Families Having a Child With Lower Syndrome Say Encounters Are Positive

 

Family Says Son With Down Syndrome is a Gift

Video taken from the channel: EWTN


 

The Truth About Down Syndrome

Video taken from the channel: Children’s Hospital Colorado


 

People With Down Syndrome vs. Down Syndrome People What do You Say? || Parenting Down Syndrome

Video taken from the channel: Living With Eve


 

Raising a child with Down Syndrome

httpv://youtu.be/j_qGf3Sxx4?rel=0&modestbranding=1

Video taken from the channel: Attitude


 

Things People With Down’s Syndrome Are Tired of Hearing

Video taken from the channel: BBC Three


 

Dad with Down’s Syndrome has a beautiful family | Positive

Video taken from the channel: Positive


 

The Family that Adopted Six Children with Down Syndrome (And One with Fetal Alcohol Syndrome)

Video taken from the channel: Special Books by Special Kids


MONDAY, March 21, 2016 (HealthDay News) Families of children with Down syndrome face challenges, but by and large their experiences are positive ones, a new study suggests. Researchers found that in 87 percent of families they surveyed, everyone parents and siblings said they loved their family member who had Down syndrome, and almost as many families said they felt pride for the child. MONDAY, March 21, 2016 (HealthDay News) — Families of children with Down syndrome face challenges, but by and large their experiences are positive ones, a new study suggests. Researchers found that in 87 percent of families they surveyed, everyone — parents and siblings — said they loved their family member who had Down syndrome, and. MONDAY, March 21, 2016 (HealthDay News) Families of children with Down syndrome face challenges, but by and large their experiences are positive ones, a new study suggests.

Researchers found that in 87 percent of families they surveyed, everyone parents and siblings said they loved their family member who had Down syndrome, and almost as many families said they felt pride for the child. Positive experiences themes included the following: impact on parents and other people, child’s achievements, social acceptance/connection, and everyday/everything/many. Negative experiences themes included medical experiences, lack of social acceptance/connection, the DS diagnosis, and the impact on parents and other people. Results indicate most families experienced elements of disruption and resilience in their reactions to the diagnosis, although different patterns emerged for each syndrome group. Maternal descriptions highlighted positive attributes that contributed to family well-being and behavioral challenges that were a source of family stress.

Supporting Positive Behavior in Children and Teens with Down Syndrome This is a “must-own” for the parent of a child with Down syndrome. It covers the fabulous “flop and drop,” bolting, and other common issues experienced in raising people with that extra chromosome. It’s short, an easy read, and jam-packed with useful tips.

Siblings and family members of children with Down syndrome can often feel left out with all the challenges in caring from someone with special needs. This affects the entire family unit. However, there are many chances for siblings to grow in a positive way when helping care for their special needs sibling.

We are the experts on living with Down syndrome and know that life is so much more than a diagnosis, there is a good deal to celebrate. Our children and young people with Down syndrome lead full and rewarding lives, they are much-loved sons and daughters, brothers and sisters, who our families wouldn’t be without. Seek out other families – Support from those who have had similar experiences with a Down syndrome child can be very beneficial. These support groups can be found through local hospitals, physicians, schools and the Internet. So my Dr. calls today to tell me my blood test came back positive for Down Syndrome.

I’m told that it’s not a variable test, just comes back positive or negative. Dr. says not to worry, but I’m freaking out. I am 19 weeks and high level ultrasound is tomorrow.

Dr. said test is not a definite and just alerts them to look further.

List of related literature:

The life expectancy of a child affected with Down’s syndrome is reduced by the presence of heart disease and an increased risk of acute leukemia.

“Bratton's Family Medicine Board Review” by Robert L. Bratton
from Bratton’s Family Medicine Board Review
by Robert L. Bratton
Wolters Kluwer Health, 2012

On the other hand, four children, who had older siblings with ASD, screened positive.

“International Handbook of Autism and Pervasive Developmental Disorders” by Johnny L. Matson, Peter Sturmey
from International Handbook of Autism and Pervasive Developmental Disorders
by Johnny L. Matson, Peter Sturmey
Springer New York, 2011

Another mother said, “Finding out our child had Down Syndrome was like being told that the baby we dreamed of had died, and now we had this other child that we knew absolutely nothing about” (J. Pewitt-Kinder, D.O., personal communication, March 19, 2008).

“Home, School, and Community Collaboration: Culturally Responsive Family Involvement” by Kathy B. Grant, Julie A. Ray
from Home, School, and Community Collaboration: Culturally Responsive Family Involvement
by Kathy B. Grant, Julie A. Ray
SAGE Publications, 2010

However, it was not economically practical to screen for very rare inherited diseases; also, false-positive results would cause great emotional distress to parents who were told that they had a child with an inherited disease when, in fact, their baby was normal.

“Health & Wellness”
from Health & Wellness
by
, 2008

Down syndrome: health issues: www.ds-health.com.

“Sedation E-Book: A Guide to Patient Management” by Stanley F. Malamed
from Sedation E-Book: A Guide to Patient Management
by Stanley F. Malamed
Elsevier Health Sciences, 2009

I had a higher chance of having another baby with Down syndrome, but our experience with Penny and other people with disabilities had convinced us that we would gratefully receive any child we were given.

“White Picket Fences: Turning toward Love in a World Divided by Privilege” by Amy Julia Becker
from White Picket Fences: Turning toward Love in a World Divided by Privilege
by Amy Julia Becker
The Navigators, 2018

• Read the paper written by Maxwell & Barr (2003) for an excellent overview of the experience of one mother of a young person with Down syndrome over the early years of his life.

“A Textbook of Children's and Young People's Nursing E-Book” by Edward Alan Glasper, Dr Jim Richardson, James Richardson
from A Textbook of Children’s and Young People’s Nursing E-Book
by Edward Alan Glasper, Dr Jim Richardson, James Richardson
Elsevier Health Sciences UK, 2010

This would include early intervention programs, parent advocacy groups, and even individual parents who have a child with Down syndrome.

“Medical Genetics E-Book” by Lynn B. Jorde, John C. Carey, Michael J. Bamshad
from Medical Genetics E-Book
by Lynn B. Jorde, John C. Carey, Michael J. Bamshad
Elsevier Health Sciences, 2019

So if a child has a normal chromosomal screening but presents with Down syndrome–like features, that is a good hint!

“Gunner Goggles Obstetrics and Gynecology E-Book: Shelf Review” by Hao-Hua Wu, Leo Wang
from Gunner Goggles Obstetrics and Gynecology E-Book: Shelf Review
by Hao-Hua Wu, Leo Wang
Elsevier Health Sciences, 2018

Other studies show that, on average, children act more kindly, more generously, and with less hostility toward siblings with Down syndrome than toward typically developing siblings.

“Far From the Tree: Parents, Children and the Search for Identity” by Andrew Solomon
from Far From the Tree: Parents, Children and the Search for Identity
by Andrew Solomon
Scribner, 2012

Oktay Kutluk

Kutluk Oktay, MD, FACOG is one of the world's foremost experts in fertility preservation as well as ovarian stimulation and in vitro fertilization for infertility treatments. He developed and performed the world's first ovarian transplantation procedures as well as pioneered new ovarian stimulation protocols for embryo and oocyte freezing for breast and endometrial cancer patients.

Mail: [email protected]
Telephone: +1 (877) 492-3666

Biography: https://medicine.yale.edu/profile/kutluk_oktay/
Bibliography: oktay_bibliography

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91 comments

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  • Love is for everyone but this is best love story ever. I love how no matter how we are born we can still have happiness we deserve rather your born like him or have spina bifida like I do.

  • If the parents read this, make sure that you give Peyton the support she needs too. It might seem obvious but it’s easier said than done. I’m adopted too and my non-adopted brother is ten months younger. He had a serious medical condition and also struggled at school. I was left to go through subtler challenges on my own and still feel quite scarred about it and am not close to my parents.

  • I typically tend to say “person with Down syndrome” simply because I do think many cultures struggle with seeing them as persons. As you said, if we viewed them as persons equal to us, we wouldn’t be aborting due to the diagnosis of Down syndrome as often as we are. As long as you don’t have malicious intent, I don’t think either way is necessarily wrong.

  • Dylan is a gorgeous little man and he will flourish because he is being introduced to other kids and new environments whilst his still young. His mother I can understand her concern for Dylan ‘s saftey and well being which naturally she would be a little over protective. For Dylan to thrive she needs to stand back and let him work things out for himself, the teacbers are there if Dylan gets into any kind of mishap or needs help. By his mum intervening this will prevent Dylans independence and as harsh as it may seem and as much as she loves her son sometimes you got to take a step back and let him learn on his own, it is understandably hard but if she wants Dylan to reach hjs full potential it has to be done.

  • They offered to do an amniocentesis and I asked about it cuz hadn’t heard of it. Why would I have a test done that can be dangerous to my baby? I was appalled when they said it was so I could abort the baby if it had certain disabilities. I was like who tf would do that? Sadly too many.

  • My uncle had Down syndrome but he can’t communicate as well as these people. But he’s the best person ever and he’s my angel sent from heaven

  • That looks like a lot of medical care. How much would all that cost? I mean, it looks like it would cost a fortune to cover the medical expenses for a family with a Down’s syndrome child. I wonder if an average middle class family could comfortable cover the finances of raising someone with Down’s syndrome. Disappointed that they didn’t go into that because it’s pretty important.

  • I find this interesting because there are SO many genetic syndromes and for the most part the terminology used is “person with…”. For instance with Sophie’s condition, no one says SETD5 person. Maybe because it is a rare syndrome?

  • Watching this video while holding my 3 month old baby. Brings me so much hope. I remember the day I was told he had down syndrome, wish I’d seen this video then.

  • as a dog trainer and educator i am training dogs for special needs ( Therapy dogs ) this wonderful people can give you all their heart. i wish them all my best.

  • I think this is really interesting. My daughter doesn’t have downs but she has 22q 11.2 deletion syndrome. When she was newly diagnosed I would constantly say she was my 22Q Cutie on FB posts (a common nick name in the community) and I had a mom chew me out over not being person first (I didn’t even know it was a thing). I very much can see both sides but my personal opinion is that how that child (or adult) is going to feel about themselves and their conditions probably has a lot more to do with how they are talked to and treated in the home vs what we call them. That being said if someone has a strong opinion for their child I’m happy to address them however they or their parents see fit but in our home we say it both ways and never think twice lol.

  • The kindergarten there look more like preschool in Canada. Our kindergarten is grade ‘0’ in elementary/primary school so when kids start school it begins with kindergarten and that prepares them for grade 1. We have 7 grades in elementary school in British Columbia Canada, well in my city it’s like that.

  • They are so cool I want to be their friends I’m autistic so I go to a special needs school so I know some people with special needs to ����❤️��

  • What a beautiful little soul he is. And im so glad he got such a good and caring mother, a mothers love will go above and beyond for her child ❤

  • I’m very glad they started this showing Dylan’s fifth birthday �� Otherwise I don’t think I could’ve made it through halfway lol. He’s such a beautiful boy �� I am mom to a 4 year old boy with autism spectrum disorder. I think the biggest thing I’ve carried away from this is to never put limits on your child’s abilities. Even though my son has difficulties speaking and understanding speech of others, I still talk to him constantly. I need to learn more sign language like these parents have done. But I completely expect my son to speak and understand others fully. Maybe that’s a hope, I don’t know. God bless this family. I think we as parents with a few extra difficulties learn more from our kids than they do from us �� (or maybe that’s all parents lol)

  • I’ve got a condition as well but it’s something completely different from Down’s syndrome as it’s a branch of autism cos it’s Asperger’s syndrome and I want a romantic relationship too with a nice girl

  • It looks like the parents are not together anymore at the end. They didn’t show dad and she no longer has a wedding ring on. Hopefully I’m wrong cause that would be very sad.

  • I have a boy with ASD3 he goes to school at a special needs school and a little girl with DS is on the same bus as Issac and she is a very sweet little girl! These children are adorable all kids are but something very special about these kids!

  • the down syndrome/microcephalic/other group are getting just like the GBLT group.trying to make every excuse to pacify their own guilt and push it on others.first trying to stop abortions,then stopping abortions on downs,intergrating them with normal studentsa nd their activities(which IS PURE GREED taking othjers time way and expecting everyone to accomodate them)such as managing sports teams ect. now they are getting married,next allowed to have kids-WHO IS PAYING FOR THIS…dont forget special olympics-which should have never had been created-its actually discrimitory against everyone who isnt a down syndrome and not a athelectic prodigy who cant play olympics.do research this group was formed in the sixyies same time the hippies, gblt, racism groups where acting up last…just another sue happy jealous cry discrimination group who should be thankful their kids get a disability check before 18 and all medical expenses paid-while other folks have to go homeless or broke raising their kids….where i live is tons of all types of mentally challenged and they are disrespectful in public,take temper tandrums when you say no to them,and they expect everyone to mentally stoop down to their mentallity level to pacify their need for company…..

  • I worked with youth with down syndrome for about 2 years, and I’ll talk you there sweet, careing and the only difference between them and a random person is that there nicer! There was one child that didn’t speak at all, but could look at a photo and draw it perfectly! Amazing!

  • Dylan is so cute & adorable i could just eat him up, i used to be a childminder and looked after a brother & sister..the little girl had downs,but the love i felt for her was intense.The megaton language wasn’t mentioned maybe they don’t do that in Australia. Enjoyed this documentary very much & nice to see Dylan’s progress & he’s now 5,bless you Dylan may all your dreams come true ������ xxx love from northern Ireland uk xx

  • I’d never realized this was something felt so strongly about until my cousin had a baby with Down syndrome. She made it very clear that she preferred one way over the other. lol

  • I think many people disagree with children with disabilities because of the extra cost to raise them and special classes etc. I think it is good they are going to treat their son as a normal child and not handicapped. I had my daughter in special PE class in elementary school and she was made fun of. It is best to keep their school days as normal as the other children as you can. Do extra classes and training out side of school.

  • You are such an amazing advocate for your daughter! I love that you have so much passion in sharing knowledge about special needs and parenting!

  • It’s great that they documented his life, but the summaries of the other videos take up more than half of the new video. We could have seen more footage of new things in each video and learned more. I understand that the summary has to happen, but it really isn’t that big a deal to have people find the other two or however many videos there are so that they can catch up.

  • Children and adults with DS are angel came from God beautiful angels �� �� when families that get chance to have someone with DS are very lucky

  • Mainstreaming is controversial, but I understand a parent’s desire for their child to be in “normal” classes. But I don’t really think they get out of it what they could get out of special education. For example, a child with cerebral palsy will have a easier time keeping up with a mainstreamed class, but children with Down’s Syndrome or any other cognitive impairment seems so out of place you wonder how much they are really getting out of it.

  • He is a little miracle and so loved. Perfect in every way and he needs his parent’s to help him to the next level and I am sure he will have that.

  • Is It really true you can get abort if the baby has downsyndrome at 40 weeks? I had to calculate it so many times, then Google it, because I thought I’m must be misscalculating, but no… That’s like 9+ months, so basically a fully grown baby, a human. I hope they were wrong about it…

  • Ohhhhh,so people are so condescending towards people with intellectual or physical disabilities UNTIL it happens in their family….mmmmmm.Then “ohhh my kid yadda yadda”.From a physucally disabled person,who is also an incel because of his dusability:Fuck you,no empathy for you,or your families <3

  • I went to a normal school which was really amazing for me and then I went to a special needs school and after that i went to college I have been to college for three years and going on to my fourth year at college which is amazing for me and ten I’m going to be a sports coach for special needs and learning disability and any needs and to be my own boss and my own company ��

  • It is not weird to say ‘she is smart’..because she is. She has come to you with a mission..you are learning..me too. You are doing great!

  • You both have a lovely son Dylan and I take my hat off to you both because you are wonderful parents and he has a wonderful sister and brother with them and it is good that Dylan like school and having fun with other children, and good luck for the future I hope it’s nice and bright for Dylan.

    ��������������������������

  • Cant believe people in my school, they have are the most irational people I have met in my lifetime why is that we have a student who has down syndrome. so she is called out for her body features such as motor skills, face, height, and intelligence but the truth was the condition wasnt her choice it was unavoidable. I maybe the one of the only people who hold pity for her but one student was intolerant, stuck up, and would think 85% of the school was idiots and his iq 190 what a load of crap if that were so why would he be at a public school and not a college. So the girl was a prime target for bullying and harrasment and sutle foolishness which never came undone I simply watched this go on and it never stopped until the school years were I hope the girl has a great life. I still regret just allowing all this bullying on one child with a disorder that was uncontrollable.

  • i include everyone me ive never wished bad on any kid but to take my kindness and use it all for your own selfish needs thats the problem not bcz of your situation

  • These people are great parents!
    I especially liked what the dad said about never underestimating the potential of your child, truer word couldn’t have been said.

  • People with down syndrome are adorable and have the best personalitys, people need to stop being so close minded and just be nice ��

  • Y’all hear about the DS chick who graduated with a degree in biochemistry but was refused licensing because she had DS

    No joke that’s for real

  • I don’t have any differences of any kind honestly, and whenever I hear the question “do you wish you weren’t _?” It doesn’t make sense to me! They don’t know what a life like someone else without their difference is, so why should they wish for that?

  • I’ve always said “Person with Downs Syndrome.” I used to work with adults of varying disabilities at a summer camp and I was also a double major in college in special education and that’s just what I was always taught to say.

  • I love conversations like this that really make me think and analyze my perspectives. Sometimes we say things without really giving them the thought we should.

  • Thanks for bringing this up. I live in Canada and my youngest (4th child who’s 3!) has DS. (I definitely recognized that CDSS website you had up!) I’ve been “raised” in the people first camp. And I totally didn’t realize there even was a camp of people who prefer the term “Down syndrome people”. I really did think people who said that just didn’t know better! �� But I can totally see your point now, though. We are proud of our daughter, and so thankful for her 3 older siblings who love her and teach her so much.
    We have two boys and two girls (9,8,6,3) and I homeschool them, and our daughter Annabelle Faith had open heart surgery at 4 1/2 months (and is doing amazing!). We found out at birth that she has DS and we knew God had a plan. In our home we called her our little “Downy baby” because we said she’d “soften” our family (like the fabric softener!).:) Totally a term of endearment! I knew others probably wouldn’t like it ��
    I just found you last night and binge watched so many! It’s definitely a challenge fitting everything in with HS and therapies… tho we had a monthly “early development “ therapy, and a weekly early learning class with toddlers with DS. I still can’t get my head around Naomi’s 6 hours/ week of therapy… we have done group water therapy and music therapy, but it’s not an ongoing thing… Next year will be different.
    But I believe that the best teachers are the parents and siblings! ��
    Take care! And I wish you all the best on your journey! And thanks for sharing!!!

  • he’s cute but his mom needs to back off a bit let him be a normal kid, she’s creating half her own fears and will project them onto Dylan

  • What a great conversation and even in the comments there are some very great points brought up! So important to see both sides and you did a very great job on explaining both sides!

  • Sarah is a beautiful human being! She is so funny and lively, and she loves to learn! This video is a testimony of love, faith, and hope!

  • This story is beautiful. I had a baby boy at 30years old born with Downs Syndrome. Unfortunately I was not able to raise him beyond his 20 month little life. On May 7, 2002. I received the worst call any parent could receive. My son had been killed by suffocation while at daycare. It was so hard. Little Reggie meant the world to our family. My oldest son met the same faint on December 21, 2019 he was shot multiple times in broad daylight. 2 boys both killed by homicide and no witnesses no one charged. I pray that your baby grows to live a happy healthy life. Everytime I see a child or person with Downs I just love on them so much. God bless you all and your family.

  • I have a good friend with Down syndrome and my uncle also has it and there’s is nothing ever stoping them there amazing and can do anything!

  • Wish I could say anything,. My tears stop me oh is there a god,,,,,,,,,my children are no more.. Want my life back. Please……….,

  • What a beautiful girl! She has gotten so much better and, and thanks to her parents that had put so much love and work into her. If they continue doing the right thing, which I know they will because I can see how much they love her, she will get better and better and she’ll have a really happy life. Beautiful story.

  • Nobody was excited for you because you didn’t show excitement.. You showed doubt and discomfortUNDERSTANDABLY SO.. but.. Its up to you to set the tone/optimism. Whatever you put outother’s will flow with.
    Can’t make it as though others were just in a sore place for you.. they cared but.. i mean my moms a midwife and her close friend knew she was having a down syndrome baby.. And everybody was happy for herand was her 2nd child to her 5 year old (alsoshe was an older motherwas in 1996). so. Similar stuff.
    She embraced itand the rest followed. Lots of support she had through her pregnancyno debbie downers.
    i know it’s all different with different folks.. just sad that they actually….ugh.. were thinking… not gonna say it but they admitted it was there and selfish.

  • I believe it is all about perspective and the individual’s phenomenology. However, at the end of the day we have to make sure that we treat everyone with respect and dignity. I am glad that you decided to make this video it helps to bring awareness to this topic.

  • dylan you are so cute!!!!! <3 really enjoyed watching you grow up, best of luck for your future endeavours lil man, what you dream you can achieve, you can tell your parents love you so much xx so much love to share

  • Fabulous video. Such a beautiful family, enriched with a wealth of healthy emotions and the need to remain a strong family unit. I watched with happy tears as I recalled how amazing Aric made us feel with every bit of progress he made. Now 36 years old, he is still amazing. WELCOME Dylan and congrats to your family.

  • To me not to be offensive but I think that Down syndrome is Cool its pretty to me.

    (this is a 9 year old writing a comment so watch what you say)

  • My wife and I were recently told at the 12 weeks scan that our baby has a 6.5 nuchal fold and there is a 20% chance of our baby having Downs (we know there is an abnormality of some kind)….after watching this video we hope he/she does…what a lovely family and child:)

  • This title is a misnomer it is NOT the truth, it is one story about a sweet family with struggles. The truth is, kids with Down syndrome are more like all of us and some of us have medical issues too. SOME kids with Down syndrome have no medical issues. Typical kids get asthma, or have heart surgery, or get diabetes. They are just kids if they have some issues, we don’t give up on them, we problem solve it. This video was honest about this family BUT this is NOT WHAT it is like for all kids with Down syndrome. These people do go to college, and drive cars and get married, and some don’t and many typical people don’t go to college, or drive or get married either. They LOVE and we need more of THAT is our world Keep your baby!!! You’ll be so glad you did our son Joe is in the Marching Band, he swims, bowls, plays baseball, and LOVES!

  • I have met several people with Down Syndrome in my life. I guess that is unusual? When I was having my two kids, I did not get checked for Down’s or neural tube defects. I figured if there was a major problem, it would show up on ultrasound and we could deal with it then. I knew I would not have an abortion because of Down’s or spina bifeda. Down Syndrome, as far as I could tell, is not painful and people with it can still live full lives. I can imagine ending a pregnancy that would only result in a brief life of constant suffering at best, but I think people who abort Down’s babies are clearly having a baby for the wrong reasons. What if your baby is preemie and gets cerebral palsy? What if it turns out that they have autism? What if they have a bunch of serious food allergies? You have a baby to have someone to love, not to show off your perfection to your Facebook friends, or at least, that’s how it should be. ��

  • I have a brother with down syndrome and he is the sweetest funniest person ever he always says hi to any and everyone ����i love him so much

  • i dont care about the dislikes and hate comments
    is it fair to the child that she will be depended on others for all her life?is it fair to the child that she has health problems? and difficult problems? who is going to take care of her after the parents will be old? is it fair for the other girls?

  • It is draining you want to get to the best they can. It’s emotional. Hard work but 100 percent worth it and extra wrinkles on my face. When a baby smiles at mum we all smile back. I have 6 kids 1 boy 5 girls.My youngest child has downs syndrome she smiles and laughs constantly. So happy and my other kids are as well. They know all about downs syndrome mainly the two eldest know the most. I had the children around downs syndrome I’m so bloody glad I did. It’s normal to them.

  • I like people with Down syndrome very much. I used to study mathematics and when very difficult task cones i always think of these downers

  • After 6 years I was having Down syndrome once a week nic and Kris’s surgery my goal is all those days we never change way I look I was being born in Ripon after this Halloween my brothers are robots I was jedi am independently it’s so nice to honor alll my family we can join us she being married to her husband sons thank you for my blessing it nice to meet you guys thank you I love you

  • Sendin you lots of love from Uruguay. Our little Victoria (11 monts) is having her heart surgery this Friday and scary as it may be for us as parents, we are SOOO happy we brought her to this world! She is worthy, this kids are life changing… for the best!:)

  • Your little girl is gorgeous. What a boring world if we were all the same! With such a loving family behind her the world is her oyster. Look forward to seeing more videos as she makes her way in the world. P xx

  • People with Down Syndrom, I personally would say, or I do say.But I never really thought about it. Interesting video, thanks for bringing this up.

  • When I was at school 1965 there was no down syndrome kids they where all in tokonui the country school teachers where bullies so maybe they where better off

  • So happy for you that Dylan is doing so good. Cant say its not hurting. Our son would be 5 now. He died 6 ours after birth. He had t13. We wished for t21, standing on the other site. God dont makes mistakes. I wish you all good luck. And a good blessed life with Dylan. He is a sweet beautifull boy. Love

  • That would be so heart breaking to have no support, and everyone basically expecting you to abort. Its not what anyone wants but it makes me happy that some parents are willing to go for it and love that child. ���� Many are not…and I get it a bit..you always want your kid to be healthy and succeed in life

  • This is misleading as the complications caused by DS increase exponentially with age. The wee little one is already having challenges. DS is a serious and unfair syndrome.

  • I have a brother with down syndrome and he is a baby unicorn to me, when i was young i would tell my mom why is my brother different then me but then i realize he has down syndrome, when we are outside kids always look at him i would tell my mom why are they looking at me she said “they just don,t know how it,s like to have a angel child he loved me and he is everything to me For your information when i was born my brother hated me but now he loves
    IM CRYING

  • À very encouraging story! My dad was born with a neural tube defect “spina bifida” with club feet bilateral. Back in 1935 when there was no way to know ahead of time and no option even if there were early detection.
    Doctors told my grandmother that IF he lived, hewould never walk, never be able to handle a decent job, never father children, never be able to live in mainstream society and should be institutionalized which was about the only option available to families at the time.

    But my grandmother said he’s my child and he will not be placed outside his home away from his family. She alone, taught him to walk by sitting on the floor a few steps away and told him if he walked to her he could have the treat she held in her hands.(ketchup of all things! My dad loved it! ) and he began to walk a few steps at a time.
    They were dirt poor living in the dust bowl days of Oklahoma. His father died while all of the kids were still at home. But my grandma continued working with him and taught him he would have to try harder than others but that he could do and be what he wanted! He had to endure a series of surgeries as he grew and given that physical therapy of any type was rudimentary at best in those days, again he thrived because of my grandmother.

    He met my mother, after high school they married, they had 2 children, he owned his own businesses at 1 point running 3 businesses at the same time. He had several more surgeries as I grew up but he did, and accomplished most anything he wanted to do. New homes, nice vehicles, going to the lake with speed boats for family fun, He built high performance racing engines for cars and inboard jet boats. And rebuilt huge carburetors used in racing. A talent not just anyone could pick up.He had massive upper body strength and I saw him lift things that no other human could. But because I saw him struggle so and saw him in the hospital so often, it inspired me to become a nurse.

    He retired early and did have more health problems. But even he would have told you, many of those later problems were self made by pushing his body too far too long. And allowing bone surgeries by a Dr who essentially was doing experimental procedures on him that many of them just made his problems worse if anything.
    He loved playing with his grandchildren and having family time and when he died he died of cancer that had nothing to do with his birth defects what so ever. Dr’s and researchers don’t know everything, nor do they I hold all of the answers……who are we to say that a life has no value at the end of the day?

  • My eldest daughter has DS she is turning 24 she has two siblings she is so loving if i am ever upset about something or I need a hug she is the first one there she is the only one out of my three children who has never fought with me or yelled at me for something So loving and so caring and at times very very stubborn I wouldnt know my life without her

  • My daughter is 33, lives on her own in a supported environment, does NOT work in fast food but has had the same job for 13 years, and has a bigger life than we ever imagined. She travels independently and is getting more confident in asking for help and advocating for herself. She, and we, are so fortunate that she did not have any serious health issues at birth and later for that matter. I think these guys are limited only by our inability to let them go. It’s tough, we want to protect them. I have learned to enjoy clearing the path for her, get the obvious obstacles taken care of and let her decide, sometimes she will choose a different direction. I’m rambling but I think my role now in her adult life is more like administrative oversight. There is a great team of people that I count on and we make all look so seamless. When she visits now I can just enjoy her without pelleting her with did you’s and you need to’s. It’s a wonderful time and she continues to amaze me. Enjoy the ride ��

  • These parents have now subjected there child with D’s to a life of suffering and physical problems. An early death will follow. These parents are greedy irrational grubs that have now given a terrible life to a poor child that will suffer for the rest of her life.

  • What a sweety! We have a little 7 year old with DS and we love her so much. I hadn’t realized how many health issues some children have with DS…..what a little fighter. Our daughter has not had any thus far but we do have 5 other children so we are thankful for her good health.

  • my son jonathan has DS he is my oldest and has a sister and brother. I would not trade him for the world. was 21 when i had him; he had a lot of medical issues when he was born. docters did not think he would live to be 5 my son is now 32 and he is wonderful.

  • People without down syndrome cant tell what people with Down syndrome feel like or are like, because we dont know what they have to deal with every day. Ya dont know.

  • This was great but I did not like how they keep putting Syria down. Obviously the people of Syria are loving kind and welcoming of the disabled communities if this woman was able to build such a beautiful life there.

  • I’m not downplaying what they are saying at all, but some of the things said are quite true. My aunt has a type of downs that stopped her mental development. She will never be able to live alone even now, as a 44-year-old. She hadn’t really grown up. She was swimming in the Special Olympics, but now she just colors and wants to go to amusement parks and “go to the rides.” She can’t even use the washroom on her own. It really just depends on the severity and type of their downs. Even so, I appreciate this video and love what they had to say!

  • I have a brother and down syndrome and I can say that this video is very “idealistic”
    saying people with down syndrome are just “normal people” and that they can do everything its simply not realistic, they have a lot of limitations, physically and mentally, some people it much more pronounced than in other people: The woman in dark blue doesn’t even look like she has down syndrome to be honest.

  • Good to see that Dylan is making progress. Even the little steps to his progress is better than nothing. May he be an inspiration to others around him. I hope that he’ll continue to blossom and grow in all areas. Enjoy every day with him as well as his life. He’s sure is a blessing.

  • in my school there are people that compare down’s syndrome to autism when….they are not the same thing at all. there’s an autistic girl in my class and she’s lovely and people make fun of her and say she has down’s syndrome and things like that but like….no man

  • Oh my god people are so stupid down syndrome isn’t gonna effect you. There people they do the same shit we do. A lot of people with down syndrome don’t need any special treatment.

  • For my teaching certificate, I had to take a class on learning disorders where they addressed topics like these. It’s important to treat all people with dignity.

  • God made them this way to give us a glimpse of what undiscouraged happiness looks like. It is a divine form of happiness that we cannot even approach in this life.

  • Down syndrome is a serious condition. To knowingly bring a child into the world who already has it hard is selfish. Having interacted over decades in the area of disability and closely with those with DS, the propaganda presented by the religious, who have hijacked many down syndrome societies, is contributing to infinite suffering.

  • Im not sure why if Dylan’s 5 but more like a 2 1/2 year old & his mums so worried about it, she eould send him to school as opposed to holding him back just a year or even two.

  • My brother is deaf, so he is called a deaf person, hearing impaired, or person with hearing disabilities. In my opinion, it is up to the person with disabilities on what they want to be called or what community they want to be associated with. ��

  • Thank you for sharing your story. My own Daughter Sara is almost 6 now and has just started kindergarten with her peers. Your Sara is beautiful and reminds me of mine.

  • Her parents need to be more open-minded. My daughter was born with downs and several heart defects and had to undergo her first surgery five days after she was born. She spent two months the hospital the first time and three weeks for her second major heart surgery. My wife and I don’t doubt for a moment that our daughter will go to college or get married. Just because your child has downs does not mean it is the end of the world or they will be limited. Just slowed down to a different pace. We don’t believe in underestimating our child’s abilities and neither should any parent (with or without DS). It made me angry when I heard them say maybe she will go to college or get married. You’re limiting your child by thinking like that.

  • Beautiful story! As a woman who had two babies after 35 I made that decision with the first of them, that I would keep the baby even if it had down’s syndrome. I was not a Christian then, but you could say God was calling me at the time. I saw an outing of a group of down’s syndrome children on the corner with their teacher, and God spoke to my heart that these kids are a real blessing. I had the amniocentesis as doctor urged but my mind was already made up, as even then I had strong pro-life sentiments.