminds me of grandpa. To those who lost their loved ones, i hope we remember them not with tears in our eyes but with a smile.
My grandma passed away 3 years ago,i remember listening to this while i was in shock for the notice.Then my other grandma passed away the next day and i just couldnt stop listening to this song “whit your body next to mine our hearts will beat as one”,i wished so bad that it could be real,i was on point to suicide.Nowadays its like”anything would be as yesterday but life is there,they wouldnt like to saw u sad and heartbreaking”.
Happened to me today, FaceTimed mom at nursing home, no idea who I was. Was export it to come and was prepared. Bless mom’s soul.
Thank you for sharing…I am helping a neighbor with this and hoping her family will be coming soon for her. So She will be with family…Jean is only in her early 60’s and is wonderful person…
My grandma is in her early stages of dementia and I know one day she won’t remember who I am so this made my cry so hard. Seeing the ones you love most forget who you are is so painful. My condolences go out to this guy.
Wow. It just makes you appreciate what you have that him and I have lost. Who ever watches this video PLEASE respect your mum and dad before it is to late. I am only 13 and I have already lost it. ��
This is the first Ed’s song I heard when I was little.. It touched me in a special way and since then Ed became my best singer until now ❤
I have a few ideas about her thought processes and I figured I would share. Throughout the video, she has this idea that there are two Joeys. I think she knows that the man she’s talking to is named Joey and she also knows younger Joey from the pictures in her room. She just doesn’t know they are the same person. But I think she comes close.
At 18:02 she asks “Are there two Rosies? Er, twowhat am I trying to say…” She was trying to ask if there are really two Joeys.
At 20:22 she says “I think I had it all mixed up about the two…” then trails off. She is very close to understanding that this Joey and young Joey are the same. But she doesn’t quite get there.
All that aside, this is probably the saddest video I have ever seen. But I’m glad it exists. The way she still cares for him is truly heartwarming.
Joe I know your pain, my dad died of LBD a year ago. We worked side by side for 22 years. We were best friends. You are a good son and should be proud. You were a lighthouse to your mom when she was lost in the fog.
⚘��WOW!! ANYONE ELSE AGREE…How difficult����to write this song & music❓BUT TO SING IT‼O.M.G ������!!Love from Australia������(covid19��aug2020)��stay safe ALL��
I know this isn’t time for jokes but when she asked him about the rose/Rosie whatever and then did the long silent pause and said “What did I ask you?” Reminded me of like when you’re in the middle of a conversation and the edibles hit
All the men watching this know what they felt while seeing this man crying the heart out of himself………. literally when u see a men cry like this u know something really terrible had happened…..in this video i just say a boy crying just a child would after losing his mommy………..GOD BLESS YOU.
She must have been the sweetest! She trying so hard to remember everything! I cried like a baby when he was sobbing…. she is in peace now ❤️
This song and “Clover Cage WarCry” are two songs keeping me sane through these tough times. I just want to send love to everyone and I want everyone to know things will get better.
Ed Sheeran is a spectacular singer. Hey, people! Please, watch my video with an important revelation! https://youtu.be/3W6sMfjvanU
Emily I miss you like crazy
Shit who would have know you’d have my baby shit I’m crazy so they call me shady but your the only lady I need shit iv lost you so I greave
Saying that she couldn’t go to bed with you crying, rubbing your arm because she knew that you were sad…a Mamma always carrie’s her babies in her heart. Even though this disease is stealing her memories…SHE KNEW…A MAMMA ALWAYS KNOWS.
It’s funny… This video reminds me of one of my favorite aunts. She was so close to me and I even was able to take care of her kids. She passed away last year….. I miss her to death honestly. That plus this song deadass made me cry a couple times.
RIP….